I had the Gastric Sleeve Weight Loss Surgery December 3, 2014 and since my health has declined rapidly.

I have on-going:

Chronic widespread nerve pain

Chronic Polyneuropathy

Numbness, Tingling, and Weakness in lower extremities worse on right side

Insomnia due to chronic nerve pain

Severe stomach pain

Constant cramping

Constant nausea

Daily vomiting

Acid reflux

Severe depression

Sever Anxiety Disorder

Chronic Migraines

Severe Malnutrition

C-Pack Feeding tube

Stomach J-Tube Feeding Tube surgery scheduled for December 1, 2015

I HAD NONE OF THESE ISSUES BEFORE THE SURGERY!

The nerve pain started in my toes and the balls of my feet April 2015, in less than a month it spread to my knees and hands left and right side, worse on my right side.

Now I have chronic widespread nerve pain all over my body.

I had full on drop foot on my right side in May of 2015 I went to Mary Free Bed for In-patient rehabilitation.

My toes feel like they are going to explode from the constant burning and stabbing

The ball of my feet feels like I'm stepping on hot needles

I have numbness and and tightness in my fingers

My knees are especially painful on my right side, they have a constant burning and stabbing pain.

My right knee and lower leg is becomes very swollen, it feels extremely tight, and my whole lower right leg is on fire and it is warm to the touch a times of extreme pain.

My hands feel like I'm holding them the on the eye of the stove, it is worse on my dominant right side.

I also have shooting nerve pains that come at random and feel like fire shooting through my body

The pain has highs and lows, but it is constant.

This makes all daily task near to impossible.

The worse of it is the extreme numbness, tingling and weakness in my lower extremists and also now my right hand a forearm. I have little to know feeling or reflexes from my waist down. I cannot walk without the assistance of a walker, I have had numerous falls due to sudden numbness in my legs and knees, also my knees have just given out numerous times.

My legs feel like they are being weighed down by cement. It is extremely hard to lift my legs especially on my right side. I become fatigued walking within a few minutes.

I now use a wheelchair primarily.

This makes my life impossible, because I never know when my legs are going to decide to give out. This has caused me to develop a extreme anxiety of leaving my home.

I only leave my house to go to doctors appointments. When it is time for me to leave my house for any reason I become short of breath, and dizzy. I usually have to breath into a paper bag to calm myself before I can even get into a car.

I've lost 176 pounds in less than 12 months to lose my ability to walk, work, and just having a life! I now live in a prison of cronic pain and feeding tubed.

I would estimate that I need assistance with 90% or more of my day to day normal activities.

They have tried every drug and nothing has worked to eliminate my chronic nerve pain, numbness or the weakness, my condition has only worsened.

Is anyone else having these issues? Please reach out to me I'm in extreme need of support, understanding, and answers. I'm only 26 and I feel like my life is OVER!

I had my surgery in Grand Rapids, MI at Spectrum Health Weight Loss Clinic. The surgery was performed by Dr. Holman (the butcher)

Are they considering an auto immune cause? The stress of surgery could have triggered an auto immune response.

I have also seen wide spread neuropathy with food allergies...I personally know someone who had very similar neuropathy symptoms and was diagnosed with a corn allergy. After eliminating corn she is much better.

So sorry you are having so many issues....but good luck pinpointing the cause

The Mayo clinic is where you want to go. I have a friend who has something called Dysautonomia. It is also rare and came seemingly out of the blue. She is not a bariatric patient. She has some of the muscular weakness and autoimmune issues you mention. This is well beyond my scope of knowledge but from all that I have heard, Mayo is the best place to find a solution.

Are any other organs, aside from your stomach, in your body being affected?

We're any of your nerves accidentally damaged during the surgery?

So very sorry you are having so much pain! My first thought is auto-immune disease too. If you cannot get to Mayo, have you at least seen rheumatologist? That is who diagnosed my auto-immune disease (Graves Disease and ongoing monitoring for Lupus due to some certain markers shown in a blood test).

Has your neurologist ordered an MRI of your complete spine to look for any discs that are pressing on nerves? Did you have any kind of accident (or fall) that would have compressed your spine?

The only reason that comes to mind is that I get similar neuropathies in my right leg, from hip to toe - including the drop foot - and it has nothing to do with my sleeve. I had steroid injections for a while, but my pain specialist moved on to a process called Radio Frequency Nerve Ablation.

What he does is basically using that process to "disconnect" that nerve from its compression point where L5 meets the sacrum. (L5-S1)

The procedure immediately stops the pain because my brain does not receive that signal. It does not affect any motor nerves, requires no incision, and lasts from three months to two years, depending on how fast the nerve grows back.

According to their website, the Mayo Clinic uses this process in a number of applications. It certainly is worth asking about, because if they cannot find what suddenly activated the chronic pain, they can at least give you some relief from it.

I wish you the best and am looking forward to hearing that your medical team has found a resolution for you. Hugs from Chicago.

I don't have any advice to offer but I hope you find a solution and feel better soon.

I am so sorry to hear of all this and hope you find help and improvements soon!

I have never heard of this situation related to WLS, but you lost alot of weight really fast. I lost 150# in 14 months which for a woman, was considered fast by my surgeon. You lost even more/faster. I don't know what to believe, but my previous primary care doc didn't think standard blood tests show deficiencies accurately. I did this"extra" special nutrient analysis via Spectracell which came back very very good in my case. Given your history of B Vitamin issues and the B Vitamins relationship to neurological issues...perhaps this should be pursued further?

I am hoping you get some answers, please update us.

Has your neurologist ordered an MRI of your complete spine to look for any discs that are pressing on nerves? Did you have any kind of accident (or fall) that would have compressed your spine?

The only reason that comes to mind is that I get similar neuropathies in my right leg, from hip to toe - including the drop foot - and it has nothing to do with my sleeve. I had steroid injections for a while, but my pain specialist moved on to a process called Radio Frequency Nerve Ablation.

What he does is basically using that process to "disconnect" that nerve from its compression point where L5 meets the sacrum. (L5-S1)

The procedure immediately stops the pain because my brain does not receive that signal. It does not affect any motor nerves, requires no incision, and lasts from three months to two years, depending on how fast the nerve grows back.

According to their website, the Mayo Clinic uses this process in a number of applications. It certainly is worth asking about, because if they cannot find what suddenly activated the chronic pain, they can at least give you some relief from it.

I wish you the best and am looking forward to hearing that your medical team has found a resolution for you. Hugs from Chicago.

Was going to suggest the same thing. I just had my second spinal fusion due to most of these symptoms. I know it may have coincided with your surgery but who knows. Maybe you had a bulging disc before surgery and then without them know being intubated could have completely herniated it. I wouldn't disregard your spine at all.

Edited November 25, 201510 yr by kdelrosso

It's horrible what's happened to you! I'm so sorry. I hope you find d the right doctor to get you fixed up for good.

Have they checked you for lead, mercury, and other toxic metals? Several can cause most if not all of the symptoms you mentioned. Exposure to toxins is my professional area of expertise so that's why your symptoms sound so suspicious.

It's admittedly unlikely, but not impossible; for example Consumerlabs.com has found lead contamination in many Calcium supplements, and heavy metals in some Protein drinks.

You may want to ask your dr to run a heavy metals panel just to rule this out for sure. NOT some hokey test of your hair or nails -- a real blood test by a real MD (for example the correct test for lead is a ZPP or zinc protoporphyrin test).