Dec 17 surgery date, come out all is foggy immense pain, day two , bp low , racing heart, immense pain high temp, transferred to icu, bp, heart rate under control, now infection at jp drain site , picc line inserted for tpn nutrition, waiting on cultures results......wondering if this was all worth it, everyone says focus on the big picture, well when you have an infection thats not healing, been in the hospital 7 days, with nothing to eat or drink and getting fed through a tube starting tomorrow, oh and missing the holidays, and everyone else who had the surgery the day of or after are homer ? well you see the bigger picture!

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That's horrible. Hopefully they find out the source of what's going on soon! Prayers your way!

Sending some prayers...sorry you're having such a hard time

Dec 17 surgery date' date=' come out all is foggy immense pain, day two , bp low , racing heart, immense pain high temp, transferred to icu, bp, heart rate under control, now infection at jp drain site , picc line inserted for tpn nutrition, waiting on cultures results......wondering if this was all worth it, everyone says focus on the big picture, well when you have an infection thats not healing, been in the hospital 7 days, with nothing to eat or drink and getting fed through a tube starting tomorrow, oh and missing the holidays, and everyone else who had the surgery the day of or after are homer ? well you see the bigger picture!

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My surgery was on the 18th and just got home today as I needed a few transfusions. Hope you can find comfort in the fact that we did this for all the right reasons. Short term pain for life long gain. Stay positive if you can. Our thoughts and compassion are with you

im sorry u have to go thru all that! I couldnt imagine. Im praying for u!

Everyone's bodies respond differently to everything. You could have gotten an infection if you had a different surgery. I hope everything turns around for you and you have a different outlook on the whole experience. Maybe think of this as a minor detour down a new road that has yet to be paved. Hopefully that new road is long and has a lot of exciting new adventures and your detour is short and brief.

I'm Dec 17th as well. Hope your home soon and your new journey gets better! Hugs and prayers your home soon!

Thank you all for the support and kind words, trying to find the positive in this is so hard , I am sure lots of people have set backs, but I took a whole year to research and make a final decision, have been sick for almost 3 with an auto immune disorder that affects my joints so I'm desperately trying to find some relief any at this point I would take, not add too ! I am waiting for the one day I wake up and find some relief....... Thank you all for listening I appreciate it

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Stay strong! Prayers are with you!!

Sending prayers your way. Stay strong we are here for you.

Wishing you a speedy recovery. This is only a bumpy road you will be a success.

So sorry to hear all you have been through! It is so important for people like you to post even though the news or recovery isn't always as expected. If people were only hearing from those whose recoveries were a piece of cake, it would be biased because unfortunately, there ARE two sides of recovery. Thank you for sharing your progress and we are here to offer our support. Blessings for all infections to be healed, the pain to become better and your healing to begin.

Prayers for you!! You will get through this and one day you will wake up and feel better. I know you will!

Praying for healing and less pain. Thanks for sharing your journey so far. It is not always easy and things do happen and I thank you for letting us know. I also pray for comfort and peace of mind. You are going through a bunch and I wish you the very best. Gentle Hugs

update, went to the er on Sat had an abcess under the incision next to the jp drain , had to get it cut open and drained! having antibiotics twice a day at home still being fed through a picc line, and I have a leak, everything I ingest goes straight to my jp drain, , I have to have my incisions cleaned, packed, and dressed 4 times a day ! The pain is unbearable when not on meds, showers are almost impossible though they feel so good, I just want some sense of normalcy, at least I am home finally but feel like such a burden to my mom and partner right now as they help me with my tube feeding, wound care, meds, showers, changing when the nurse is not there geez .

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Have an appt with the surgeon today hopefully will get some answers, I agree, we should post about the good the bad, the success, so people are aware of every thing that can happen! everyone needs to be proactive when making a decision to have this surgery and have all information available. Thank you everyone for listening and for the support it means so much!

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