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pseudotumor cerebri

Hey has anyone had pseudotumor cerebri? And along with it had the lumbar/peritoneal shunt placement? Did you have any trouble getting the sleeve after that? Did they do the surgery anyhow? I have a LP shunt for pseudotumor cerebri and asked the doctor if there would be any problems about 2 days ago and he hasn't responded. . . i find that weird. . . maybe someone can answer this question for me. . .I sorta concerned now

Edited by thinoneday

  • Replies 14
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Hi thinoneday, I don't know the answer to your question but probably the doctor has just forgotten. A quick google shows that weight loss will most probably help the condition so getting the sleeve could be a God-send for you. I wish you all the best and good luck.

Jane

Woman, your big words had me googling, and checking out WebMD because I had no clue about any of it. I agree with Jane that the weightloss will help with the symptoms. I would definitely bring it up to the surgeon, and then ask if you should watch for anything specific.

  • 2 weeks later...

Hey guys! I got my answer back from Dr. and he says after talking to a neurosurgeon, I'm still a go. . . he'll still do the surgery regardless of this shunt being in place. . . I was so happy to hear this. . . my appt to visit with him, the nutritionist and the shrink is on the 20th. . . can't wait! Chat laterz!

Woman, your big words had me googling, and checking out WebMD because I had no clue about any of it. I agree with Jane that the weightloss will help with the symptoms. I would definitely bring it up to the surgeon, and then ask if you should watch for anything specific.

Tiffy, you are so funny! Pseudotumor Cerebri isn't a big word! :mad: It's a pain in the derriere what it is ! I'm glad there is another person around who "checks it out" when you don't know what something is. . . I did that with the kids when they were growing up. . . they'd ask me "mom what does ??? mean" I'd tell them to go get Webster and find it, then read it to me and tell me, cause I didn't know. . . pretty soon it when they'd ask "Mom what does ???? mean", they'd answer themselves, "go get Webster, because I don't know". . . hehehehe:lol0:

YAY for good news on your surgery ! ! ! I know that's a huge relief for you.

YAY for good news on your surgery ! ! ! I know that's a huge relief for you.

Yes, you have no idea what a big relief that was to hear! I even did the victory dance in my office! :w00t:

One step closer MtnLover ... 20th will be here before you know it!

Thanks, but now watch I'll pass the doctor visit, pass the nutritionist visit but fail the shrink cause he'll/she'll think I'm nuttier then they are! :w00t: hehehe. . . . shrinks have a way of making people incompetant even if they are normal. . . (but then what is normal?):glare:

Thanks, but now watch I'll pass the doctor visit, pass the nutritionist visit but fail the shrink cause he'll/she'll think I'm nuttier then they are! :scared0: hehehe. . . . shrinks have a way of making people incompetant even if they are normal. . . (but then what is normal?):glare:

DON'T EVEN PUT THAT OUT THERE -- no negatives allowed ... and the new normal is abnormal anyway ... LOL

  • 3 years later...

How did your surgery go? Did it "cure" your pseudotumor?

I have PTC. I will be having surgery on the 10th. My neuro ophthalmologist encouraged/recommended the surgery. So hopefully it will help!

I have PTC. I will be having surgery on the 10th. My neuro ophthalmologist encouraged/recommended the surgery. So hopefully it will help!

That's great! I'm having to appeal for my insurance but was wanting to find others that have had the surgery and PTC. To see if any success with weight loss :)

I had PTC. My symptoms went away with a spinal tap. I never thought about it being an issue for the sleeve. I think because I didn't have extreme issues with it it won't be a problem.

I had PTC. My symptoms went away with a spinal tap. I never thought about it being an issue for the sleeve. I think because I didn't have extreme issues with it it won't be a problem.

There's actually studies out now saying having the sleeve helps PTC bc of getting the weight off the patient. :)

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