My experience with a leak

[melmssc 36]

I was one of the unlucky few that developed a leak. They are life threatening! I want to tell my story to be a resource for anyone who has this type of complication. My surgery date was 5/1/18. Non- smoker, good health, surgery went smooth. 3-4 weeks post surgery, something was definitely off. I had rigor, trouble regulating my body temp, foul smelling burps. I called my surgeon's office daily that Memorial week. I took myself to the ER thinking I was dehydrated. They ran a CBC and my WBC count was 30,000. They sent me home to follow up with my surgeon. Next day, took results in and according to the nurse, my surgeon wasn't concerned. Next day 6/2, had trouble urinating and pain under my diaphragm. So at 9pm, my husband took me back to the ER. They thought it was kidney stones, but the CT scan revealed a leak. They transferred me via ambulance to a larger hospital. My surgeon was out of town (I refused to be seen by him again- so it didn't matter), and I got blessed with the on-call surgeon. I was in the hospital 9 days. He did exploratory surgery 6/7due to the location of the leak. Mine high up like 85-90% are. Thank goodness, I did not have an abscess like the CT showed, but I did have inflammation that he cleared out. All of the samples they took were negative. He also installed a drain that remained in line 7/10.They did an upper GI on 6/8 that showed the leak was still there. Up until this point, I was NPO and on round the clock antibiotics, Saline bag, and potassium bag via IV. On 6/8 picc line was installed and began TPN. They sent me home on 6/12 with TPN, antibiotics and Home health. On 6/20 back into the hospital with surgery to place a stent. Discharged next day. I could have Clear Liquids, but had to remain on TPN for 1 more week until X-ray showed it had not migrated. 6/27 X-ray showed it hadn't so off TPN and allowed food. Living with the stent was tolerable. Your esophagus is open, so acid reflux is a big issue. I never took a pain pill and found heating pad helped with the upper back pain. I could drive, do small outings with my kids, etc... I even went on a girls trip to see Smashing Pumpkins. This made it easier on my kids mental health, because mom didn't look sick and could do little things with them. I took everything really easy. On 7/19- stent came out and leak healed!!! I'm now on liquids for 1 week and then can advance my diet slowly as tolerated. My new surgeon was with me every step of the way and family and friends were very supportive. They even took my kids out of town on fun adventures. My faith in God strengthened. Luckily my Insurance covers bariatric surgery and complications. I would easily be out $120,000 or more for the hospital stays, home health, 3 additional surgeries, TPN - $1000 a bag, etc...Thank goodness I'm a teacher- so I didn't miss any work. I'm down 50 pounds and regaining my energy daily. If you are diagnosed with a leak, please reach out to me and remain positive. This is a very isolating time, but they do heal. Be assertive, listen to your body, and switch surgeons if necessary. I messaged a recent leak survivor on here and she was a great resource. Everyone's story and experience is different, but knowledge is power. I would love to be a support for you.

Edited July 20, 2018 by melmssc

[TropicalBeachDoll 70]

I’m glad you are doing better. Thank you for posting your experience with the VSG. I’m so thankful you are doing a lot better and healed. You provided a lot of insight and excellent advice in this post. I really appreciate you being honest and talking about this experience in the best positive way . God is amazing and I thank you ever so much for sharing

[lastchance_2018 11]

Sounds scary! So glad you're on the mend!! Thanks for posting the warning signs, I'm 17 days post op and am living in fear every day. This has been much harder than I had imagined.

[GreenTealael 24,852]

I was one of the unlucky few that developed a leak. They are life threatening! I want to tell my story to be a resource for anyone who has this type of complication. My surgery date was 5/1/18. Non- smoker, good health, surgery went smooth. 3-4 weeks post surgery, something was definitely off. I had rigor, trouble regulating my body temp, foul smelling burps. I called my surgeon's office daily that Memorial week. I took myself to the ER thinking I was dehydrated. They ran a CBC and my WBC count was 30,000. They sent me home to follow up with my surgeon. Next day, took results in and according to the nurse, my surgeon wasn't concerned. Next day 6/2, had trouble urinating and pain under my diaphragm. So at 9pm, my husband took me back to the ER. They thought it was kidney stones, but the CT scan revealed a leak. They transferred me via ambulance to a larger hospital. My surgeon was out of town (I refused to be seen by him again- so it didn't matter), and I got blessed with the on-call surgeon. I was in the hospital 9 days. He did exploratory surgery 6/7due to the location of the leak. Mine high up like 85-90% are. Thank goodness, I did not have an abscess like the CT showed, but I did have inflammation that he cleared out. All of the samples they took were negative. He also installed a drain that remained in line 7/10.They did an upper GI on 6/8 that showed the leak was still there. Up until this point, I was NPO and on round the clock antibiotics, Saline bag, and potassium bag via IV. On 6/8 picc line was installed and began TPN. They sent me home on 6/12 with TPN, antibiotics and Home health. On 6/20 back into the hospital with surgery to place a stent. Discharged next day. I could have Clear Liquids, but had to remain on TPN for 1 more week until X-ray showed it had not migrated. 6/27 X-ray showed it hadn't so off TPN and allowed food. Living with the stent was tolerable. Your esophagus is open, so acid reflux is a big issue. I never took a pain pill and found heating pad helped with the upper back pain. I could drive, do small outings with my kids, etc... I even went on a girls trip to see Smashing Pumpkins. This made it easier on my kids mental health, because mom didn't look sick and could do little things with them. I took everything really easy. On 7/19- stent came out and leak healed!!! I'm now on liquids for 1 week and then can advance my diet slowly as tolerated. My new surgeon was with me every step of the way and family and friends were very supportive. They even took my kids out of town on fun adventures. My faith in God strengthened. Luckily my Insurance covers bariatric surgery and complications. I would easily be out $120,000 or more for the hospital stays, home health, 3 additional surgeries, TPN - $1000 a bag, etc...Thank goodness I'm a teacher- so I didn't miss any work. I'm down 50 pounds and regaining my energy daily. If you are diagnosed with a leak, please reach out to me and remain positive. This is a very isolating time, but they do heal. Be assertive, listen to your body, and switch surgeons if necessary. I messaged a recent leak survivor on here and she was a great resource. Everyone's story and experience is different, but knowledge is power. I would love to be a support for you.

