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Autoimmune Issues and VSG?

Tjohnson322

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Blessedfun    89

Blessedfun
Posted

Okay' date=' has anyone been through the liquid diet that has lupus? My flairs are going crazy. I have the "butterfly effect" and my face is constantly red.[/quote']

I have been diagnosed with lupus, fibromyalgia, Sjögren's syndrome, rheumatoid arthritis, etc.... I had some flairs pre-surgery because I stopped my meds 3 weeks out at the surgeon's request; but I dealt with it with because I was determined to make it to surgery. I went to acupuncture and she got me through until surgery. I had surgery May 15 and have not had a flair since. I have had some stiffness but Tylenol Arthritis has helped that. I have dropped over 50 lbs and love it! Blessings! ~ Melody

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ladybug112000    114

ladybug112000
Posted

I have been diagnosed with lupus' date=' fibromyalgia, Sjögren's syndrome, rheumatoid arthritis, etc.... I had some flairs pre-surgery because I stopped my meds 3 weeks out at the surgeon's request; but I dealt with it with because I was determined to make it to surgery. I went to acupuncture and she got me through until surgery. I had surgery May 15 and have not had a flair since. I have had some stiffness but Tylenol Arthritis has helped that. I have dropped over 50 lbs and love it! Blessings! ~ Melody[/quote']

I have RA too. I haven't taken my methotrexate shot in two weeks. I'm determined to do this but the pain is unbearable. I have my little pain pulls and will continue to take those every 4 hour. Congrats on the 50lbs. That is so awesome!!!!!!

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gamergirl    4,609

gamergirl
Posted

I have been diagnosed with lupus' date=' fibromyalgia, Sjögren's syndrome, rheumatoid arthritis, etc.... I had some flairs pre-surgery because I stopped my meds 3 weeks out at the surgeon's request; but I dealt with it with because I was determined to make it to surgery. I went to acupuncture and she got me through until surgery. I had surgery May 15 and have not had a flair since. I have had some stiffness but Tylenol Arthritis has helped that. I have dropped over 50 lbs and love it! Blessings! ~ Melody[/quote']

Acupuncture sounds interesting. Sounds like it helped? Do you just go to a qualified acupuncturist and tell them you have Ra and they know what to do, or do you have to find someone who specializes in that? I might need it.

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Blessedfun    89

Blessedfun
Posted

Acupuncture sounds interesting. Sounds like it helped? Do you just go to a qualified acupuncturist and tell them you have Ra and they know what to do' date=' or do you have to find someone who specializes in that? I might need it.[/quote']

I love love love acupuncture. I make a joke but it really is the God's honest truth - I would pick up cans to go to acupuncture if I did not have the money. It means everything especially in the winter for stiffness and pain control. My acupuncturist has a health center. I filled out a question about health, diet, exercise etc. She handles it from there. I always leave totally relaxed and can't say enough about how she has helped me these last 4-5 years. I went every week for a month, then twice a month and now every 4-6 weeks unless I have a need. In the spring/summer every 8 weeks. Once I went with a couple fingers that had not moved in days because of swelling and stiffness. I left there with those fingers bending and the pain gone. I hope you find someone as good as mine! Blessings!!

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ladybug112000    114

ladybug112000
Posted

My surgery is August 7th. I've been off methotrexate shots for two weeks and I feel pretty good. I'm taking OxyContin throughout the day, but not too bad!! Hope everyone is doing good.

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Brenda0928    145

Brenda0928
Posted

My surgery is August 7th. I've been off methotrexate shots for two weeks and I feel pretty good. I'm taking OxyContin throughout the day' date=' but not too bad!! Hope everyone is doing good.[/quote']

Best of luck!! Keep us posted on the flip side!!

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Tjohnson322    26

Tjohnson322
Posted

Good luck tomorrow Ladybug! My surgery is today. I've done ok off the methotrexate. Some stiffness/pain, but I managed with 1 or 2 tramadol per day. Praying for no complications!!

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LadyKatie    61

LadyKatie
Posted

Good luck tomorrow Ladybug! My surgery is today. I've done ok off the methotrexate. Some stiffness/pain' date=' but I managed with 1 or 2 tramadol per day. Praying for no complications!![/quote']

Goodluck!!!

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ladybug112000    114

ladybug112000
Posted

Good luck tomorrow Ladybug! My surgery is today. I've done ok off the methotrexate. Some stiffness/pain' date=' but I managed with 1 or 2 tramadol per day. Praying for no complications!![/quote']

Thank you and best wishes for you too. Let us know how it goes when you can. Praying for a quick recovery!!!!

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Marivdb    22

Marivdb
Posted

HI, I'm new, and I also suffer from RA...My surgery is scheduled for August 20 and I started my full liq diet today. I had shingles this summer, so my med schedule is all over the board, I have been off my Cimzia for a month now. My mtx as well. I have done my MTX injectable for a long time as the pills made me so sick. The little needle for the MTX is sooooo much easier than the pens for the enbrel or the humria IMHO. Thanks for sharing your stories, it has helped me quite a bit reading them today.

