Mystery Illness/What's wrong with me?

Mita · February 2, 2005

Hi Lauri,

Hope you get your answers today from the Dr.

What have they come up with so far? My thoughts and Prayers are with you that you get better from all these health problems. Please keep us informed when you can how you are doing.

(((HUGS)))

Iluvharleys · February 2, 2005

Good Luck Laurie! Please let us know how your appointment goes. We are all pulling for you!

lauri · February 3, 2005

Neuro is sending me for an MRI of my lower back, and a spinal Fluid pressure test(from what I understand it is kind of like an epidural but it will measure the pressure). He has, also, ordered this test that is like an MRI but it it more specific and looks at the vessels or something. I'm not sure when this is going to happen but they are going to call tomorrow with the date of the appointment. These tests won't explain the movement disorder but he is trying to get to the bottom of the migrains and the swelling in my lower back. He said that it will take a couple of weeks to get the blood tests results back that will tell if I have some kind of mutated gene or whatever. It's kind of scary but I am glad that he is doing everything in his power to help me-answers to prayers.

Zoe · February 3, 2005

Oh, Lauri, I hope you get answers soon, and also relief for your pain. I have had several lower-body MRIs, and they aren't bad; you just have to lie still. Some facilities will let you bring in a tape or CD to be played during the procedure. The machine is pretty loud, so it's not enough to block out the noise, but the music will give you something to concentrate on while your body is being scanned. Good luck. We're all glad that your doctor is taking your health seriously.

Iluvharleys · February 3, 2005

Thanks for updating us Laurie! We are thinking about you and wishing the best! Good Luck with your tests!

hagerteresa · February 4, 2005

Lauri,

I sure hope they figure this out so you feel better soon. We miss you!!! Our thoughts and prayers are definitely with you. Sending you lots of hugs, Teresa

julie · February 5, 2005

yes something is not right go to the emergency room if your dr is not able to see you you need to have a full medical work up with a full cardiology work up also

bobbiej · May 30, 2008

I am a 20 year that has something similiar to what you are having. I had my Lap Band Nov 28 07 had my first fill 01/09 had my removed 01/17 and my lap band removed 04/09. I have muscle spasms to the point I look like I am having siezures. I have seen 2 different Neuro Doctors that had me wired to the eeg and still all brain waves were normal. Look up Sandifer Syndrome. I have a Dianostic Dr looking into in my case. You get this Syndrome from Manipulation of the upper stomach. I have not been diagnosed with it yet but he is looking toward it. I am on siezure meds, nerve pills, muscle relaxers. The episodes have went from 20-30 a day to 3 a day. I still cannot work and will soon loose my job and I cannot drive my car. Everyone pray that someone will find out my problem. It all started 3 days after my first fill. Which was horrible by the way. Lauri keep in touch. My email address is bobbiej1962@aol.com (my moms) or bbozema@entergy.com. I hope you get well soon.