I'm sorry, this post isn't strictly about the sleeves...

Today was supposed to be my first day of the 2-week pre-op diet. I had a big canvas bag of shakes, pudding and yogurts that I was going to keep in stock at work. I know some people really don't look forward to this liquid diet but I was excited to lose more weight and it meant the final step before my surgery on the 24th.

Well about a minute before I was headed out to work, out of nowhere, my beautiful 19-month old son went into a seizure. This has never happened to us before and for a few minutes there I thought I was going to lose him. He ended up having 2 more seizures today and now we're here overnight at PICU. He seemed to be doing much better at night and now he's sleeping restfully. We are hoping for the best and the original diagnosis we were given that he has a viral infection. It seems to be common for babies.

I'm very overwhelmed and stressed now and considering postponing my surgery. My pre-op consul with the surgeon is this Thursday. My husband seems like he really wants me to still go through with it because I've been waiting to have it so long but suddenly it doesn't seem as important anymore. If it wasn't for the fact that a family member was already coming to stay with us the week of my surgery I would have already cancelled. Tomorrow after we learn more I'll have to decide. I hope my son will be healthy and normal again and one day I will be healthy too.

Thank you for listening, it felt good to tell someone and I'm sure someone out there may have faced something similar and can reassure me.

I may be a little late, but my son also had seizures from the age of 18 months until the age of 5. He also was in the hospital and given all the neuro tests and nothing conclusive but he was put on the seizure meds. I hated the way they made him lethargic and slow. I took him from doctor to doctor looking for an answer and finally found a gift from God. This doctor took the time to explain that my son had a "Febrile Seizure" condition. Basically his body did not react to a virus or infection in the normal way. So when there was an infection present his temp would go up but his body did not hate a "thermostat" to contol the fever and so when it got too high his brain would seize his body - basically to cool it down. The doctor basically taught me to keep a thermometer in his baby bag and check it once a day. If he did have a fever, I gave him tylenol and kept an eye on the fever. As long as I controlled the fever with meds, tepid baths and and cool cloths he didn't have a seizure. The only times that he seized from 18 months to 5 years was when he got sick during the day at the nursery and they did not realize it, but it wasn't often. Maybe this is what your son has and NOT epilepsy. You are his strongest advocate, make sure they have the right diagnosis! Good luck and God Bless!

BTW - Sounds like you have a great support network -- Have the surgery! It will be a gift to yourself and your family!

I may be a little late, but my son also had seizures from the age of 18 months until the age of 5. He also was in the hospital and given all the neuro tests and nothing conclusive but he was put on the seizure meds. I hated the way they made him lethargic and slow. I took him from doctor to doctor looking for an answer and finally found a gift from God. This doctor took the time to explain that my son had a "Febrile Seizure" condition. Basically his body did not react to a virus or infection in the normal way. So when there was an infection present his temp would go up but his body did not hate a "thermostat" to contol the fever and so when it got too high his brain would seize his body - basically to cool it down. The doctor basically taught me to keep a thermometer in his baby bag and check it once a day. If he did have a fever, I gave him tylenol and kept an eye on the fever. As long as I controlled the fever with meds, tepid baths and and cool cloths he didn't have a seizure. The only times that he seized from 18 months to 5 years was when he got sick during the day at the nursery and they did not realize it, but it wasn't often. Maybe this is what your son has and NOT epilepsy. You are his strongest advocate, make sure they have the right diagnosis! Good luck and God Bless!

BTW - Sounds like you have a great support network -- Have the surgery! It will be a gift to yourself and your family!

I'm so happy to hear your son no longer has seizures! It makes me happy and hopeful. I'm not sure if ours has the same because throughout all the seizures he's never had a temperature. They did CT and EEG on his brain and it wasn't epilepsy, he just has seizures. I was told the medication does make them tired but they eventually get used to it so we'll see in a few days if he improves.

So happy he is not having seizures and you are at home!

Also pleased to hear you are going ahead with your liquid diet! A healthy fit mum is so important!

Keep us updated on your journey

We got let out of the hospital Wednesday morning. He was put on anti-seizure medication and had been seizure-free for 24 hours so we were allowed to leave.. thank god, we all hated the hospital. However on Thursday night and Friday morning he had more seizures right before his medication runs out so we were told to up the dosage. Seems to be working now... no seizures since then and he's finally acting normal again except a little tired. He's been acting more cuddly and wanting to hug mommy and daddy a lot so there is that.

Today finally felt like a normal day and liquid diet has been great, not even suffering. Thank you so much for asking!

Good to hear things are getting better!