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5 months out from RNY and the AZ heat hasn't killed me yet! ;)



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So I'm not so great about sharing my journey or talking about myself. I am always the advice giver, caretaker, and listener... so you'll have to bare with me through out my long winded discussion of my massive lifestyle changes.

I've yo-yo'ed with weight since I was about 18. Between stress, depression, anxiety, and life... I managed to pack on 330 pounds at my heaviest (as seen in my largest photo!). In 2012 I was diagnosed with Pseudotumor cerebri (Intercranial hypertenstion) which also caused Papilledema. What is Pesudotumor cerebri and papilledema, you ask? (Well, I'm gonna tell you even if you don't want to know.. mwahaha!)

Pseudotumor cerebri is a condition common in women of child bearing age (and women with a long history of birth control as was in my situation) that causes the body to create excess spinal Fluid. Why is extra spinal Fluid in the head so bad, you might ask? Well, your sinuses, eyes, brain, and skull are already full.. in fact, your head is already full of spinal fluid. Adding MORE pushes everything in your head together causing horrible pressure and forcing it out of your skull in the most painful way possible.... here is where the patient would get regular SPINAL TAPS AND/OR A SHUNT TO RELIEVE THE EXCESS PRESSURE! There is no real cure for this and being overweight makes it worse as your body compensates by creating even MORE fluid due to the excess weight. Papilledema is the pressure that the excess spinal fluid from this condition puts on the eyes causing blindness and other serious eye injuries.

Fast forward to 2015... I broke my foot at work and was rather sedentary for a few months, gaining about 30 lbs. This set on my pseudotumor and issues with papilledema. I was back up to about 320 and miserable... OH SO VERY MISERABLE. This condition just about caused my death twice in 2015 and my doctors told me I needed to lose a massive amount of weight quickly. The neurological medications I was on to treat this sort of negated losing more than a pound or two per week, and that wasn't enough weight loss to help the condition and pain. So I began changing my entire diet, went to counseling, and also decided to pursue RNY Gastric Bypass after a great deal of research, classes, and educational information about various options and long term benefits/downfalls of doing such drastic procedures.

On January 27th, 2016 I went in to St. Luke's in Phoenix with my amazing and steady surgeon, Dr. Rob Schuster and was up walking to dull the pain as soon as the anesthesia wore off that day. My recovery was really best case scenario all around because I binge watched "My 600 lb Life" before going in and didn't want to be miserable while in the hospital for a few days and also wanted to kick my butt in gear to get on with this second chance at life. It was a massive lifestyle change. To anyone that thinks or feels surgical weight loss is an "easy way out" or in general isn't difficult has no idea the months and months of work people must go through, the hoops insurance puts you through, plus the amount of will power and motivation someone must have through good and bad to ensure they stay on top of all of it both before, during, and after surgery. You are forced to change your entire lifestyle, you change your relationship with food permanently, and learn to make far healthier and wiser choices as you can literally only put 4 oz of anything in you at any time and it MUST be seen as fuel or your honestly doing it wrong and hurting yourself in the process.

I've dropped close to 90 lbs so far with another 50-60 to go to reach my goal. I feel better now than I have since I was 18. I am so much happier, healthier, and in general just more motivated to take on life.

My life in the past two months has literally crashed into perfection. I can't think of a better way to sum it all up. My goals in life are to live simply, be happy, love honestly, and just be myself. I'm extremely blessed and grateful for how my life has crashed into perfection recently and wouldn't change it for the world, even with the nuances and odd things life may bring my way. I'm all smiles these days! :)

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Congratulations on your weight loss thus far. Curious. Has the lost weight affected your condition: pseudotumor cerebri?

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The weight did affect it when I was heaviest, losing the weight was the closet thing to a "cure" I will get. Mainly the extra weight caused my body to work in overtime creating even more excess spinal Fluid, causing even more excess pressure.

I work for an airline, fly a lot and scuba dive a lot....I've not been able to do those two things in three years because my head would literally explode due to excess pressure from the extra spinal Fluid on my skull and the added pressure from the atmospheric changes.

I've had no issues with this condition since my surgery. In fact, my papilledema swelling in my eyes from the pseudotumor haso been reduced by 85 percent in the 5 months since my surgery and I will be completely off the neurological medications in the next few months! :)

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
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    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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      https://alluniqueguide.com/java-burn-coffee-reviews/
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