morning. i had a jeujuostomy tube in the fall (out after 3 months) now my MD wants to place a NJ tube for malnutrition...I am not happy with that - would rather have another surgery even though it would be with general vs conscious sedation. my j tube was high maitenence but i got used to it. Anyone with feedback? i had a NG tube for 12 hours and i pulled it out (38 day hosp. stay for complications 3 weeks post op). i cannot fathom something like that for long term. Thank you.

Stephanie

thank you so much for sharing your incredible journey. i thought mine was rough.38 days in with every complication possible. I was ok for about 3 weeks once my jtube fell out. already with the formula i am feeling better. dropped 2 # in a few days so my metabolism is getting better along with my strength. I keep re- reading your story and i am amazed at your strength. i will post thur after my consult with my surgeon. thanks again!!!!!! trish

the nasogastric tube SUCKS! i've had two during my four hospitalizations (complications from a prolonged leak). the j tube wasn't so bad. i did my feedings at 60 overnight but would have to do it for 12 hours. i couldn't stomach more than 60 for the rate or it made me ill. i did osmolite for a while, then switched to my premier Protein drinks (and added in a tbsp of olive oil as i was beginning to get "ashy"... seriously). i'm sorry you have to go through this, but it's better than being malnutritioned. at my lowest, i got to 130 and am 5'7. that is too small.... i'm about 140 now and holding.

oh and btw, i got a little bag that someone gave me and put my pump in there with the feeding bag made up and could just rock and roll whereever i wanted.

here's a tip that i never knew until i had my feeding tube: keep the small diet cokes or canned cokes in the house and do flush with that once a week, then flush the tube at least 3-4 times a day. make sure you do this or you could have "issues" if you don't....

you'd be surprised what you can acclimate to whenever you just have to.

i had my feeding tube from 12/14 (ish) to hmm, last week. i am so glad it's gone. i'm almost back progressed to chicken in my diet, but fish is my favorite right now.

best of luck!

yeah, that cokeacola is our little secret when our patient's tube is clogged! thank you for your encouragement.....very helpful. I have an apt with my NUT 2-4-13 for my vit a def. (3 - too low for NJ out and J tube in). 2-25-13 is my next surgery date. Malnutrition sucks....the peptide Impact 1.5 is top notch and i already feel better. 15 hours at 70 ml/hour is my goal. not quite there yet plus 900 ml total of flushing. glad you are on the mend!!!!!!