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Fibromyalgia and chronic fatigue syndrome and sjogrens



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Having sleeve on August 7th. Beginning to wander if I will be able to recoup as quickly and as well as ppl that do not have these problems. I'm already extremely fatigued all the time.

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Holy Hannah! That's a lot! Have you asked your immunologist? Or whatever specialist deals with autoimmune stuff... They might be able to give you some insight. I'm sure you're surgeon can also be able to offer insight. I have a friend with Sjogren's. Hers is pretty far progressed but I know it's been a battle for her and I hope things have progressed in the research to the point where there's better care for the disease. Good luck!

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Having sleeve on August 7th. Beginning to wander if I will be able to recoup as quickly and as well as ppl that do not have these problems. I'm already extremely fatigued all the time.

Hello. I have sjogren's syndrome and I am getting sleeved on July 20th. My rheumatoid arthritis doctor encouraged the surgery for a better quality of life for me. This extra weight is rough on my knees. Sometimes, I can hardly walk. It's hard enough just getting out of the bed. I am almost always exhausted.

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I have RA and was sleeved in May. I have lost 28 lbs, but in the past week gained 3 back as I started taking prednisone again. I had a terrible flare up. The RA makes it extremely difficult to work out when a false up occurs but when it calm weight loss and workout regiment is good.

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I have RA and was sleeved in May. I have lost 28 lbs, but in the past week gained 3 back as I started taking prednisone again. I had a terrible flare up. The RA makes it extremely difficult to work out when a false up occurs but when it calm weight loss and workout regiment is good.

Thanks for sharing.

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I have Lupus and Reynauds Syndrome. I was sleeved on 4/23. I will be honest with you, the fatigue is difficult when I am having a flare up.

But thus far I have lost 49 pounds and the quality of my life has changed. I no longer get out of bed in the morning moving around like I am 80 years old. I am able to go to the gym and work out. I actually feel like my old self again.

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My surgery was in February. I have lupus, reynauds syndrome, fibromyalgia, and secondary sjogrens. I have my ups and downs, however, since surgery I have so many more good days. I am able to exercise more and like vsgdiva I don't move around like an 80 year old woman any longer. I still have a lot of trouble with my knees and random, phantom pain, but it is getting better with time.

I am so glad that I had the surgery.

My recovery from surgery went well. I was not in a great deal of pain after and I did not have any issues with nausea. I was able to get in all of my fluids, however fatigue did keep me from getting the recommended amount of exercise in the beginning. It was about 6 weeks before I could get in my 30 minutes of daily exercise. And now, I am doing well. I am exercising 5 days a week for a minimum of 60 minutes.

Remember not to compare yourself to me or anyone else after you have your surgery. Your recovery will be your recovery. Just be sure to keep your rheumatologist apprised the details of your surgery and all medications you are taking.

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    • LeighaTR

      I am new here today... and only two weeks out from my sleeve surgery on the 23rd. I am amazed I have kept my calories down to 467 today so far... that leaves me almost 750 left for dinner and maybe a snack. This is going to be tough for two weeks... but I have to believe I can do it!
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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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