Long term post-op hydration difficulties
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I am almost 13 months post-op. I have had difficulties with adequate hydration since my surgery. Just to give you a quick history. At my 1 week po visit I received 2 bags of IV fluids due to dehydration. After that I made it my job to drink (set a timer to remind me to drink) and managed to avoid needing IV hydration again until I was six weeks out. At six weeks I started experiencing pain and nausea when eating or drinking and ended up hospitalized for a week due to dehydration and mild malnutrition. I left the hospital with a PICC line (central IV) and TPN (IV nutrition) and on a clear liquid diet. When I left the hospital I was lucky to get 20 oz of Fluid in each day. I worked really hard and after 4 weeks I got up to 50 oz daily at which point they advanced my diet to full liquids. By week seven on TPN I finally got up to 64 oz on most days and the TPN was discontinued and the PICC line removed. I remained on the full liquid diet for 3 more weeks and then was advanced to purees for 2 weeks, soft foods for 2 weeks, and finally regular foods. At each progression my fluid intake suffered but I was able to work my way back up to 64 oz.
One of my biggest problems with hydration is that not only did I wake up from surgery with no hunger but I also do not seem to experience thirst. The closest thing I experience to thirst is a dry mouth when I have gone too long without drinking especially when talking. I no longer have any physical problems with drinking except when I become ill. I have noticed that the more I drink the more I want to drink and the opposite the less I drink the less I want to drink. I can go hours without drinking anything if I get distracted by what I am doing. I usually have something to drink within arms reach at all times except when in bed. I currently make sure I get at least 64 oz a day even if it means drinking large amounts of fluids between dinner and bedtime. I would really like to spread my hydration out thru the day and increase the amount also.
Has anyone else lost the sensation of thirst? If so what have you done to insure adequate hydration? Even if you haven't lost the sensation of thirst do you have any suggestions.