Just using this thread as a running list of my medical/dietary commentary and questions. lol.

Called the doc to move up my appointment since I can't eat and he did an emergency endoscopy today. He said everything he can see looks fine. He said he made my pouch twice the normal size and bypassed more intestine than he normally does "in case" I ever need a revision so he has extra stomach to work with. That kind of annoys me. He said it puts me at a higher risk of ulcers, which I developed. I don't really understand why he doubled the size of my pouch. I still get stuffed off 3oz though.

He is removing my gallbladder on the 22nd. Pre-op I had a lot of gallstones, polyps, and calcification, so he hopes removing it will get rid of the nausea. It's bizarre though because everything makes me sick. I never, ever have high fat food. Even 0 fat stuff makes me sick. I hope it helps.

GI Swallow on the 7th to see if there's a small bowel stricture he couldn't see in the endoscopy, but he doubts it.

In the meantime, I guess I just feel sick for 3 more weeks and hope removing the gallbladder helps? I really don't want more surgery... [emoji53] I hope I can make it 3 weeks. He said if I can't bear it anymore to go to the ER and they will do emergency removal.

Total Parents I Nutrition, to give my beleagured jejunem and Precious Pouch some rest, I have a PICC line, which stands for Peripheral Inserted Central Catheter, starts out in my Basilic vein, upper inner surface of left arm, snakes through ever increasing gauge of the venous tree, ending up in my superior Vena cava, the large vein that collects blood from the upper half of my body, it is 48 cm long, a little under 19 inches, about the thickness of a strand of spaghetti, I think it is a 5-French, as a point of reference, most VSG sleeves are 32-35 French, so it is pretty tiny in comparison. I have a clear dressing over it, changed at least once a week, you see a small clear tube coming out with 2 ports on the end, one for IV, one the tube feeding goes through. Really pretty interesting. Does it hurt? Well a little, especially if you accidently tug it a little, but it is bearable, sometimes it itches a little around the dressing. I did have,it infusing all evening and night, 14 hours on, 10 off, but the first of January I was taken back to 12 on, 12 off, that's easier. Start it at 8 pm, take it off 8 AM. And now that I am getting it I do feel better, I was looking gaunt facially, and felt major creepy. The bad news I think,I have hit a stall, I was dropping weight fast when I was teetering on malnourishment and proteinemia, now that I have gotten more healthy IDK what next. The bags hold 3000ml so more than 3 quarts, they go inside a black backpack along with a battery-operated pump. Pretty heavy at the start, but wearable. I have on of my late husband's size 5X jackets I can wear if I am still pumping and need to go somewhere. It is currently clear, a very pale yellow from the vitamins you put in from a ?, was milky at the start but they have removed the lipids now. I hope to be done in January or February, but not sure if their plan of care at this point.

parental is the correct spelling.

44 minutes ago, Frustr8 said:

Total Parents I Nutrition, to give my beleagured jejunem and Precious Pouch some rest, I have a PICC line, which stands for Peripheral Inserted Central Catheter, starts out in my Basilic vein, upper inner surface of left arm, snakes through ever increasing gauge of the venous tree, ending up in my superior Vena cava, the large vein that collects blood from the upper half of my body, it is 48 cm long, a little under 19 inches, about the thickness of a strand of spaghetti, I think it is a 5-French, as a point of reference, most VSG sleeves are 32-35 French, so it is pretty tiny in comparison. I have a clear dressing over it, changed at least once a week, you see a small clear tube coming out with 2 ports on the end, one for IV, one the tube feeding goes through. Really pretty interesting. Does it hurt? Well a little, especially if you accidently tug it a little, but it is bearable, sometimes it itches a little around the dressing. I did have,it infusing all evening and night, 14 hours on, 10 off, but the first of January I was taken back to 12 on, 12 off, that's easier. Start it at 8 pm, take it off 8 AM. And now that I am getting it I do feel better, I was looking gaunt facially, and felt major creepy. The bad news I think,I have hit a stall, I was dropping weight fast when I was teetering on malnourishment and proteinemia, now that I have gotten more healthy IDK what next. The bags hold 3000ml so more than 3 quarts, they go inside a black backpack along with a battery-operated pump. Pretty heavy at the start, but wearable. I have on of my late husband's size 5X jackets I can wear if I am still pumping and need to go somewhere. It is currently clear, a very pale yellow from the Vitamins you put in from a ?, was milky at the start but they have removed the lipids now. I hope to be done in January or February, but not sure if their plan of care at this point.

