Hi,

I'm just looking for a little support and advice please.

Stats: Sleeve performed on 11/15/16 - 4 days in hospital, 1 ER vist first month dehydrated, discomfort and pressure since, 3 months prescribed PPI and Carafate, 4 months ER visit with chest pain - stomach and intestinal discomfort - Reflux. I was told to go back onto phase 3 diet (pureed). With the PPI the pressure is slightly better. Complete food aversion during the first month - minimally improving. Swallowing is OK but different since the surgery.

Regurgitation with everything even liquids - this is improved with the PPI but gets worse leading up to and during menses.

Sarcoid: Surgeon was thinking that my Sarcoid may be partially to blame (pressure on the esophagus) however my Pulmonologist disagrees and will not treat.

Menses: During my menses (diagnosis of adenomyosis and endometriosis) I have complete GI involvement. I can not eat food and the pressure is intense from my shoulders to my hips. My Gynecologist suggested a hysterectomy or medicinal menopause. I do not feel I could go through another surgery right now. I do have the OK from my bariatric surgeon but I feel so weak. I was also not keen on the medication regimen that I would need to take if I were to go the other route (medication induced menopause). My doctor suggested I return when I was ready to do one of those two options. She will not use medications for the pain (narcotics don't work for this pain and discomfort, anti-inflammatories do) because "she's a gynecologist not a bariatric surgeon so I don't know what you can take". I was on an NSAID before surgery.

Hunger: I go from starving to sick in a blink of an eye. It often feels like I will never be satiated again. Then I feel so nervous about what I eat and if it's going to cause pain and regurgitation that there is really no reason to eat anything.

Thank you for any suggestions or insights you can offer!!

Elizabeth L

I agree with your physician to stay away from narcotics and it is tough not to be able to take NSAIDs anymore. Has your doctor suggested Tylenol? My husband also has sarcoidosis, is your Pulmonologist a sarcoidosis specialist? My husband goes to Mount Sinai in NYC. We learned early on that someone who treats many cases of sarcoidosis gets it!! Sarcoidosis could definitely be interfering. I don't know anything about the gyno issues but if you trust your physician, listen to their advice. I really hope everything works out and you start to feel better.