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Scared I'm dying!! 9 yrs out developed Acute Pancreatitis
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I had Roux en y 9/10/07 went well for about 4/5 months then developed twisted-kinked intestine need additional surgery to place stitch to hold in place. All seemed well lost weight health improved. Developed severe anemia in 2010 need Iron infusion but that resolved it. Plateaued around 135 lbs by 2011. Started loosing for no reason mid 2012 dropped to 125. Doc did numerous test but everything came back normal no worries. Have been dropping steadily for past 2 years now 109.4 lowest was 104.3 in Dec 2016. Still docs say no reason to worry . On Oct 26 got hit with severe abdominal pain felt like when I needed my gallbladder removed back in 1997 but a million times more painful. Needed to call 911 i couldn't move. Blood-work, ultrasound, CT-scan, MRI all said popped ovarian cyst and acute pancreatitis. I had developed stones in my bile duct and it had dilated to 17 cm. 3 days no food hooked to an IV with only ice chips then discharged to follow up with Gastroenterologist. Dec 2, 2016 I had to have laparoscopic ERCP due to bypass. I was told the ERCP was a 99% chance that I'd never experience it again. Procedure went well recovery was painful as hell for weeks after though.They told me laproscopic so I thought easy peasy no big deal. They didn't tell me they needed to make 3 small incisions but one large 2.5-3 inch for the scope to be inserted that causes killer pain after. Now March 16, 2017 pancreatitis symptoms back mid day out of blue hadn't even eaten anything that day. Kept me in bed I refused to go to hospital cause they don't do anything I couldn't do at home. No food stay hydrated till symptoms pass. 2 days later I'm tender but pain gone going to start a liquid only diet very slowly see how it goes.
Scared my pancreas is wrecked I'm suffering from malnutrition caused by malabsorption. Pancreas has a lot to do with absorption it secretes enzymes needed to absorb nutrients. That's why I'm still losing weight despite eating large amounts and taking Protein and other supplements. Afraid I'm going to die I just turned 48 I have 7 children and an amazing husband I don't want to loose. I feel like docs aren't taking it seriously even my weight loss. I have classic signs of malnutrition that they are all ignoring, primary care doc, weight loss surgery follow up and gastro. IDK what to do?
Anyone else have pancreas issues? Please any help or advise is welcome. Thank you