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Thank you all! I am feeling much much better, except for the jitteriness of the steroids...my bp is better and my stomach is better though so I think if I just get used to the steroids I'll be fine! Thanks so much all of you! I'll keep you updated as I have a couple if follow up appts this week.

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Niki -- just reading this thread for the first time (am a noob here). I was so concerned for you that I skipped immediately from the end of page 1 to page 13 and am so relieved that you're feeling better.

Now I'll go back and read pages 2-12 and see what happened.

Seriously, that's so good you're doing better.

EDIT: Wow. I have now binge-read the whole thread. I don't know what to say, Niki, other than you are one courageous, persistent, grown-up woman. I hope and pray your health continues to improve. You are an amazing person. Respect!

Edited by VSGAnn2014

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Hi Niki! Haven't heard from you for a little while... How are you? How are things going?? Hope you are recovering well!!

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Hi Niki! Haven't heard from you for a little while... How are you? How are things going?? Hope you are recovering well!!

Hey! Well today is my one year surgiversary from my initial sleeve surgery last year and I have to admit for the very first time in forever I feel so much better! Even with the Addison's disease and the thyroid disorder and taking more medications than any person has a right to, I actually feel like I may be coming around to myself. I'm down to 119 again, which I'd be happier at 125 or 130 but I'm eating like a horse and feeling great about it! The kink in my small intestine must have really been the answer! I don't have to go back to my bariatric doctor for a whole month! That in itself is a minor miracle!!

Thanks so much for asking!!

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Hey! Well today is my one year surgiversary from my initial sleeve surgery last year and I have to admit for the very first time in forever I feel so much better! Even with the Addison's disease and the thyroid disorder and taking more medications than any person has a right to, I actually feel like I may be coming around to myself. I'm down to 119 again, which I'd be happier at 125 or 130 but I'm eating like a horse and feeling great about it! The kink in my small intestine must have really been the answer! I don't have to go back to my bariatric doctor for a whole month! That in itself is a minor miracle!! Thanks so much for asking!!

That is so great! Are you able to tolerate fat? If so, you might try adding 100 extra calories a day for a while so you can gain some weight back. Peanut Butter or avocado would do it. It will probably help your hair and skin too and help your energy levels.

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Hey! Well today is my one year surgiversary from my initial sleeve surgery last year and I have to admit for the very first time in forever I feel so much better! Even with the Addison's disease and the thyroid disorder and taking more medications than any person has a right to, I actually feel like I may be coming around to myself. I'm down to 119 again, which I'd be happier at 125 or 130 but I'm eating like a horse and feeling great about it! The kink in my small intestine must have really been the answer! I don't have to go back to my bariatric doctor for a whole month! That in itself is a minor miracle!! Thanks so much for asking!!

That is so great! Are you able to tolerate fat? If so, you might try adding 100 extra calories a day for a while so you can gain some weight back. Peanut Butter or avocado would do it. It will probably help your hair and skin too and help your energy levels.

Yes I am...and I'm eating lots of avocado! Can't get enough of it!!! I'm not even counting calories at this point, just trying to get the calories in! But thanks for the suggestion!

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Oh Niki!! It's so great to hear that you're finally feeling better!! I bet you never imagined that you would have to TRY to gain weight!

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Hi Niki! I'm so happy to hear you are feeling better!! What wonderful news! Many blessings to you in your journey back to a healthy life.

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Great news Niki. Addisons is known for causing digestive problems (as it impacts on muscle tissue it affects peristalsis that moves food through your intestinal tract AND as it affects Fluid balance it affects the make up of digestive enzymes), so you probably had a few things going on there.

Did you realise your Addison's puts you in interesting company? JFK, Charles Dickens, Jane Austen, Helen Reddy and Osama Bin Laden are either confirmed or believed to have had it.

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Niki, wow, a whole year? After the kind of year you've had, it's not just one of those "glad to have another year" noooo, you are BLESSED to BE here period. I'm sure you don't feel "blessed" by what has transpired this past year but you are an amazing testament of strength and resiliency. Amazing.

I'm soooooo glad you are feeling better and being able to eat without suffering, what a wonderful gift. Thanks for the update, I'm so glad to hear things are looking up. :)

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Hi Nikki,

I just read this entire thread and my heart breaks for you and all that you've been through! Please update and let us all know how you're doing. Hoping that 2014 brings you the good health and happiness that you so deserve!

Karen

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Right after surgery I had a large hematoma so they did a repair/surgery on that and sent me home after 4 days in the hospital with a drain for another week. Then about 6 weeks later I had an EGD with a balloon dilation for a stricture and thats about when the onset of the reflux/gerd started, although I had been on dexilant since the original surgery. They then switched me to aciphex. Then last Friday, after 3 months of constant complaining about the reflux and changing my meds again to Nexium and taking Tums/Rolaids like candy, they did another EGD and balloon dilation and put me on all liquids to see if my symptoms subsided...which they did not. So after a long conversation with my Dr. about this today we will be doing surgery tomorrow for the revision. Regarding the pain, my pain is in my stomach, like fire, and in my throat, and I am throwing up about 3-4 times a week. Plus every night I wake up or can't sleep from the feeling that it's all coming back up my throat...sorry if this is too much information, but I don't have any pain on my right side...

