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Rheumatoid Arthritis



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I have Rheumatoid Arthritis and my doctor says there is nothing she can do to help me other than using Voltaren Gel and compression gloves…She says I just need to learn to live with it. I wake each morning with my hand crippled and unable to bend my fingers as they are stuck bent and hurts like hell. Is anyone taking medications for RA? If so, what and if you have had any major issues with medications?

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Oh, how insensitive is your doctor.

After weight loss surgery, you are unable to take nsaids. (Sleevers are eventually able to take the odd nsaid but not regularly.) But there are alternative pain relief & RA management drugs for rheumatoid arthritis than nsaids such as steroids and dmards (like methotrexate which 2 friends take). Chat with your surgeon as to whether you’re able to take these drugs as it will depend upon where in your body they are absorbed. Hopefully you may be able to take one of those.

Plus as you lose weight some of the pressure will be taken off your joints which should offer some reduction in pain too.

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I know someone from another bariatric group who takes RA drugs and has lost a lot of weight. She has been put on steroids now and has stalled, but not everyone with RA has to go on steroids too. There are lots of monoclonal antibody drugs. Are you not taking one of those? Are you seeing a rheumatologist? Or was this your PCP?

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20 hours ago, KateTheGreat1 said:

I have Rheumatoid Arthritis and my doctor says there is nothing she can do to help me other than using Voltaren Gel and compression gloves…She says I just need to learn to live with it. I wake each morning with my hand crippled and unable to bend my fingers as they are stuck bent and hurts like hell. Is anyone taking medications for RA? If so, what and if you have had any major issues with medications?

I have RA as well. I am not allowed to take NSAIDS because I am on anticoagulants, so even before sleeve surgery that was not an option. I take one Norco daily to help manage the joint pain and flare-ups. One a day is enough to keep me reasonably functional, if not completely pain-free. I haven't had any major issues with meds and I am careful not to take more than one per day. I used to take Plaquenil, but I started to have eye problems (which it's known for causing) so I had to stop. My rheumatologist would rather not risk giving me disease-modifying drugs like Humira due to extra risk factors from unrelated conditions. So Norco it is, for now. Is it your primary doctor or a rheumatologist saying you just have to "live with it"? In either case, I'd be looking for a new doctor due to that uncaring attitude.

Edited by Jaelzion

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On 8/1/2021 at 1:52 PM, KateTheGreat1 said:

I have Rheumatoid Arthritis and my doctor says there is nothing she can do to help me other than using Voltaren Gel and compression gloves…She says I just need to learn to live with it. I wake each morning with my hand crippled and unable to bend my fingers as they are stuck bent and hurts like hell. Is anyone taking medications for RA? If so, what and if you have had any major issues with medications?

I don't have RA, but rather Osteoarthritis (though my doctor is testing my knees for RA in November because my original diagnosis was for my back and hips, but I've been having constant knee issues since April. I literally had a flare that lasted the ENTIRE month of April from the 5th until the beginning of May. And I've had multiple flares since). Before my WLS I never had issues with NSAIDs. I was even given the okay by my surgeon to occasionally take ibuprofen or another NSAID for inflammation in moderation (because I had a surgery that involves the sleeve stomach. Just with the intestinal bypass bit added). You're not supposed to have NSAIDs at ALL with gastric bypass according to my surgeons office. As for my own experience, the one and ONLY time I took ibuprofen I went to the ER with such bad chest pains I thought I was having a heart attack. Then my doctor gave me Votaren Gel for my knees and I broke out in hives and welts on my neck, even though the gel went on my knees. I took two benadryl and went the ER where they had to give me a steroid shot and monitor me and the whole time I was panicking because I've had an angioedema allergic reaction in the past so when my neck turned red and got welts I started crying because I thought I was having a reaction like that and when the angioedema reaction had happened they'd told me if I hadn't gone in my airway would have closed up and I would have suffocated. I had flashbacks and I was a mess! Then recently my doctor prescribed me Meloxicam which is supposed to be a mild NSAID. But the two times I took it, just like the ibuprofen, I ended up with terrible chest pains (and I'd taken benadryl before taking it because... paranoia) and the only think that helped with the chest pain was taking valium which is for my BACK (the meloxicam was for my knees).

So, I just use aspercreme with lidocane for pain as well as tylenol and tumeric and ginger root for inflammation. They've been working, luckily. I do believe RA has some steroids options that may help, from my understanding (which isn't much, mind you). You could try the tumeric, which I highly recommend. And the ginger root pills work as a good secondary and have the added effect of settling your stomach if you're dealing with nausea issues lol (I get the occasional nausea issue so it's a plus, for me).

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

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