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My sister had a Down Syndrome baby

Nolan is his name and he is just the sweetest little thing.

It came as a big shock to his mom and dad and everyone else. He was born Feb

15th and is still in the NICU (level 3) waiting for surgery for his heart. A heart murmor was detected and a hole in his heart has not closed up so an operation is most likely.

Mom is over the Down Syndrome for now but the babys heart is still a major problem according to his Doctors. Time will tell they keep saying but he needs to gain weight before he can have the operation. His feeding with the bottle was good but now he fights it-so very sad I guess DS babies have sucking problems.

If anyone has any good advice I welcome your reply.

Peace!

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Awww! Couldn't ya just eat 'im UP!!!! So sweet and beautiful! He's swimming in that little outfit...but you just watch, he'll be popping out the bottom of it before you know it! He sure is a cutie-pie!

  • 1 year later...

I just saw this thread- And I will say your nephew is the most beautiful boy (next to my Colin of Course) I have seen in a long time!

If your sister needs any help please email me. I have three children with DS )(soon to be four) and have spent oodles of time coaxing them to eat and lots of other trick. I also belong to a forum where there are lots of moms, dads and other to ask questions of ant they have all been there

Jane

What a beautiful baby. I have heard many times from parents of DS children that they are a blessings. So loving and joyful. I hope it is that for your sister too.

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