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gamergirl    4,609

gamergirl
Posted

I took my last Enbrel and Methotrexate a week ago last Friday. That means it's been 11 days since my last doses. Typically I start to feel it in my joints on shot-day. I don't know if my body is just busy recovering from the surgery and therefore releasing endorphins naturally or what, but thankfully, no pain yet.

Not naive enough to believe it won't come, just grateful it's not here yet!

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Brenda0928    145

Brenda0928
Posted

Good luck tomorrow Ladybug! My surgery is today. I've done ok off the methotrexate. Some stiffness/pain' date=' but I managed with 1 or 2 tramadol per day. Praying for no complications!![/quote']

Good luck today!! Keep us posted when you feel up to it!!

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Brenda0928    145

Brenda0928
Posted

HI' date=' I'm new, and I also suffer from RA...My surgery is scheduled for August 20 and I started my full liq diet today. I had shingles this summer, so my med schedule is all over the board, I have been off my Cimzia for a month now. My mtx as well. I have done my MTX injectable for a long time as the pills made me so sick. The little needle for the MTX is sooooo much easier than the pens for the enbrel or the humria IMHO. Thanks for sharing your stories, it has helped me quite a bit reading them today.[/quote']

Yes, I am doing my own shots now for B12 and methotrexate, as well as the enbrel pen......none of them are bad....

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Go To Topic Listing PRE-Operation Weight Loss Surgery Q&A

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    • KeeWee

      KeeWee

      It's been 10 long years! Here is my VSG weight loss surgiversary update..
      https://www.ae1bmerchme.com/post/10-year-surgiversary-update-for-2024 
      · 0 replies
      1. This update has no replies.
    • Aunty Mamo

      Aunty Mamo

      Iʻm roughly 6 weeks post-op this morning and have begun to feel like a normal human, with a normal human body again. I started introducing solid foods and pill forms of medications/supplements a couple of weeks ago and it's really amazing to eat meals with my family again, despite the fact that my portions are so much smaller than theirs. 
      I live on the island of Oʻahu and spend a lot of time in the water- for exercise, for play,  and for spiritual & mental health. The day I had my month out appointment with my surgeon, I packed all my gear in my truck, anticipating his permission to get back in the ocean. The minute I walked out of that hospital I drove straight to the shore and got in that water. Hallelujah! My appointment was at 10 am. I didn't get home until after 5 pm. 
      I'm down 31 pounds since the day of surgery and 47 since my pre-op diet began, with that typical week long stall occurring at three weeks. I'm really starting to see some changes lately- some of my clothing is too big, some fits again. The most drastic changes I notice however are in my face. I've also noticed my endurance and flexibility increasing. I was really starting to be held up physically, and I'm so grateful that I'm seeing that turn around in such short order. 
      My general disposition lately is hopeful and motivated. The only thing that bugs me on a daily basis still is the way those supplements make my house smell. So stink! But I just bought a smell proof bag online that other people use to put their pot in. My house doesn't stink anymore. 
       
      · 0 replies
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    • BeanitoDiego

      BeanitoDiego

      Oh yeah, something I wanted to rant about, a billing dispute that cropped up 3 months ago.
      Surgery was in August of 2023. A bill shows up for over $7,000 in January. WTF? I asks myself. I know that I jumped through all of the insurance hoops and verified this and triple checked that, as did the surgeon's office. All was set, and I paid all of the known costs before surgery.
      A looong story short, is that an assistant surgeon that was in the process of accepting money from my insurance company touched me while I was under anesthesia. That is what the bill was for. But hey, guess what? Some federal legislation was enacted last year to help patients out when they cannot consent to being touched by someone out of their insurance network. These types of bills fall under something called, "surprise billing," and you don't have to put up with it.
      https://www.cms.gov/nosurprises
      I had to make a lot of phone calls to both the surgeon's office and the insurance company and explain my rights and what the maximum out of pocket costs were that I could be liable for. Also had to remind them that it isn't my place to be taking care of all of this and that I was going to escalate things if they could not play nice with one another.
      Quick ending is that I don't have to pay that $7,000+. Advocate, advocate, advocate for yourself no matter how long it takes and learn more about this law if you are ever hit with a surprise bill.
      · 0 replies
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    • BeanitoDiego

      BeanitoDiego

      Some days I feel like an infiltrator... I'm participating in society as a "thin" person. They have no idea that I haven't always been one of them! 🤣
      · 0 replies
      1. This update has no replies.
    • ChunkCat

      ChunkCat

      Thank you everyone for your well wishes! I totally forgot I wrote an update here... I'm one week post op today. I gained 15 lbs in water weight overnight because they had to give me tons of fluids to bring my BP up after surgery! I stayed one night in the hospital. Everything has been fine except I seem to have picked up a bug while I was there and I've been running a low grade fever, coughing, and a sore throat. So I've been hydrating well and sleeping a ton. So far the Covid tests are negative.
      I haven't been able to advance my diet past purees. Everything I eat other than tofu makes me choke and feels like trying to swallow rocks. They warned me it would get worse before it gets better, so lets hope this is all normal. I have my follow up on Monday so we'll see. Living on shakes and soup again is not fun. I had enough of them the first time!! LOL 
      · 0 replies
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