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4 Wks Post Op Miserable



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I hope they get this figured out soon Lux. It's definitely not normal to have vomiting go on this many weeks post op. I hope your dr. is running every test under the sun to find out what is causing all your nausea, while even on nausea medication.

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Lux I had the tube. It's miserable I'd agree. I actually "rejected it" (vomited bile for 48 hours) and they had to go to IV feeding (TPN) instead. You will stay healthier on the tube than TPN though so try to get used to it!

Gad I hate to read every time I see a complication, but I'm glad you have at least somewhat of an idea what is wrong. What are they going to do about it though???

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Hi iggy. First tube i vomited out so they placed second larger one farther down into the gut. The hope is the pouch in the stomach will close up on its own or may have to go back in and remove it

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Hello all. Just returned from dr again 10 days since tube placement no vomiting since i was looking for good news but no such luck. Still have pouch on side of stomach & tube has slid out of juijenum & not sits just below pouch. So now dr wants me to lay off Protein down to 50gr a day & start getting 800 cal a day & keep tube in 2 more weeks. Im so confused as well as pissed off i just feel like im getting a run around. I would bet in 2 wks he recommends surgery lets watch and see

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Hello all. Just returned from dr again 10 days since tube placement no vomiting since i was looking for good news but no such luck. Still have pouch on side of stomach & tube has slid out of juijenum & not sits just below pouch. So now dr wants me to lay off Protein down to 50gr a day & start getting 800 cal a day & keep tube in 2 more weeks. Im so confused as well as pissed off i just feel like im getting a run around. I would bet in 2 wks he recommends surgery lets watch and see

Oh Lux, so sorry you are going through this. No vomiting is a good thing though. What do they think caused the pouch?

Hope they figure it all out soon. I guess being conservative to them is a good thing. To you, it's just frustrating! Hang in there.

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Ugh. So sorry!

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Hello all its been a while since i posted ; have had an NG tube down my nose for a month saw the Dr today going to have a G - tube placed next wk . I have lost 80lbs in 3 months it has really been a trying time for me & my family.

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Oh god Lux! I was hoping for good news, as I am sure you are too! Please keep us updated and good luck with everything. I really hope this all turns around for you soon.

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How far out when you started having trouble I am 6 days

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Cathy i had complications right after surgery & just went downhill after that, not being able to keep anything down

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I hope you start healing soon. I'm so sorry your suffering complications :(

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    • Aunty Mamo

      Iʻm roughly 6 weeks post-op this morning and have begun to feel like a normal human, with a normal human body again. I started introducing solid foods and pill forms of medications/supplements a couple of weeks ago and it's really amazing to eat meals with my family again, despite the fact that my portions are so much smaller than theirs. 
      I live on the island of Oʻahu and spend a lot of time in the water- for exercise, for play,  and for spiritual & mental health. The day I had my month out appointment with my surgeon, I packed all my gear in my truck, anticipating his permission to get back in the ocean. The minute I walked out of that hospital I drove straight to the shore and got in that water. Hallelujah! My appointment was at 10 am. I didn't get home until after 5 pm. 
      I'm down 31 pounds since the day of surgery and 47 since my pre-op diet began, with that typical week long stall occurring at three weeks. I'm really starting to see some changes lately- some of my clothing is too big, some fits again. The most drastic changes I notice however are in my face. I've also noticed my endurance and flexibility increasing. I was really starting to be held up physically, and I'm so grateful that I'm seeing that turn around in such short order. 
      My general disposition lately is hopeful and motivated. The only thing that bugs me on a daily basis still is the way those supplements make my house smell. So stink! But I just bought a smell proof bag online that other people use to put their pot in. My house doesn't stink anymore. 
       
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    • BeanitoDiego

      Oh yeah, something I wanted to rant about, a billing dispute that cropped up 3 months ago.
      Surgery was in August of 2023. A bill shows up for over $7,000 in January. WTF? I asks myself. I know that I jumped through all of the insurance hoops and verified this and triple checked that, as did the surgeon's office. All was set, and I paid all of the known costs before surgery.
      A looong story short, is that an assistant surgeon that was in the process of accepting money from my insurance company touched me while I was under anesthesia. That is what the bill was for. But hey, guess what? Some federal legislation was enacted last year to help patients out when they cannot consent to being touched by someone out of their insurance network. These types of bills fall under something called, "surprise billing," and you don't have to put up with it.
      https://www.cms.gov/nosurprises
      I had to make a lot of phone calls to both the surgeon's office and the insurance company and explain my rights and what the maximum out of pocket costs were that I could be liable for. Also had to remind them that it isn't my place to be taking care of all of this and that I was going to escalate things if they could not play nice with one another.
      Quick ending is that I don't have to pay that $7,000+. Advocate, advocate, advocate for yourself no matter how long it takes and learn more about this law if you are ever hit with a surprise bill.
      · 0 replies
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    • BeanitoDiego

      Some days I feel like an infiltrator... I'm participating in society as a "thin" person. They have no idea that I haven't always been one of them! 🤣
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    • ChunkCat

      Thank you everyone for your well wishes! I totally forgot I wrote an update here... I'm one week post op today. I gained 15 lbs in water weight overnight because they had to give me tons of fluids to bring my BP up after surgery! I stayed one night in the hospital. Everything has been fine except I seem to have picked up a bug while I was there and I've been running a low grade fever, coughing, and a sore throat. So I've been hydrating well and sleeping a ton. So far the Covid tests are negative.
      I haven't been able to advance my diet past purees. Everything I eat other than tofu makes me choke and feels like trying to swallow rocks. They warned me it would get worse before it gets better, so lets hope this is all normal. I have my follow up on Monday so we'll see. Living on shakes and soup again is not fun. I had enough of them the first time!! LOL 
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    • BeanitoDiego

      Still purging all of the larger clothing. This morning, a shirt that I ADORED wearing ended up on top. Hard to let it go, but it was also hard to let go of those habits that also no longer serve my highest good. Onward and upward!
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