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Will I ever NOT feel sick? Will I ever NOT be in pain?
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I had RNY on 11/29/16. Instead of just bypassing my stomach the doctor REMOVED the bypassed portion because I had (have) gastroparisis. So, I had to be cut from between my breasts to my bellybutton. I went home 3 days post surgery but got pneumonia and was back in the hospital for another 3 days (days 7 -10).
Before the pneumonia I was getting in most of my Protein and I was able to drink the Protein drinks and other liquids and take my Vitamins...after the pneumonia, I couldn't even drink water! I can still barely drink or eat. I am in a constant state of dehydration.
At week 3 I had no other choice but to resort to soft/solid foods because the liquids and pureed foods caused instant diarrhea and vomiting. I was literally starving to death. I was so weak I couldn't hold my head up...i went to see my surgeon and he was no help. He had no suggestions and didn't even bother to respond to the fact that I had started eating solids way too early.
So, now I eat MAYBE a tablespoon on food every 2-4 hours and I sip on Water as I can...but am lucky to get in 16-24 ounces a day. Everything makes me so sick!!! I probably don't get in more than 400 calories a day. I take zofran every 4 hours and still get severe dry heaves all the time for no apparent reason.
On top of all this, I still can't lay down in my own bed!!! I have to sleep at my parent's house in my dad's lift chair. I can't lay flat on my back because I can't breathe (sleep apnea). I can't lay on my side because it hurts in my stomach too bad and it hurts in my chest. It feels like my heart and lungs are being squeezed in a vice!
When I stand up it feels like all my organs drop and slide around and pull. It hurts and I have to move so slowly. It feels so gross, I can FEEL that there is this big space where someth8ng is missing or at least just not right at all.
I am completely miserable!!! This has been way worse than my open heart surgery and I didn't think that could be possible! I wish I wouldn't have done this and that is so sad because I fought to have this surgery for 13 years!!! I really believed it would be the magic answer to all my MANY other health problems. I thought everything would get better if I had this surgery but instead everything is much worse...PLEASE tell me that this will get better soon...please tell me I will feel "normal"...i'm not asking when I will be able to eat "normal", I know what/how I need to eat for the rest of my life and I am fine with it...but when will I ever be able to eat/drink and not feel miserably sick from the very first bite or sip? When will I be able to lay down and sleep in my own bed? When will I be able to walk more than just a few feet without having to sit down because I am just too weak???
I am down at least 40 pounds and that's great...but I would rather not be so sick and miserable...
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