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Can you MAKE me feel worse?

So I go for my stress test for my heart issues today, and man, did I regret doing it. Not because of the test, but for the incredibly uncomfortable situation I was put in while undergoing the test. Many of you know I have so many scars, from SO many surgeries over the years, I make frankenbride look like Heidi Klum! I always try to warn people who need to see me in a state of undress what they are about to see, because it IS quite shocking to someone unfamiliar with my situation. And most folks handle it accordingly.

Today was just unbelievable. I put on the ever-cute hospital gown, and as the gal who took the readings removed the part to expose my torso for the pads they must place for the test, her face told it all. Not sadness or pity like a lot show, but repulsiveness. She would slap that gown over me again every time she had open it like it was on fire. Huff and puff with disgust, like it was all she could do to be there and do her job.

It was bad enough I had been without food for almost 5 hours (you can't eat for 4 hours prior to the test), and I normally eat every 3 hours. So I was feeling pretty faint, and tried to explain to her I needed to speed this whole thing up. I told her about having the sleeve surgery, and she told me how she knew about that surgery and "all the repercussions" that followed it. IF I had been in my right mind at the time, I would have laid it on the line for her, and called her out on it. But I wasn't up to par with my queasiness. She acted so disgusted, and repulsed, and all I wanted to do was.....cry.

I didn't, but it's like, hey - I have been through HELL over the years, more times than anyone should ever have to go through. When I look at someone who has the physical evidence of horrific things that has happened to them, I feel compassion. Empathy. Sympathy. Love. This gal was young, probably 30 or so. I am not. But considering what I have been through, I look pretty good, if I do say so myself!

As I am lying on this table, with my torso exposed for all to see, I have 2 women and one man hovering over me like I am something from a freak museum. WHEN will hospital staff act like they are mature, adult, compassionate HUMAN BEINGS instead of moronic morons (like that term???!!!) who feel they are superior to us lowly patients who shouldn't even soil their floors with our footsteps??????

Yes, I am venting, and I apologize. I cannot tell what occurred to my husband, who would go in there like the thundering cop he can be, and DEAL with them. So I thank you for listening (or reading!!!), and letting me vent. Tonight I am greatly saddened. I do not even know what the results of my test are, but I'm not sure I care at this point. I know one thing. I WILL NOT be using this hospital again for ANYTHING. I am at this point, after so many surgeries, where I think I have just had too much, and cannot do anymore. I just can't right now. I can't see those people standing over me, looking at me like that. No more. I am sooo tired. No more.

Thanks for letting me vent.

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I don't know you and I wasn't there but I feel the utmost sympathy for you. What a horrible thing for them to do to you and what a f-ing awful way for them to make you feel!!! I have to admit, I'd love to watch your husband read them the riot act but I totally get why you don't want him to do that. I personally think you are making a good choice to use another hospital and I hope you can let go of how they made you feel, you didn't deserve that at all and may they be smited by a thousand hot suns for how they reacted!!!

i hope your husband gets good news this week and that his treatments are easy on him and that he has a full and speedy recovery. I will be thinking of you in the days ahead.

Echo the massive hug to you, just don't tell your husband :D

My personal favorite is the physical therapist who had me take my shirt off (large belly exposed) in an open clinic, and who then took large calipers to measure my fat in the pinchers for some fat percentage test. It was humiliating because of the many people watching. However, it was also embarrassing for the therapist when I asked to meet with her supervisor, and I explained how her behavior made me feel. I got an apology.

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@

I can't even begin to imagine WHY she would've done that, but I'm glad you threw the curve ball back at her! WHERE is the sensitivity, kindness, and consideration of/for others? Why do people have to be TOLD to be nice? I just don't understand. When I slip, I (at MINIMUM) spend the night berating myself, worry myself intolerable, and kick myself...with no satisfaction, because wrong CANNOT be satisfied.

It just FEELS good to be kind, pleasant, nice, considerate, loving, caring.......and it comes BACK! Maybe not always right away, but perhaps in ways we do not necessarily even see. And I believe you DO reap what you sow.

Thanks for the hug, I'm thinking right now, the more the better!!!!

@@CanyonBaby

I have read this thread and I am also praying. I think the support here, even within this thread is amazing, so many wonderful people. Stay strong and I am now listening for good news along with everyone else. :)

Hugs

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@@MissLiss

Thank you for your prayers, they are all heard, and definitely all appreciated!

My husband went in for his second colonoscopy today, to no avail as the doctor could not get the biopsies he needed to get. So he went in for x-rays, which we will hear results from tomorrow morning. The surgery will have to be done without any other tests, apparently. And it needs to be done ASAP, so I imagine either this week or early next. We think the cyst on his pancreas may be from a fall he had off of a ladder last summer. The "bloated" sensation isn't bloating at all, but because he has this blockage, it is food that can't pass through the colon in the same timing as normally done.

This is a BIG heads-up for all, as colon issues apparently don't always present symptoms (my husband didn't really recognize his symptoms as symptoms), but on the slightest change, get medical attention. Here is an otherwise VERY healthy, robust man, who has never smoked, hasn't used alcohol in over 25 years, never did any type of drug (other than the rare aspirin), works out a minimum of 5 times a week (burning a minimum of 500 calories - P90X...) and works outdoors 80 percent of the time....just healthy as can be. Never sick, other than minor colds once every few years. And there it is. Surprise. Out of the blue. No warning. ANYONE, ANYWHERE can have health issues. Take care, people! Take CARE!

