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I have rheumatoid arthritis getting sleeve May 22



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Hello,

I have rheumatoid arthritis and scheduled for sleeve on May 22. Anyone else with similar experience? If so any insight would be helpful. Also, I'm on 10mg of prednisone daily. My rheumatologist told me to continue it but stop methotrexate a wk prior to surgery.

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I have SLE and was on 10mg of prednisone prior to surgery. My surgeon told me she wanted me down to only 5mg by surgery date (Feb 25). I told my rheumatologist and he weaned me down 4 months prior to surgery. There were also a couple of medications that my surgeon wanted me off of by surgery and by coordinating with my PCP it was done.

My surgeon went over all of my medications and gave me a list of them with instructions on what to take and what not to take. Your surgeon will probably do the same with you. Just be sure to ask questions.

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I do have better flexibility with the weight loss. I am still on 5mg of prednisone. I don't need pain pills as often as before. Getting more exercise is a big help along with the weight loss.

Read some other posts here on BP regarding what to expect after surgery. I didn't have pain from my incisions, but suffered gas pain quite a bit those first 3 or 4 days. After that the gas disguised itself as hunger. Don't fall for it! If you aren't on a PPI, get on one if you experience that. You will also be very fatigued. Mine lasted about 5 weeks, but it's all good now.

Look forward to your surgery and keep a positive attitude! You'll be alright!

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Hi

Just had my sleeve done Aug 17th. I was wondering how your RA has been since the surgery? I have RA and am off my prednisone and Dmard medication (Xeljanz) and was wondering when to go back on them. The weird thing about this past week is that my knees did not hurt AT ALL! The surgeon injected some kind of pain reliever in my incision sites and I guess it traveled to my knees as well. It would have been great if my tummy wasn't all cut up! Anyway, Just wanted to see how people are dealing with RA and the surgery.

cindy

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Hey Cindyluc! My doctor had me restart my methotrexate 25mg injector a week after my surgery. I am completely off prednisone now. But i am also on humera. Since getting sleeved in may my RA has been well managed. Only had 1 flare up since surgery. But i must say, the less I way the better my joints feel also. Best wishes to you!

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Glad to hear you are feeling well vgsmommy!

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Similar to RA, I have psoriatic arthritis. I was sleeved 7/8 and find that my joint pain has lessened. I was on Enbrel shots prior to surgery, but went to Otezla pills to try based on no side effects.. I should be taking 2 - 30mg a day and only doing one a day by choice. I don't want the progression of arthritis to grow otherwise I might not even need the meds.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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      Officially here for a long time, not just a good time💪
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    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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