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Stronger than you know

I'm almost afraid to say it, but at the same time I feel like I need to go outside and shout it from the roof tops! I feel amazing! I am an entirely new person. These first two months from surgery have been the most trying time in my entire life. Most days I couldn't get out of bed, and I wanted nothing more than to lay there and die. I struggled for the first month with muscle pain so severe I couldn't move. After that I struggled debilitating nausea. It got so bad that I hadn't eaten in over a month. On the rare occasion I would try the food would come right back up. Early last week it got so bad that I could no longer keep down water. At this point I had been in the hospital 5 times for dehydration and different tests. I was taking protonix, Zofran, scopolamine patches, Reglan, and I was wearing sea bands for motion sickness. None of these things could even take the edge off my nausea. My CT and my Upper GI were clear. My surgeons team kept telling me jit was all in my head. I was so severely depressed and felt like I had no where to go. I was beginning my surgeon for an EDG and she was refusing to give me one. After being unable to keep water down for two days I went back to the ER and finally demanded I get the care I deserved. I was not going to leave there without answers. I was immediately admitted upon arrival where they found that my potassium levels were dangerously low. Lower than they have ever seen. I was given 6 bags of potassium and countless bags of fluid to clear the dehydration. I also demanded the do the scope. The scope found slight narrowing that was able to be fixed on the spot. I don't know if it's the scope or the fluids, or potassium that cured me, but whatever it was I finally have my life back. I wake up ready to live every single day! I'm taking half the anti depressants I was before. I hated hated hated hated hated hearing people say it gets better. I was so convinced there was no way out for me. I would lay in bed waiting to die. But it got better. It got so much better. I am living breathing proof that it can all change. I encourage anyone struggling the way I did to advocate for themselves, the doctors and surgeons won't do it for you. I still can't say I would do this all over again, currently I am still too traumatized, but I have learned so much from this surgery. I had this surgery for myself and it was like I had forgotten that after surgery. I needed to still be fighting for myself. I know this is long but I just hope my story can help.

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I'm so glad they were able to get you on the right track! Thank you for sharing :) I hope in a year, this is all a bad nightmare, and that you'll be strong and healthy :)

  • 1 year later...
On 3/19/2016 at 2:36 PM, acuri08 said:

I'm almost afraid to say it, but at the same time I feel like I need to go outside and shout it from the roof tops! I feel amazing! I am an entirely new person. These first two months from surgery have been the most trying time in my entire life. Most days I couldn't get out of bed, and I wanted nothing more than to lay there and die. I struggled for the first month with muscle pain so severe I couldn't move. After that I struggled debilitating nausea. It got so bad that I hadn't eaten in over a month. On the rare occasion I would try the food would come right back up. Early last week it got so bad that I could no longer keep down Water. At this point I had been in the hospital 5 times for dehydration and different tests. I was taking protonix, Zofran, scopolamine Patches, Reglan, and I was wearing sea bands for motion sickness. None of these things could even take the edge off my nausea. My CT and my Upper GI were clear. My surgeons team kept telling me jit was all in my head. I was so severely depressed and felt like I had no where to go. I was beginning my surgeon for an EDG and she was refusing to give me one. After being unable to keep water down for two days I went back to the ER and finally demanded I get the care I deserved. I was not going to leave there without answers. I was immediately admitted upon arrival where they found that my potassium levels were dangerously low. Lower than they have ever seen. I was given 6 bags of potassium and countless bags of Fluid to clear the dehydration. I also demanded the do the scope. The scope found slight narrowing that was able to be fixed on the spot. I don't know if it's the scope or the fluids, or potassium that cured me, but whatever it was I finally have my life back. I wake up ready to live every single day! I'm taking half the anti depressants I was before. I hated hated hated hated hated hearing people say it gets better. I was so convinced there was no way out for me. I would lay in bed waiting to die. But it got better. It got so much better. I am living breathing proof that it can all change. I encourage anyone struggling the way I did to advocate for themselves, the doctors and surgeons won't do it for you. I still can't say I would do this all over again, currently I am still too traumatized, but I have learned so much from this surgery. I had this surgery for myself and it was like I had forgotten that after surgery. I needed to still be fighting for myself. I know this is long but I just hope my story can help.

I just read your post and wanted to know how you are doing.

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