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<p>Wow, Niki just found and read this entire thread this morning. I just want to add my thoughts and prayers to everyone who is thinking about you and hoping (praying) that you get not only answers but some relief soon. I'm so sorry that you have been through all of this, and really glad you have the support of your family and friends. (And Lisa I'm sending you the same prayers, hoping you get some answers to your struggles as well.)</p>

Thank you so much for the kind words and thoughts...I really appreciate it! I'm hoping that Tuesday will bring some answers and relief! I will keep you posted!

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<p>Wow, Niki just found and read this entire thread this morning. I just want to add my thoughts and prayers to everyone who is thinking about you and hoping (praying) that you get not only answers but some relief soon. I'm so sorry that you have been through all of this, and really glad you have the support of your family and friends. (And Lisa I'm sending you the same prayers, hoping you get some answers to your struggles as well.)</p>

Thank you so much for the kind words and thoughts...I really appreciate it! I'm hoping that Tuesday will bring some answers and relief! I will keep you posted!

Thinking of you Niki. Praying for good results and answers on Tuesday.

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Surgery tomorrow morning. Had adrenal stimulation test this morning but no results yet. I guess I have to wait and find out if my endo doctor ordered them for my surgeon already. I'm nervous and anxious...more this time than ever before. There's something about that word "exploratory" surgery that I just can't shake. :(. Talk to you all in the other side...surgery is at 10 am.

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Wishing you well niki..

I am going to be sending you positive thoughts in the morning. Deep cleansing breaths......

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Surgery tomorrow morning. Had adrenal stimulation test this morning but no results yet. I guess I have to wait and find out if my endo doctor ordered them for my surgeon already. I'm nervous and anxious...more this time than ever before. There's something about that word "exploratory" surgery that I just can't shake. :(. Talk to you all in the other side...surgery is at 10 am.

Niki, praying for complete answers and complete healing for you. Linda

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Oh Niki, you've been through such a long journey. I'm praying this will give you answers so you can have a happy ending to all of this mess. God bless you.

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Oh Niki, you've been through such a long journey. I'm praying this will give you answers so you can have a happy ending to all of this mess. God bless you.

Thank you soooo much! I pray the same! I'm on my way now....so nervous and anxious!

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Good luck today Niki!

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Surgery tomorrow morning. Had adrenal stimulation test this morning but no results yet. I guess I have to wait and find out if my endo doctor ordered them for my surgeon already. I'm nervous and anxious...more this time than ever before. There's something about that word "exploratory" surgery that I just can't shake. :(. Talk to you all in the other side...surgery is at 10 am.

Thinking of you Niki. Praying for a good outcome!

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Thinking of you Niki, and hoping that answers are coming to the fore.

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Great news all! They found a kink In my small intestine and fixed it! Pain right now from surgery but no more pain after that! Yay me!!! I'm so excited that they finally found what was wrong with me and repaired it!!!

On the flip side, still don't know about the Addison's disease but I have another appt with the endo doctor next week so I will find out! My bp is really low here in the hospital 84/42...they gave me steroids and a bolus to help with that.

So a night here in the hospital and we'll go from here! Thanks for all the prayers and well wishes!

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Amazing! Still crossing fingers for the Addison's. Glad they found something they could fix!

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Niki!!! Amazing news!! I am so happy for you!! Oh my goodness, this is so wonderful. You deserve a smooth, restful recovery. Rest well!

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So glad they found your issue! You are a true trooper and a brave girl to go through all of this! I hope you have a pain free and healthy future ahead of you.

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Thanks all! You make me feel so good! The support I get on here is phenomenal! Thanks again for making a girl feel good! On to a speedy, smooth recovery!

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    • Aunty Mamo

      Iʻm roughly 6 weeks post-op this morning and have begun to feel like a normal human, with a normal human body again. I started introducing solid foods and pill forms of medications/supplements a couple of weeks ago and it's really amazing to eat meals with my family again, despite the fact that my portions are so much smaller than theirs. 
      I live on the island of Oʻahu and spend a lot of time in the water- for exercise, for play,  and for spiritual & mental health. The day I had my month out appointment with my surgeon, I packed all my gear in my truck, anticipating his permission to get back in the ocean. The minute I walked out of that hospital I drove straight to the shore and got in that water. Hallelujah! My appointment was at 10 am. I didn't get home until after 5 pm. 
      I'm down 31 pounds since the day of surgery and 47 since my pre-op diet began, with that typical week long stall occurring at three weeks. I'm really starting to see some changes lately- some of my clothing is too big, some fits again. The most drastic changes I notice however are in my face. I've also noticed my endurance and flexibility increasing. I was really starting to be held up physically, and I'm so grateful that I'm seeing that turn around in such short order. 
      My general disposition lately is hopeful and motivated. The only thing that bugs me on a daily basis still is the way those supplements make my house smell. So stink! But I just bought a smell proof bag online that other people use to put their pot in. My house doesn't stink anymore. 
       
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    • BeanitoDiego

      Oh yeah, something I wanted to rant about, a billing dispute that cropped up 3 months ago.
      Surgery was in August of 2023. A bill shows up for over $7,000 in January. WTF? I asks myself. I know that I jumped through all of the insurance hoops and verified this and triple checked that, as did the surgeon's office. All was set, and I paid all of the known costs before surgery.
      A looong story short, is that an assistant surgeon that was in the process of accepting money from my insurance company touched me while I was under anesthesia. That is what the bill was for. But hey, guess what? Some federal legislation was enacted last year to help patients out when they cannot consent to being touched by someone out of their insurance network. These types of bills fall under something called, "surprise billing," and you don't have to put up with it.
      https://www.cms.gov/nosurprises
      I had to make a lot of phone calls to both the surgeon's office and the insurance company and explain my rights and what the maximum out of pocket costs were that I could be liable for. Also had to remind them that it isn't my place to be taking care of all of this and that I was going to escalate things if they could not play nice with one another.
      Quick ending is that I don't have to pay that $7,000+. Advocate, advocate, advocate for yourself no matter how long it takes and learn more about this law if you are ever hit with a surprise bill.
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    • BeanitoDiego

      Some days I feel like an infiltrator... I'm participating in society as a "thin" person. They have no idea that I haven't always been one of them! 🤣
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    • ChunkCat

      Thank you everyone for your well wishes! I totally forgot I wrote an update here... I'm one week post op today. I gained 15 lbs in water weight overnight because they had to give me tons of fluids to bring my BP up after surgery! I stayed one night in the hospital. Everything has been fine except I seem to have picked up a bug while I was there and I've been running a low grade fever, coughing, and a sore throat. So I've been hydrating well and sleeping a ton. So far the Covid tests are negative.
      I haven't been able to advance my diet past purees. Everything I eat other than tofu makes me choke and feels like trying to swallow rocks. They warned me it would get worse before it gets better, so lets hope this is all normal. I have my follow up on Monday so we'll see. Living on shakes and soup again is not fun. I had enough of them the first time!! LOL 
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    • BeanitoDiego

      Still purging all of the larger clothing. This morning, a shirt that I ADORED wearing ended up on top. Hard to let it go, but it was also hard to let go of those habits that also no longer serve my highest good. Onward and upward!
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