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Hidradenitis Supporitiva ?



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Oh my god I am so happy to see this thread. I have had this for a while and I didn't realize it was something other people got. I have it quite bad under my arms. I apologize if this is graphic but how do you guys deal with it? I have to put pads on my shirts and I'm always self conscious that there is a smell. I have been to a dermatologists i have been on some antibiotics and has not resolved. I am currently trying some treatment I read about where they suggested using common acne treatments. I am 10 months post op and it has not improved.

I have been dealing with this for some years now, and I have found somethings that have worked for me... I use medicated powder, gold bonds... And I use medicated chap stick- yes, you read that correctly. The medicine in the powder and chap stick closed abscess faster then anything I've tried before. I keep the space faulty dry as well... And recently I have discovered Aquaphor as well. For the smell, that usually gave me the most trouble. I would gauze it and tape it and spray perfume on my shirt in the spot of the smell.

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I am a year post op. My HS was fairly active in the beginning post op but in the last couple of months things have died down tremendously. I may have had one or two nodes that popped up but nothing has opened up and drained in months. Like I said, if something does pop up, it seems to just go away on its own. Fingers crossed it stays like this for me. I had it bad under my arms.

Congrats! I know how embarrassing and self conscious this can make you feel.

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Oh my god I am so happy to see this thread. I have had this for a while and I didn't realize it was something other people got. I have it quite bad under my arms. I apologize if this is graphic but how do you guys deal with it? I have to put pads on my shirts and I'm always self conscious that there is a smell. I have been to a dermatologists i have been on some antibiotics and has not resolved. I am currently trying some treatment I read about where they suggested using common acne treatments. I am 10 months post op and it has not improved.

I have been dealing with this for some years now, and I have found somethings that have worked for me... I use medicated powder, gold bonds... And I use medicated chap stick- yes, you read that correctly. The medicine in the powder and chap stick closed abscess faster then anything I've tried before. I keep the space faulty dry as well... And recently I have discovered Aquaphor as well. For the smell, that usually gave me the most trouble. I would gauze it and tape it and spray perfume on my shirt in the spot of the smell.

Sent from my iPhone using the BariatricPal App

do you use any kind of deoderant? I am so self conscious about the smell. Ive been using panty liners on the inside of my shirts

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Oh my god I am so happy to see this thread. I have had this for a while and I didn't realize it was something other people got. I have it quite bad under my arms. I apologize if this is graphic but how do you guys deal with it? I have to put pads on my shirts and I'm always self conscious that there is a smell. I have been to a dermatologists i have been on some antibiotics and has not resolved. I am currently trying some treatment I read about where they suggested using common acne treatments. I am 10 months post op and it has not improved.

I have been dealing with this for some years now, and I have found somethings that have worked for me... I use medicated powder, gold bonds... And I use medicated chap stick- yes, you read that correctly. The medicine in the powder and chap stick closed abscess faster then anything I've tried before. I keep the space faulty dry as well... And recently I have discovered Aquaphor as well. For the smell, that usually gave me the most trouble. I would gauze it and tape it and spray perfume on my shirt in the spot of the smell.

Sent from my iPhone using the BariatricPal App

do you use any kind of deoderant? I am so self conscious about the smell. Ive been using panty liners on the inside of my shirts
I have used many different deodorants to try to mask the smell. I usually use Cucumber Melon Deodorant by Dove, or I use Suave Deodorant in tropical paradise.

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I began having these on my groin area after my last child. A year ago I went gluten free (my child has pretty bad gluten intolerance)....thought I would try it. I did not have a aingle breakout until I started eating gluten again (gained my weight back as well. Maybe the absence of carbohydrates, especially those loaded with gluten is the reason wls seems to help. Just a thought. Good luck with your journey!

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I began having these on my groin area after my last child. A year ago I went gluten free (my child has pretty bad gluten intolerance)....thought I would try it. I did not have a aingle breakout until I started eating gluten again (gained my weight back as well. Maybe the absence of carbohydrates, especially those loaded with gluten is the reason wls seems to help. Just a thought. Good luck with your journey!

Sent from my SM-G900P using the BariatricPal App

Interesting, I never thought of trying that. I'll give it a try! Thank you for that information

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I started taking a Turmeric Curcumin supplement 500 mg daily at least a year ago. Haven't had a flare up since. I feel for you, it's an awful condition

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    • LeighaTR

      I am new here today... and only two weeks out from my sleeve surgery on the 23rd. I am amazed I have kept my calories down to 467 today so far... that leaves me almost 750 left for dinner and maybe a snack. This is going to be tough for two weeks... but I have to believe I can do it!
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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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