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Worst mistake of my life?

I have lots of questions and concerns. I was so excited to have this surgery. I am very dedicated and follow rules and guidelines to the t. My surgeon did a great job. However, I was constantly throwing up the first week after surgery....they kept me a day longer and put me on Reglan. I was miserable. Barely able to keep any liquids in me. No where near my 60 ounces a day. The second week I was graced by the most painful diarrhea I have ever experienced. Not yet allowed to go to protein shakes yet....still working on liquids. The third week left me absolutely beyond fatigued and not able to use the bathroom for 9 days straight. They put me on Linzess to help with that. I go to my follow up apts and my stage two and three classes with the rest of my group. They are all doing great and telling of higher energy and moving on to solid foods. I am barely into the puréed food stage at almost two months out. I have never felt this sick and tired in my life. The weight loss is unimpressive. ( maybe because I barely get 500 calories a day? ) I try and try....it's so frustrating. The bad thing is , I don't get to see my surgeon. She is done with me. I am left in the hands of the PA and nurses. Who just keep telling me to hang in there....and on top of that, .I have experienced this horrible pain event three times since surgery. It goes like this : out of nowhere I get the most painful " punching" pain in my lower chest upper stomach. Once had it it while driving....it was so painful I almost crashed....had to pull over my eyes were watering...doubled over. I got myself home and plopped on the couch . My husband and I were discussing who could watch our kid while he takes me to the emergency room....by the time we made plans about a half hour later, it was starting to subside. This happened two more times. I know about "dumping syndrome" but it doesn't seem to be this as it never happens after eating....the first time I had taught for three hours only lightly sipping water, second in morning before shake or water and the third at night about a half hour after I finished my protein shake. It hurts so bad. Each time , it seems to slowly get better at the half hour mark. I don't know how many more months I can go feeling this much fatigue, malaise and pain. I wish my doctor would see me ( it's an hour and half away.. ). But still I would gladly make the trek! Any ideas what could be wrong? Anyone else feel this way? Thanks.

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Hi there,

I'm really sorry you're having a hard time. I Would say the punching pain could be because your pouch might be a bit inflamed from the vomiting. I would demand to see a surgeon. A barium swallow may be in your future (I had one early out too because of some issues you mention), they might look at the structure of the pouch, the stoma, ect. I doubt you'd have a stricture at this point- youre too early out. That usually happens around month three if it does happen, but it is possible you could be starting with one... I understand the frustration with food stages. I was moved back to the puree stage THREE times before I could move onto the soft food phase; it sucked. My pouch kept getting severely irritated and they took me off all Vitamins for a week.

Did they prescribe prilosec or some other antacid? That nay help a lot.

Sounds like something is seriously wrong with your new stomach

Edited by Autumn Riley Arnold

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