Wow I had the same thing happen to me but the balloon dilation worked for me after 3 try's my doc was going to convert me thank God the balloon worked I'm almost one year out now doing great so good luck with whatever you have to do

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Hey! Well today is my one year surgiversary from my initial sleeve surgery last year and I have to admit for the very first time in forever I feel so much better! Even with the Addison's disease and the thyroid disorder and taking more medications than any person has a right to, I actually feel like I may be coming around to myself. I'm down to 119 again, which I'd be happier at 125 or 130 but I'm eating like a horse and feeling great about it! The kink in my small intestine must have really been the answer! I don't have to go back to my bariatric doctor for a whole month! That in itself is a minor miracle!! Thanks so much for asking!!

That is so great! Are you able to tolerate fat? If so, you might try adding 100 extra calories a day for a while so you can gain some weight back. Peanut Butter or avocado would do it. It will probably help your hair and skin too and help your energy levels.

Yes I am...and I'm eating lots of avocado! Can't get enough of it!!! I'm not even counting calories at this point, just trying to get the calories in! But thanks for the suggestion!

Hey Nicki,

How are you doing? I hope you are still doing well. Thinking of you and thought I would check up on you!

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Thanks all for asking about me! Makes me feel loved! I am feeling better but still feel like I am going thru the motions on the medication for the Addison's disease and the thyroid disorder...feel like we really can't get ahold of where I should be yet...considering a new endocrinologist...I have to have my potassium checked twice a week still because it stays critically low. But other than that my stomach feels great and I still eating like a horse just can't gain any weight!

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I hope you are doing well, Niki. Please five us an update. Also I think your story could help the OP on this thread: http://www.bariatricpal.com/topic/288161-severe-gerd-and-severe-esophageal-spasms-18-months-post-op/

I pointed her here and suggested she get in touch with you, but her thread is currently a lot shorter so I hope you can peek in!

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    • Aunty Mamo

      Iʻm roughly 6 weeks post-op this morning and have begun to feel like a normal human, with a normal human body again. I started introducing solid foods and pill forms of medications/supplements a couple of weeks ago and it's really amazing to eat meals with my family again, despite the fact that my portions are so much smaller than theirs. 
      I live on the island of Oʻahu and spend a lot of time in the water- for exercise, for play,  and for spiritual & mental health. The day I had my month out appointment with my surgeon, I packed all my gear in my truck, anticipating his permission to get back in the ocean. The minute I walked out of that hospital I drove straight to the shore and got in that water. Hallelujah! My appointment was at 10 am. I didn't get home until after 5 pm. 
      I'm down 31 pounds since the day of surgery and 47 since my pre-op diet began, with that typical week long stall occurring at three weeks. I'm really starting to see some changes lately- some of my clothing is too big, some fits again. The most drastic changes I notice however are in my face. I've also noticed my endurance and flexibility increasing. I was really starting to be held up physically, and I'm so grateful that I'm seeing that turn around in such short order. 
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    • BeanitoDiego

      Oh yeah, something I wanted to rant about, a billing dispute that cropped up 3 months ago.
      Surgery was in August of 2023. A bill shows up for over $7,000 in January. WTF? I asks myself. I know that I jumped through all of the insurance hoops and verified this and triple checked that, as did the surgeon's office. All was set, and I paid all of the known costs before surgery.
      A looong story short, is that an assistant surgeon that was in the process of accepting money from my insurance company touched me while I was under anesthesia. That is what the bill was for. But hey, guess what? Some federal legislation was enacted last year to help patients out when they cannot consent to being touched by someone out of their insurance network. These types of bills fall under something called, "surprise billing," and you don't have to put up with it.
      https://www.cms.gov/nosurprises
      I had to make a lot of phone calls to both the surgeon's office and the insurance company and explain my rights and what the maximum out of pocket costs were that I could be liable for. Also had to remind them that it isn't my place to be taking care of all of this and that I was going to escalate things if they could not play nice with one another.
      Quick ending is that I don't have to pay that $7,000+. Advocate, advocate, advocate for yourself no matter how long it takes and learn more about this law if you are ever hit with a surprise bill.
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    • BeanitoDiego

      Some days I feel like an infiltrator... I'm participating in society as a "thin" person. They have no idea that I haven't always been one of them! 🤣
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    • ChunkCat

      Thank you everyone for your well wishes! I totally forgot I wrote an update here... I'm one week post op today. I gained 15 lbs in water weight overnight because they had to give me tons of fluids to bring my BP up after surgery! I stayed one night in the hospital. Everything has been fine except I seem to have picked up a bug while I was there and I've been running a low grade fever, coughing, and a sore throat. So I've been hydrating well and sleeping a ton. So far the Covid tests are negative.
      I haven't been able to advance my diet past purees. Everything I eat other than tofu makes me choke and feels like trying to swallow rocks. They warned me it would get worse before it gets better, so lets hope this is all normal. I have my follow up on Monday so we'll see. Living on shakes and soup again is not fun. I had enough of them the first time!! LOL 
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    • BeanitoDiego

      Still purging all of the larger clothing. This morning, a shirt that I ADORED wearing ended up on top. Hard to let it go, but it was also hard to let go of those habits that also no longer serve my highest good. Onward and upward!
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