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Hi,

I'm just looking for a little support and advice please.

Stats: Sleeve performed on 11/15/16 - 4 days in hospital, 1 ER vist first month dehydrated, discomfort and pressure since, 3 months prescribed PPI and Carafate, 4 months ER visit with chest pain - stomach and intestinal discomfort - Reflux. I was told to go back onto phase 3 diet (pureed). With the PPI the pressure is slightly better. Complete food aversion during the first month - minimally improving. Swallowing is OK but different since the surgery.

Regurgitation with everything even liquids - this is improved with the PPI but gets worse leading up to and during menses.

Sarcoid: Surgeon was thinking that my Sarcoid may be partially to blame (pressure on the esophagus) however my Pulmonologist disagrees and will not treat.

Menses: During my menses (diagnosis of adenomyosis and endometriosis) I have complete GI involvement. I can not eat food and the pressure is intense from my shoulders to my hips. My Gynecologist suggested a hysterectomy or medicinal menopause. I do not feel I could go through another surgery right now. I do have the OK from my bariatric surgeon but I feel so weak. I was also not keen on the medication regimen that I would need to take if I were to go the other route (medication induced menopause). My doctor suggested I return when I was ready to do one of those two options. She will not use medications for the pain (narcotics don't work for this pain and discomfort, anti-inflammatories do) because "she's a gynecologist not a bariatric surgeon so I don't know what you can take". I was on an NSAID before surgery.

Hunger: I go from starving to sick in a blink of an eye. It often feels like I will never be satiated again. Then I feel so nervous about what I eat and if it's going to cause pain and regurgitation that there is really no reason to eat anything.

Thank you for any suggestions or insights you can offer!!

Elizabeth L

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I agree with your physician to stay away from narcotics and it is tough not to be able to take NSAIDs anymore. Has your doctor suggested Tylenol? My husband also has sarcoidosis, is your Pulmonologist a sarcoidosis specialist? My husband goes to Mount Sinai in NYC. We learned early on that someone who treats many cases of sarcoidosis gets it!! Sarcoidosis could definitely be interfering. I don't know anything about the gyno issues but if you trust your physician, listen to their advice. I really hope everything works out and you start to feel better.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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