I am so sorry you were treated so poorly....I would chalk this up to ignorance and immaturity and I would not waste another second thinking about this callous woman. I would however take the time to make a few phone calls to the powers that be at that hospital. Maybe she needs to be reported so she does not continue to do this to others.

I am sorry you have experienced this. As a medical professional myself I can tell you this is not how administration wants their patients to be treated. I highly encourage you to write a nice long heart felt letter to the administrator of this facility. That is going to the top. I feel sure it will be investigated. I have worked with nurses that have been suspended for letter that administration got about them. This person needs to reconsider her choice of career. I pray that I never make a patient feel this way. Don't let this person make you feel inferior. You and only you know what your journey has been. When I encounter a person like this. I make it a point to tell them I will pray for them and for them to have a blessed day. That always gives me the last word and something for them to think about.

@@CanyonBaby how is your hubby? I want to follow your story and not sure this is the right thread.

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@@CowgirlJane

Thank you for your inquiry of Dave. He is doing well right now, and we see the surgeon tomorrow morning. He will be having surgery on Friday. This is what's going on: He has a cancer either in or on the descending colon. This has been confirmed by many tests. He also has a cyst, which they believe is benign, on his pancreas, and they also believe it is unrelated to the colon cancer. They did biopsies on it while he underwent a procedure putting a stent in the colon to open up the blockage. We must wait for the result on the biopsies to be sure the cyst is benign.

He was in the hospital for 3 days immediately following the first surgeon visit. That was how bad his blockage was. They must shrink the swollen part of the colon (above the blockage) in order to be able to connect the two sections once the cancer is removed. That is why they put the stent in. The stent opens up the blockage, allowing the colon above the blockage to get back down to a normal size. They had to do this first before they could proceed with the cancer removal, which is scheduled for Friday.

At this time they believe the cancer is either stage 2 or 3. We won't know until they go in. If the lymph nodes and blood vessels surrounding the colon are NOT invaded by the cancer, he will not need chemo. That would be stage 2. Stage 3 would mean the cancer has spread to other systems, and he would need the chemo to kill it. So we are praying for the stage 2, and a clean removal of the cancer.

This is what is so interesting: he has had NO symptoms at all, including bleeding, pain, nothing. And there is NO family history whatsoever. The surgeons (all 4) say it is "just bad luck". Go figure. This man has NEVER had anything more than a cold. No surgeries at all, he never drank, smoked, did illicit drugs, ate poorly.....works out all the time...super healthy. The only reason he had a colonoscopy at all was me. I nagged him about it for the last few years, and especially as I noticed he was using the restroom more often.

The surgeons say to get a colonoscopy at age 50. They said most cancers of this type are about 10 years old by the time they are discovered. And there are little if any symptoms. So the lesson here is get colonoscopy by age 50, before it is too late. It CAN happen to anyone.

I will fill you in as we progress, we are cautiously optimistic for this surgery. The surgeons (all 4) believe this is stage 2, and will be dealt with then and there. They anticipate the surgery will be done lapriscopically, which would mean a quicker recovery. As of yesterday, he is off duty for the next 8 weeks, which is extremely difficult for a guy like Dave. But he is getting noticeably weaker with all the laxative-type meds he takes, and he needs to stay near the restroom. The pre-surgery stuff starts Thursday. Tomorrow's appointment will consist of an educational video, prep materials, and visit with the surgeon (such an awesome fellow). I imagine recovery details will be mentioned, and all the what-ifs.

We have prepared as best we can on our end. It is hard to get all the paperwork regarding wills, powers of attorney, living wills....without getting emotional. We hopefully have all the heavy work that I cannot do completed. I THINK we're as ready as we can be.

And, of course, our prayer chain is enormous!!!!! Everything is ready to go, and we are indeed blessed. Thank you all for your kind words, and especially your prayers. STAGE 2, OR BETTER YET....CANCER FREE!!!!!!

Plenty of folks following this thread and keeping you and your hubby in our thoughts. Wishing you only good news and that this scary and difficult time becomes a thing of the past as soon as possible.

Actually, this is all sounding pretty positive to me -- as colon cancer situations go.

Very best to you guys, CanyonBaby.

BTW, I think you sound like you're coping pretty darned good.

  • Author

@VSGAnn2014@gowalking

Thank you so much, it all helps to have such support.

We just got back from the visit with the surgeon. He has told us the cyst on the pancreas IS BENIGN!!!!!!!!!!!!!! YAY!

Now we need to get through the surgery, scheduled for 2pm our time on Friday. Walking with the Lord.....

Have you seen this new shake for pre-surgery? It is called "Impact Advanced Recovery" by Nestle Health Science. The patient drinks 3 shakes a day, for improved recovery. It is a prescription-only shake, vanilla flavored. The surgeon's assistant gave us a box of 15 (drinking 3 per day for 5 days prior to surgery).Apparently the difference between it and other shakes are that it has Arginine, Omega-3 fatty acids, and dietary nucleotides, which are proven to help the body recover from major surgery. It is supposed to help the immune system. And diabetics can have it as well, you would have to alter the diabetic diet a little, though. Just some news for those undergoing surgery...ask about it!

More news to come....again thank you everyone, it means so much....Grace sufficient for the day.....

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