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Leak failed to heal. Now having surgery



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So I have had a leak for 6 months. They put in a stent and a drain and a swallow study yesterday showed the leak was WORSE!!! My doctor has decided to do a complete gastrectomy. I am terrified but it seems like I have no other option if I want a normal life back. I doubt anyone on here has had this happen but anyone who has, support would be great.

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I pray you have a safe recovery keep us posted

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What were your symptoms of a leak? I'm so sorry you are going through this its a scary thing I'm most afraid of this but have been feeling some discomfort when eating and drinking. Do you know what caused it?

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They are going to take out your whole stomach? What are they going to replace it? Intestine? Will you feel full with the replacement? Will you need a feeding tube.

You poor thing

Sorry I'm a nosy nanny.

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Yes whole stomach. They pull the small intestine up and stitch it to the esophagus. I talked to people who have had it. My understanding is that it works much like a by pass doesd

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My leak just happened. Nothing caused it. The symptoms were pain in my shoulder and stomach. I also went septic so I had a fever too

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I won't need a feeding tube. I will be able to eat. Just small amounts and I have to learn what makes me sick and what doesn't.

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I won't need a feeding tube. I will be able to eat. Just small amounts and I have to learn what makes me sick and what doesn't.

How are you doing?

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I am recovering slowly. The attachment point had a small leak so I couldn't eat for 3 weeks and I in fact did have and still do have a feeding tube. I just found out yesterday the leak is healed and they started me on liquids. The cramping is pretty painful but I am told it will go away in time. Overall I am improving but it is slow going.

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OMG you poor thing.

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Hey, on the bright side I have lost 125 pounds.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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