I'm 22 months post op...and my hair started falling out again.

I've been sick since February with what they finally determined is sarcoidosis, which means I have to be on steroids for probably the next 6-12 months. Luckily, it's not making me gain weight, in fact it's making me lose more. Prednisone can cause hair loss, and I know I'm not eating enough, but it's really hard for me to do so. I had to stop taking calcium during my treatment. There's just so many factors causing this and I don't know what to do other than just ride it out and get a new collection of hats and bandanas. I don't really want to wear a wig, I ride a motorcycle and I can't exactly stuff a wig under a helmet, and all I can imagine is how hot and itchy it's going to be.

After the first time it happened, at the normal time most people experience it, 3-4 months after my surgery it came right back a couple months later, thicker and healthier than ever...but I'm not healthy right now, and my hair is letting me know. The hair loss might actually be WORSE this time.

I don't know that I'm looking for advice, but I'm just screaming and sobbing into the void right now. I thought I was done with this but here we are again.

Oh no… this must be so hard for you. I’m at the “typical” point right now (4 months out) dealing with shedding over the last two weeks. My hair fills a brush twice a day!! And I still lose clumps in the shower. It has been heart breaking even though I knew it was likely, actually dealing with it emotionally and physically has been so hard. So when you say this is your third time going through this in the last two years, I felt like I just wanted to give you a hug.

it’s true there isn’t a whole lot you can do except commiserate, but I hope you know it’s safe to do so here and we understand. Hang in there!