VSG & autoimmune diseases?

[enngeecee 1]

I have MS! My initial presentation was very unusual in that I went deaf, so it took some time to diagnose (2012). As a result, I suffer from vertigo and nausea from my active lesion.

I decided to go on medication last year after I started to get more physical symptoms, though thankfully my clinical symptoms have remained stable. (MS is apparently weird like that according to my neurologists).

Exercise is difficult for me due to the fact that a) I fatigue more quickly than I used to b)I can have significant problems with my balance c) I am carrying extra weight gained through a high risk pregnancy that saw me hospitalised, fed an extremely high calorie diet and hooked up to drips in order TO gain weight (I was very ill and nearly lost my baby) and d) a combination of steroid medications I have had to take for a bunch of symptoms to do with MS (not my interferons) and for depression and anxiety

So my eating habits are weird. I find it difficult to eat most of the time because I feel nauseated. This means I need to take lots of Vitamins to avoid malnutrition. I would generally avoid food if possible, but have a lovely husband who makes sure I eat.

However, when I am NOT feeling nauseated, I will eat whatever I like! It's ridiculous. I don't think that in my life I've ever had a sweet tooth (I'm a savoury fiend), yet I will crave something like chocolate and must eat it. And as for the food I DO like; shut the gate. I'm like the Netflix and no chill of food if I feel well!

Obviously, whenever this happens, I get extremely sick. But it's ridiculous. My body has gone into some kind of starvation mode and just wants to feed itself.

Anyway, after lots of tests, and long consultations with all of my specialists I'm going in for a sleeve. The hope is that with the pre-op diet, the new way of eating, the weight loss relieving some of the pressure on my body that my 'metabolism' for want of a better word, will be able to reset. That I will be able to stick to better patterns of eating - fueling my body correctly and helping it to combat this disorder.

Im feeling hopeful. I see this as an opportunity to reset and give myself a better chance to make my body stronger and more healthy despite whatever little brain farts it has along the way to make it not as reliable into the future as it should be.

[newdaydawning 19]

Is anyone here on Humira? Did your Dr give any instructions on having VSG and pre op/post op? My Humira nurse seemed really shocked that neither my Dr or surgeon said anything to me about it. When you started it again did you have to do the loading process like in the beginning?

[shrinkingkimber 200]

3 minutes ago, newdaydawning said:

Is anyone here on Humira? Did your Dr give any instructions on having VSG and pre op/post op? My Humira nurse seemed really shocked that neither my Dr or surgeon said anything to me about it. When you started it again did you have to do the loading process like in the beginning?

I am not on Humira, but I am on Remicade. I had to stop my Remicade infusions 8 weeks before surgery and my surgeon instructed me to stay off of it as long as I could after so that I could heal properly and not increase my risk of infection. My surgery was in June and I was able to go until September before my ulcerative colitis started flaring and I had to go back on remicade.

[shrinkingkimber 200]

8 minutes ago, newdaydawning said:

Is anyone here on Humira? Did your Dr give any instructions on having VSG and pre op/post op? My Humira nurse seemed really shocked that neither my Dr or surgeon said anything to me about it. When you started it again did you have to do the loading process like in the beginning?

Oh and I did not have to do the loading doses again with remicade when I restarted but not sure how different it would be with Humira.

Edited July 5, 2017 by shrinkingkimber

[KateBruin 344]

I take my Humira 8 days before surgery then delay a week and take it two weeks after surgery to give my incisions time to heal. My rheumo wasn't concerned at all.