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I haven't been on in while either, since surgery in March. The whole insurance game is a real drag! As for finding a doctor who takes medicare, seems they are all slowly shying away from it. Don't understand it, seems having medicare just doesn't pay sometimes. I wish you all the luck in this journey.

Support from friends and family is soooo important to our success. Why are they not supportive of you in this endeavor? Seems a very selfish stance on their part, if you ask me. Proving them wrong may just be the way you will need to react to their negativity. Show everyone that you can be successful and happy and just fine with or without their support. Then when they need you support, be indifferent. Passive Aggressive, I know, but sometimes people just make me mad. It's easy for others to judge when it's not them that is going through the struggle. They just don't understand or don't want to. YOU ARE WORTH IT!!! Remember that. We have been living in a type of prison and we are ready to be free and enjoy life the best we can with the limitations of our illnesses. We no longer need the limitations of being overweight.

I have only lost 40 pounds since March 28 and I admit I thought I could cheat the system a bit. I am now back on track and have lost 3 lbs in 3 days. Due to having MS and it's summer, I do not exercise like I'm supposed to, but as soon as it cools down, I have promised myself to get back into it. The hardest part of the whole thing for me.

Just know that the only person that matters right now is YOU and forget about everyone else. You can do it!

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You're right. I have to be selfish right now. The funny part is that I'm not usually the type of personality who cares about what anyone else thinks or says. I definitely march to my own drummer....! I'm not sure why the negative opinions of my husbands family has bothered me. I guess I care about them even though they piss me off to no end. I told my husband I need some healthy boundaries where they are concerned. So I have put an emotional block up where they are concerned for the time being. I also told him I need to get a psychologist in place for long-term help in dealing with my anger toward them. Actually, I think I'm kind of a hot-head. I am not sure why... I've never felt like I was this way before. Maybe it's the stress from all the realization that change is necessary. Maybe it's that I resent people trying to control me. Actually, that definitely pisses me off. I don't like when someone tries to manipulate me through guilt or whatever. Anyway - thanks for your message!!! :)

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Seems that you all have one or more of the same issues. I don't have any of those, but I do have MS. My right leg has incredible tone which makes it very difficult to walk. I use a cane due to balance issues and falling often. I am terribly lucky to not have pain. I do have restless legs which is under control as long as I take my Mirapex. I refuse to take any of the MS therapies due to the side effects and the fact that they don't make any of the current symptoms go away.I can't wait for my surgery because carrying all this extra weight makes it even more difficult to move a round and it's exhausting. Thanks for this group.

Hi I just found this thread and wanted to know if u had the surgery? I did last April and I too have MS. And have had a flare since then.

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I haven't been on in while either, since surgery in March. The whole insurance game is a real drag! As for finding a doctor who takes medicare, seems they are all slowly shying away from it. Don't understand it, seems having medicare just doesn't pay sometimes. I wish you all the luck in this journey. Support from friends and family is soooo important to our success. Why are they not supportive of you in this endeavor? Seems a very selfish stance on their part, if you ask me. Proving them wrong may just be the way you will need to react to their negativity. Show everyone that you can be successful and happy and just fine with or without their support. Then when they need you support, be indifferent. Passive Aggressive, I know, but sometimes people just make me mad. It's easy for others to judge when it's not them that is going through the struggle. They just don't understand or don't want to. YOU ARE WORTH IT!!! Remember that. We have been living in a type of prison and we are ready to be free and enjoy life the best we can with the limitations of our illnesses. We no longer need the limitations of being overweight. I have only lost 40 pounds since March 28 and I admit I thought I could cheat the system a bit. I am now back on track and have lost 3 lbs in 3 days. Due to having MS and it's summer, I do not exercise like I'm supposed to, but as soon as it cools down, I have promised myself to get back into it. The hardest part of the whole thing for me. Just know that the only person that matters right now is YOU and forget about everyone else. You can do it!

