Almost 18 months ago when I had lap band surgery I thought wow when I lose all this weight I will feel like a million bucks, well that didn't happen. I've struggled since day one, not with eating, physically. I have not been able to exercise at all, I have loose skin everywhere. For the past several weeks I've undergone testing for several things and today I headed to Nashville for the results, certainly not what I wanted to hear, I was diagnosed with Lupus. Thank goodness it hasn't affected my kidneys or liver yet just has damaged my muscles and joints along with other symptoms. Today was a shocker to say the least. The dr prescribed Plaquenil and he was quick to say that it will make me sick at first like vomit sick but that should subside. Wish me luck I start the med tomorrow.

All I wanted to do 17 months ago was to get healthy and thinner. I just have to keep in mind that the good Lord never puts too much on us that we can't handle. I can handle this!!!

I know you've had some tough things to deal with this year Donna. Wishing you all the best and know that we are keeping you in our thoughts.

Wishing you all the best and hoping the meds treat you kindly and makes you feel better...keep us posted on how you are doing! :wub:

Prayers for you Donna!

How ironic. My daughter was just prescribed Plaquinil (I'm spelling it wrong) tonite. She was diagnosed with Mixed Connective Tissue Disease, which is essentially like a combination of Lupus, Scleroderma, and Polymyositis. We thought she had RA but her blood work came back with MCTD instead.

We'll have to keep in contact, Donna. We can compare notes how you and my daughter are both doing on the med. She started it tonight.

Sending peace and blessings your way.

Hey Donna don't let it get you down to much as we know you have been through a lot there for you have over came a lot and , you know you have the tool and tools like talking to someone and other things so just follow the regimine as you have been doing and are about to do you will get better I say this cause I know you can e strong and overcome things as you have.

Missy I stopped taking the Plaquenil after 2 days, have heard and read so many bad side effects to it and irreversible eye probs with it that I didn't want to take a chance. Although my doc says its safe I know what I read and he even stated see an eye dr every 6 months, hello, it can mess up your retina. My pain is sporadic, not constant, don't know if weather plays a part in it or not but today we had an ice storm here in western ky and it is bitter cold and i've been in pain all day today, took a pain pill but its not knocking it, still in pain as i sit here, getting ready to go to bed, hopefully tomorrow will be a better day. PM me if you want. Sorry to hear about your daughter. My doc mentioned that with me along with lupus.

Sorry Donna, I am glad that you finally have an answer. I will add you to my prayer list, too! Better the "devil" you know than the one you don't know! ((((hugs))) to you! I can only wish you healing prayes and support for our group! Karen

Missy I stopped taking the Plaquenil after 2 days, have heard and read so many bad side effects to it and irreversible eye probs with it that I didn't want to take a chance. Although my doc says its safe I know what I read and he even stated see an eye dr every 6 months, hello, it can mess up your retina. My pain is sporadic, not constant, don't know if weather plays a part in it or not but today we had an ice storm here in western ky and it is bitter cold and i've been in pain all day today, took a pain pill but its not knocking it, still in pain as i sit here, getting ready to go to bed, hopefully tomorrow will be a better day. PM me if you want. Sorry to hear about your daughter. My doc mentioned that with me along with lupus.

I read about the possible eye problems, too. However statistically speaking, it's a very rare side effect. She's doing very well on it so far and I've made an appointment with my ophthalmologist for her to get a base line exam. I have to get my eyes checked every 6 months because of the MS so I figure I'll just hers checked at the same time.

Thanks Missy for the info and thanks all of you all for ur input on the plaquenil. I think I will start it back, awoke today in tremendous pain. I can't go on like that!

You are in my thoughts.

Sorry to hear that you are in so much pain...hope you get some much needed relief soon.

Sending hugs and good thoughts your way! Have a better day!

Thanks Missy for the info and thanks all of you all for ur input on the plaquenil. I think I will start it back, awoke today in tremendous pain. I can't go on like that!

Donna12

Is your pain related all to muscles?

I have fibro in my back and my rheumetoligist dr gives me flexeril to help with the pain of knotting muscles. Would this be any help to you? I'm sorry you're going thru so much it must be discouraging....but try to keeo a smile in your heart. You have many friends here concerned for you and coming here to vent does help. Bless you and prayers coming your way.

Donna.... Being informed is the first step to healing. I am sorry to hear about your situation but you are a strong gal!! You will be just fine!!

Thanks Missy for the info and thanks all of you all for ur input on the plaquenil. I think I will start it back, awoke today in tremendous pain. I can't go on like that!

Donna12

Is your pain related all to muscles?

I have fibro in my back and my rheumetoligist dr gives me flexeril to help with the pain of knotting muscles. Would this be any help to you? I'm sorry you're going thru so much it must be discouraging....but try to keeo a smile in your heart. You have many friends here concerned for you and coming here to vent does help. Bless you and prayers coming your way.

I have pain in my thighs like in the muscles and then pain in my knees and then my ankle bones hurt and yes I do have pressure points in my shoulders that hurt. I will ask about the flexeril, thanks. I ended up taking a Percocet yesterday and that didn't even phase the pain that I was experiencing. We had an ice storm here in Western Ky over the weekend and the extreme cold has affected my lupus and pain, wishing I had the money to spend winter in a warmer climate. Thanks you guys for all the prayers, they are always welcome.