I am wondering why it's so hard to be a part of this site I reach out to others and get no or barely any replies is it a big clique , it matters to me because I to am having gbs and therefore want to share... Have a good day

I am wondering why it's so hard to be a part of this site I reach out to others and get no or barely any replies is it a big clique , it matters to me because I to am having gbs and therefore want to share... Have a good day

Hellooo, where are you in the world? I'm in the UK. I'm 6 days out from surgery. Have u had surgery yet? 8o)

21 minutes ago, thinblueline said:

I am wondering why it's so hard to be a part of this site I reach out to others and get no or barely any replies is it a big clique , it matters to me because I to am having gbs and therefore want to share... Have a good day

If no one is responding to your messages they may not be active often. But definitely keep trying to connect with people. You can find fantastic and lasting friendships ❤️

9 minutes ago, GreenTealael said:

If no one is responding to your messages they may not be active often. But definitely keep trying to connect with people. You can find fantastic and lasting friendships ❤️

agreed. It also depends on what you're asking. If you're asking how many carbs you should have or post that you're three weeks out and haven't lost any weight in a week, you'll get at least a dozen responses.

In general, open forums like this one are declining in popularity, in favor of more tailored, smaller communities such as BariNation and YourOnderland. I post and reply as regularly as I can, but am much more active in BariNation and have found a wonderful community there. But if this is more your speed, just be patient and give it time. Engaging regularly will create opportunities for others to engage with you and relationships will grow out of that organically, but it takes time. You can also look for in-person support groups through your surgery center or in your community. Best of luck to you, we are glad you're here!

19 minutes ago, Sleeve_Me_Alone said:

In general, open forums like this one are declining in popularity, in favor of more tailored, smaller communities such as BariNation and YourOnderland. I post and reply as regularly as I can, but am much more active in BariNation and have found a wonderful community there. But if this is more your speed, just be patient and give it time. Engaging regularly will create opportunities for others to engage with you and relationships will grow out of that organically, but it takes time. You can also look for in-person support groups through your surgery center or in your community. Best of luck to you, we are glad you're here!

I didn't know these other sites existed. Thanks!

How is Barination more tailored than this?

Also @theOP - you're as much a part of this site as anyone else. Some threads you start will be more popular than others, such is the way of things everywhere.

I just briefly checked out those other sites. I can see I will still like this one best.

1 hour ago, thinblueline said:

I am wondering why it's so hard to be a part of this site I reach out to others and get no or barely any replies is it a big clique , it matters to me because I to am having gbs and therefore want to share... Have a good day

I'm pretty new here myself and I feel like I'm 'in' by commenting on topics and threads that naturally draw a response from me.

It's definitely not like Facebook where people like a comment just because - here, speaking for myself, comment and react to posts that spark agreement, understanding, delight, etc.

Ultimately we are all here for ourselves. So keep that in mind, too.

I'd also suggest using the search bar feature to look for threads regarding questions or topics you are interested in.

Once you get an actual date of surgery, you will join a surgery buddies group to relate with and connect to those people with a similar timeline as you.

Best.

1 hour ago, thinblueline said:

I am wondering why it's so hard to be a part of this site I reach out to others and get no or barely any replies is it a big clique , it matters to me because I to am having gbs and therefore want to share... Have a good day

People will respond if it is something that they have experienced or have knowledge about. They will also respond if they disagree with something you are saying or advice you have been given. Just keep posting and you will see more and more interaction. The more you post to other's the more you will see your posts responded to.

Thanks Keith for the advice i appreciate it !

People tend to respond only if they think they have something helpful to contribute. It’s definitely not a clique or I wouldn’t like it here either. The more you post the more you will see replies to your posts.

3 hours ago, LilaNicole20 said:

I didn't know these other sites existed. Thanks!

I didn't either! I knew about Facebook groups, but I've heard some of those are pretty awful. I'll take a look at Barination and YourOnederland. Thanks!

I'm in a Facebook group and it seems very negative so far with lots of arguments. I think I'm going to just stay here where it's relatively positive and there is more real information and support.

All of the above.
I read all of your posts. But sometimes I don’t have any/or I can’t remember what it was like 4 months out of surgery so I don’t say anything.