Ok read page two. Glad u succeeded. Yes our weight Loss is slower but still a loss. I'm maintaining since flare six month ago. Been in wheelchair but haven't gained what I'd loss. So I'm happy about that. But also not getting enough Protein.

Update on your progress?

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I also have RA and I have a very high anti-CCP level...meAning I have a very aggressive form of RA. I have my very first appt to see a surgeon tomorrow morning. Those of you with RA, can you share your experiences post-op?

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    • Aunty Mamo

      Iʻm roughly 6 weeks post-op this morning and have begun to feel like a normal human, with a normal human body again. I started introducing solid foods and pill forms of medications/supplements a couple of weeks ago and it's really amazing to eat meals with my family again, despite the fact that my portions are so much smaller than theirs. 
      I live on the island of Oʻahu and spend a lot of time in the water- for exercise, for play,  and for spiritual & mental health. The day I had my month out appointment with my surgeon, I packed all my gear in my truck, anticipating his permission to get back in the ocean. The minute I walked out of that hospital I drove straight to the shore and got in that water. Hallelujah! My appointment was at 10 am. I didn't get home until after 5 pm. 
      I'm down 31 pounds since the day of surgery and 47 since my pre-op diet began, with that typical week long stall occurring at three weeks. I'm really starting to see some changes lately- some of my clothing is too big, some fits again. The most drastic changes I notice however are in my face. I've also noticed my endurance and flexibility increasing. I was really starting to be held up physically, and I'm so grateful that I'm seeing that turn around in such short order. 
      My general disposition lately is hopeful and motivated. The only thing that bugs me on a daily basis still is the way those supplements make my house smell. So stink! But I just bought a smell proof bag online that other people use to put their pot in. My house doesn't stink anymore. 
       
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    • BeanitoDiego

      Oh yeah, something I wanted to rant about, a billing dispute that cropped up 3 months ago.
      Surgery was in August of 2023. A bill shows up for over $7,000 in January. WTF? I asks myself. I know that I jumped through all of the insurance hoops and verified this and triple checked that, as did the surgeon's office. All was set, and I paid all of the known costs before surgery.
      A looong story short, is that an assistant surgeon that was in the process of accepting money from my insurance company touched me while I was under anesthesia. That is what the bill was for. But hey, guess what? Some federal legislation was enacted last year to help patients out when they cannot consent to being touched by someone out of their insurance network. These types of bills fall under something called, "surprise billing," and you don't have to put up with it.
      https://www.cms.gov/nosurprises
      I had to make a lot of phone calls to both the surgeon's office and the insurance company and explain my rights and what the maximum out of pocket costs were that I could be liable for. Also had to remind them that it isn't my place to be taking care of all of this and that I was going to escalate things if they could not play nice with one another.
      Quick ending is that I don't have to pay that $7,000+. Advocate, advocate, advocate for yourself no matter how long it takes and learn more about this law if you are ever hit with a surprise bill.
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    • BeanitoDiego

      Some days I feel like an infiltrator... I'm participating in society as a "thin" person. They have no idea that I haven't always been one of them! 🤣
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    • ChunkCat

      Thank you everyone for your well wishes! I totally forgot I wrote an update here... I'm one week post op today. I gained 15 lbs in water weight overnight because they had to give me tons of fluids to bring my BP up after surgery! I stayed one night in the hospital. Everything has been fine except I seem to have picked up a bug while I was there and I've been running a low grade fever, coughing, and a sore throat. So I've been hydrating well and sleeping a ton. So far the Covid tests are negative.
      I haven't been able to advance my diet past purees. Everything I eat other than tofu makes me choke and feels like trying to swallow rocks. They warned me it would get worse before it gets better, so lets hope this is all normal. I have my follow up on Monday so we'll see. Living on shakes and soup again is not fun. I had enough of them the first time!! LOL 
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    • BeanitoDiego

      Still purging all of the larger clothing. This morning, a shirt that I ADORED wearing ended up on top. Hard to let it go, but it was also hard to let go of those habits that also no longer serve my highest good. Onward and upward!
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