Pictures!!! We want pics!!! Let us see your progress!

If I find some to send, please remember I am still "A work in Progress" of everyone thinks I'm still big, please remember I WAS BIGGER BEFORE. My current weight is where quite a few started their loss journey, I started at (shudder) 365 for a High Weight! Have to ask my Tomkitten if it can be done from an Android. ?

I LOVE MY SURGEON. I am scheduled with him for tomorrow noonish for gallbladder removal. He came by to see me personally in the ER after he got out of a 10 hr surgery. He also explained that he made my stomach slightly larger because some surgeon's make them too small which causes issues swallowing and that if later on in life a patient develops an ulcer that doesn't heal, they have to remove the pouch entirely.. so he leaves a tiny bit more so if that ever were to happen, I would still have a stomach. Which makes so much more sense now that I'm not on drugs from my endoscopy.

Anyways, they are admitting me tonight. Surgery tomorrow. Thank God!

Good, let's hope this will go a long way to fixing your problems. I do think you're going to get better now!

I LOVE MY SURGEON. I am scheduled with him for tomorrow noonish for gallbladder removal.

Please God your surgery is a success and you have minimal discomfort. Ask for all the good drugs!

I LOVE MY SURGEON. I am scheduled with him for tomorrow noonish for gallbladder removal. He came by to see me personally in the ER after he got out of a 10 hr surgery. He also explained that he made my stomach slightly larger because some surgeon's make them too small which causes issues swallowing and that if later on in life a patient develops an ulcer that doesn't heal, they have to remove the pouch entirely.. so he leaves a tiny bit more so if that ever were to happen, I would still have a stomach. Which makes so much more sense now that I'm not on drugs from my endoscopy.

Anyways, they are admitting me tonight. Surgery tomorrow. Thank God!

Yay!! I hope it works and you find relief. I be thinking of you!!

You and Recreating__Courtney are both having gallbladder surgery this weekend, will be thinking of you both and praying your surgeries go well. Maybe this will give you a degree of relief!

Good luck and godspeed for recovery.

Edited January 5, 20197 yr by Sosewsue61

surgery done. they found an ulcer in my intestine that was about to open up and leak stool into my torso! they fixed that and removed my gallbladder. have some pain. will probably be here 2 more nights. sigh.

4 minutes ago, mousecat88 said:

surgery done. they found an ulcer in my intestine that was about to open up and leak stool into my torso! they fixed that and removed my gallbladder. have some pain. will probably be here 2 more nights. sigh.

Holy cow! So glad they found those things before they got dangerously bad ❤️

✨✨✨ Sending quick healing vibes!!! ✨✨✨

Edited January 5, 20197 yr by Kimmie K

Holy cow! So glad they found those things before they got dangerously bad [emoji173]️
[emoji92][emoji92][emoji92] Sending quick healing vibes!!! [emoji92][emoji92][emoji92]

yeah had they not done the gallbladder they woulsnt have seen the other ulcer until it was way worse off!

1 minute ago, mousecat88 said:

yeah had they not done the gallbladder they woulsnt have seen the other ulcer until it was way worse off!

Yup, sepsis is no joke! The Universe looks out for us...this is definitely a prime example of that ??

And now maybe you will be able to speed up your healing. You have already been through so much, ??, but maybe had days will be soon over,