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Struggling. Jackhammer esophagus



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I was sleeved in sept 2018. From 180ish to 110 and still losing. I suffered. I told my doctor. And was told smaller bites. Go to the er. I did this.

A couple weeks ago, I was finally diagnosed with jackhammer esophagus. Basically feels like like I’m having a heart attack when I eat or drink anything. To the point where I go to the er every other week when I need iv fluids. “I know when it’s time cause I start to pass out when I walk” :(

my doctor at blossom said I just needed time to heal. After making a special trip to Vegas. “Made two special ones there to seek help”

I live in Reno. The doctors at UCLA finally did a manomerty study and clear as day, my esophagus was struggling to push food down. And once it gets to my stomach, it takes a long time to go in.

Does any one suffer? How many doctors did you see before it was found? Anything help you?

I’ve just had Botox injections in my esophagus. Didn’t help. Talking about doing the potty surgery.

I want my life back. I can’t work. I can hardly go to the store. Have to nap after. I can’t eat with my family at sushi like we used to. I can’t have cocktails at social events. I feel trapped.

2DDB67BD-F7A3-4165-96CB-0197C1510E8E.jpeg

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Do you have severe reflux? Did you have symptoms prior to the sleeve, you didn’t have a band previously did you?

What treatment are they going to use?

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I had zero symptoms before my surgery. And still have no acid reflux.

I have read here, that a lot of people had a manometry study done before their surgery to see if their esophagus was functioning well enough to even have it done.

I have done Calcium blockers. Nitro under the tongue. Peppermint oil. Cough drops. Reglan. Pot. I just want the surgery. The poem surgery. :(

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I’m sorry you’re dealing with this. From what I’ve read it’s pretty rare. I wonder if your drs office could put you in contact with a support group or even another patient who is dealing/has dealt with this?

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:( was forced to get a feeding tube in my stomach. Just unable to function with the lack of nutrition. I have joined some Facebook groups for things that are similar... but yeah. It is very rare. My life quality has never been lower. Down to 109 lbs

183996DC-22B7-4052-9171-D822CDF3D846.jpeg

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Can anyone help me? Is anyone else dealing with this
I was having a hard time and it felt as if I was having a heart attack and like it was stuck. I found some relief after I vomited. It happens every so often when I eat but now I make myself vomit. Not sure if this is a good thing but like I said it doesn't happen all the time. I do get instant relief after vomiting. I hope you get better.

Sent from my SM-G955U using BariatricPal mobile app

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I have heard of Nutcracker Esophagus, are the two conditions in any way similar?

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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      https://alluniqueguide.com/java-burn-coffee-reviews/
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