So happy you are recovering

VSG2017 HW 249 SW 238 CW 167

[mandmom 31]

8 hours ago, melmssc said:

I was one of the unlucky few that developed a leak. They are life threatening! I want to tell my story to be a resource for anyone who has this type of complication. My surgery date was 5/1/18. Non- smoker, good health, surgery went smooth. 3-4 weeks post surgery, something was definitely off. I had rigor, trouble regulating my body temp, foul smelling burps. I called my surgeon's office daily that Memorial week. I took myself to the ER thinking I was dehydrated. They ran a CBC and my WBC count was 30,000. They sent me home to follow up with my surgeon. Next day, took results in and according to the nurse, my surgeon wasn't concerned. Next day 6/2, had trouble urinating and pain under my diaphragm. So at 9pm, my husband took me back to the ER. They thought it was kidney stones, but the CT scan revealed a leak. They transferred me via ambulance to a larger hospital. My surgeon was out of town (I refused to be seen by him again- so it didn't matter), and I got blessed with the on-call surgeon. I was in the hospital 9 days. He did exploratory surgery 6/7due to the location of the leak. Mine high up like 85-90% are. Thank goodness, I did not have an abscess like the CT showed, but I did have inflammation that he cleared out. All of the samples they took were negative. He also installed a drain that remained in line 7/10.They did an upper GI on 6/8 that showed the leak was still there. Up until this point, I was NPO and on round the clock antibiotics, Saline bag, and potassium bag via IV. On 6/8 picc line was installed and began TPN. They sent me home on 6/12 with TPN, antibiotics and Home health. On 6/20 back into the hospital with surgery to place a stent. Discharged next day. I could have Clear Liquids, but had to remain on TPN for 1 more week until X-ray showed it had not migrated. 6/27 X-ray showed it hadn't so off TPN and allowed food. Living with the stent was tolerable. Your esophagus is open, so acid reflux is a big issue. I never took a pain pill and found heating pad helped with the upper back pain. I could drive, do small outings with my kids, etc... I even went on a girls trip to see Smashing Pumpkins. This made it easier on my kids mental health, because mom didn't look sick and could do little things with them. I took everything really easy. On 7/19- stent came out and leak healed!!! I'm now on liquids for 1 week and then can advance my diet slowly as tolerated. My new surgeon was with me every step of the way and family and friends were very supportive. They even took my kids out of town on fun adventures. My faith in God strengthened. Luckily my Insurance covers bariatric surgery and complications. I would easily be out $120,000 or more for the hospital stays, home health, 3 additional surgeries, TPN - $1000 a bag, etc...Thank goodness I'm a teacher- so I didn't miss any work. I'm down 50 pounds and regaining my energy daily. If you are diagnosed with a leak, please reach out to me and remain positive. This is a very isolating time, but they do heal. Be assertive, listen to your body, and switch surgeons if necessary. I messaged a recent leak survivor on here and she was a great resource. Everyone's story and experience is different, but knowledge is power. I would love to be a support for you.

So glad you DID listen to your body! Equally glad you are doing well.

[Lisa K. 62]

That is a terrifying story! I'm 15 days out and really hope to avoid this complication. Thanks for helping us to know what to watch for and I'm glad you are doing so much better!!

[Chunkysoup 75]

So scary! I’m 4 days post op. My biggest fear of getting this surgery was not being able to drink adequate amounts of Fluid, but I am doing great with fluids. My second fear is developing a leak. So far so good but I know I have awhile before I’m in the clear. Do they have any idea what caused your leak? Or was just kind of a random thing that happened?

[melmssc 36]

They don't know, but it was in the most common spot. It was also very small. They couldn't find it during surgery (twice). They also had to roll me side to side before any liquid came out to show area where leak was occurring.

[Chunkysoup 75]

Oh my goodness yikes! Well I’m certainly glad to hear you are on the mend. Thank you for sharing your story

[froufrou 678]

I was one of the unlucky ones too. 3 months in the hospital, 6 surgeries, no food or Water during that time. Just awful. I hope you have recovered fully now? How are you doing?

[melmssc 36]

I’m doing really good now. I feel great. I have my energy back and am within 15 pounds of goal weight. I’m dealing with Hair loss, but that won’t last forever. I read your story many times while I searched for leak and stent stories. We each had our stent for a month. This is a traumatic experience and someone who hasn’t gone through it, can’t really empathize. Thank you so much for sharing your story!!!! It really helped me. How are you doing?

[regina1 12]

Just read your post. I was wondering what kind of stent you had? I had an esophageal stent for 6 weeks after my esophagus was torn during surgery. It was awful to have that stent. Your story sounds very familiar someone that had a somewhat similar experience. I am 1 1/2 years out doing great and i do not regret the surgery but it does still haunt me at times what all i went through. I also think that i am more committed to keeping the weight off since i almost died for it.

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