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Hey everyone...we will be heading to the hospital on friday morning. Hopefully we will only be there one day for them to get his body cleaned out. Keep your prayers going this works out so that we can move ahead with getting his surgery done and over with.

Thanks for letting me come here and talk about it. It's so helpfull to be able to talk to friends that way I can stay strong for Curtis. I don't cry in front of him but thankfully I have an understanding husband that will let me break down with him. It's just so tough but I know I can do it because I was giving and good man above knew I could handle this so I am going to do my job.

I love this place....Thanks again for your continued support and prayers it really does mean the world to me.

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Kim, I am totally free on Friday, so if you need anything please let me know. Also if you want to call me or one of us so we can keep everyone posted that will be great. Sorry I haven't called you this week.

Do you want to do lunch tomorrow I'll be downtown?

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Your post above gave me goose bumps, with so much going on with Curtis, you still have the strength to know you've got a good man, how awesome is that!!!

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Hi Kim,

I just read this thread and it made me think about my little nephew Timmy. He was born without an esophogus (sp?) and his mom had to pump and feed him breast milk thru a tube to his stomach and then other liquid foods for the frist 6 months of his life. They had to take out a part of his bowel and "build" an espophagus for him. I think he had about 5 major operations before he was 4 years old. He always had to be very careful to eat slowly and be in an upright position since the built esophagus would never have the nerves and muscles to move food down like a natural one would.

I remember how heartbreaking it was for my sister-in-law when Tim was going thru all those operations and how much she worried the pain of it would scar him for life. If there are scars, he seems to have turned them into callouses of strength as he is now a STRAPPING 6'1" gorgeous, intelligent young man with straight A's filling out college applications. He's really a very "thinking" and sensitive guy. I really can't imagine how he could be any better.

This is all so hard and awful for you to go thru, but I'm sure Curtis will also grow into a beautiful, strong young man and all the hardship you're enduring now will be a memory. And the heartfelt memory of how much his mother loved and cared for him during this time will always be a bright spot held in your son's soul.

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Hello everyone...well we made it home tonight. YEAH!!! It was a rough start but finally he started flowing (out both ends at time) and we are good. The doctor has giving instructions to follow until his surgey which will be with in the next 3 weeks. Well that is what he said tonight. I just love our surgeon he is great with Curtis and really seems to care about us. He was so great...my sister and my baby neice went with us this morning, my sister is an RN and thank goodness she held him down while the nurses put the IV in and the NG tube in. I just wanted to cry. Curtis didn't cry until he saw himself in a mirror...so I put a towel over it and he couldn't see himself. He just layed around and watched PBS and some movies thank goodness for portable DVD players.

So one obsticale (sp) overcome and one huge one left. I really can't express my graitude to everyone here and your continued support and prayers as they all being answered.

I will update you again when I find out the surgery date...Let's hope it's painless and quick.

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Kim,

lots of big bear ((hugs)) to you and Curtis.

My 5 yr old has problems voiding - since birth!

All I can say is that is a very humbling situation (for both child and parent).

You are being prayed for...

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I'm glad to hear curtis is home and feeling much his normal self. Will be thinking of you and curtis and hope for a sucessful surgery in the upcoming weeks.

Melissa

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Glad to hear everything is flowing again. Please keep us updated on how he is doing and when his surgery is coming. We are thinking about you Curtis.

Angie

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Bless you both! Thanks for keeping us posted. Our prayers continue to go with you!

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I called the Dr today and they are going to call me this week sometime to set up the surgery. I am so ready to get it over with. I am just a bag of nerves right now. UGH!!!! I know it will all be ok and it will be over soon...well this one part of it anyway.

Thanks for letting me come here and talk...it really helps and it's so nice knowing I have so much support and prayer coming our way.

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Hang in there Kim; it will be over soon, and Curtis will be good as new!

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Venting is good! Do it any time! Were here for you!

He'll be bouncing back in no time and axiously looking for Santa and feeling great! And you will too!

Prayers are with you guys.

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I hope you get your date soon so you know when it will happen. Keep hanging in there. We are here for ya! Don't ever forget that.

Angie

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      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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