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I have Arizona MercyCare (Mercy Care) AHCCCS Medicaid insurance. I have had Pseudotumor Cerebri (PTC) for three and a half years and I finally decided to look into weight loss surgery about 3 years after I was initially told to do it by my neurosurgeon to help the PTC. I started my 6 month physician monitored weight loss in March 2014. My weight fluctuated due to steroids and medications I was on for the PTC. Overall I lost 21 lbs, but one month I was up a few lbs. Because of that month, my surgeon's office said that was why I was denied the surgery. However, after speaking with the insurance appeals guy, he sent me what was sent to my surgeon's office:

"Failed physician-supervised exercise and nutrition program (with regular visits every 2-4 weeks). These must be documented in your doctor's progress notes. Exercise and nutrition programs must be for a cumulative total of 6 months or longer in duration. Details of low calorie diet and physical activity with accompany change in weight need to be documented in the medical record at each visit. Records must document compliance with the program and you must not gain weight during the program. The submitted notes do not show these"

So there are several reasons that I did not get approved. It looks like the surgeon's office needed to put more effort into their notes from my visits. Has anyone had to deal with this? It also looks like they are saying that I did not go every 2-4 weeks. I think the surgeon's office schedule my visits for the same date each month, which could be more than 4 weeks apart. (Usually there is a few more days from Nov. 1 to Dec 1 than 4 weeks). So what do I do? I've appealed and I am awaiting my appeal. My surgeons office has been horrible from the start. I had to start keeping documentation and now have the hospital's patient care person come with me to all meetings with the surgeon's office because of the lies and things that did not get done to begin with. They say they have changed a lot about the way they do their business after I made a complaint to the hospital and they lodged an official investigation. However, I still feel like this is going nowhere and I'm not sure what to do. I am in constant pain. I lost my job due to the PTC and haven't been able to hold a job since -- PTC requires a lot of sick days and doctor visits so it is hard to keep up with that and a job.

Does anyone have an appeal letter they would be willing to share with me? I am willing to share the letter I wrote as well if someone needs it. I don't know if it will work for an appeal though since I have not heard back regarding mine.

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Oh my! I am so sorry this happened to you. I don't have an appeal letter or anything but I wish you nothing but success in getting this resolved.

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1. I don't think they are saying you failed to keep the appts. The wording they choose is off but I think what they are saying is you failed physician-supervised exercise and nutrition program that has regular visits every 2-4 weeks. The reason they put the 2-4 weeks bit in parenthesis is because they are explaining what type of doctor supervised program it is.

2. If you are unable to work because of you illness, have you applied for SSDI? If not, you should.

3. Since the requirement is that you must not gain weight and you did. Your PC should have documented why despite your best efforts you did gain weight. Namely that you tried but the meds caused you to gain. So it seems the key item missing is that there was no justification for your weights gains noted.

4. You can go forward with the appeal, but unless you think your PC will add those justifications in there and advocate for you, it might be worth your while find a new PC. Unfortunately you may need to start this process all over again under the new PC unless you can document how you are in constant pain awaiting this surgery. Even then they may want proof that the surgery will solve the problem.

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Any update on this??? I have this insurance and was wondering something similiar about weight gain due to medication.. My dr noted it, but still a concern of mine.

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I have Arizona MercyCare (Mercy Care) AHCCCS Medicaid insurance. I have had Pseudotumor Cerebri (PTC) for three and a half years and I finally decided to look into weight loss surgery about 3 years after I was initially told to do it by my neurosurgeon to help the PTC. I started my 6 month physician monitored weight loss in March 2014. My weight fluctuated due to steroids and medications I was on for the PTC. Overall I lost 21 lbs, but one month I was up a few lbs. Because of that month, my surgeon's office said that was why I was denied the surgery. However, after speaking with the insurance appeals guy, he sent me what was sent to my surgeon's office:

"Failed physician-supervised exercise and nutrition program (with regular visits every 2-4 weeks). These must be documented in your doctor's progress notes. Exercise and nutrition programs must be for a cumulative total of 6 months or longer in duration. Details of low calorie diet and physical activity with accompany change in weight need to be documented in the medical record at each visit. Records must document compliance with the program and you must not gain weight during the program. The submitted notes do not show these"

So there are several reasons that I did not get approved. It looks like the surgeon's office needed to put more effort into their notes from my visits. Has anyone had to deal with this? It also looks like they are saying that I did not go every 2-4 weeks. I think the surgeon's office schedule my visits for the same date each month, which could be more than 4 weeks apart. (Usually there is a few more days from Nov. 1 to Dec 1 than 4 weeks). So what do I do? I've appealed and I am awaiting my appeal. My surgeons office has been horrible from the start. I had to start keeping documentation and now have the hospital's patient care person come with me to all meetings with the surgeon's office because of the lies and things that did not get done to begin with. They say they have changed a lot about the way they do their business after I made a complaint to the hospital and they lodged an official investigation. However, I still feel like this is going nowhere and I'm not sure what to do. I am in constant pain. I lost my job due to the PTC and haven't been able to hold a job since -- PTC requires a lot of sick days and doctor visits so it is hard to keep up with that and a job.

Does anyone have an appeal letter they would be willing to share with me? I am willing to share the letter I wrote as well if someone needs it. I don't know if it will work for an appeal though since I have not heard back regarding mine.

Send me your email address and I'll send you a copy of my appeal letter

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    • LeighaTR

      I am new here today... and only two weeks out from my sleeve surgery on the 23rd. I am amazed I have kept my calories down to 467 today so far... that leaves me almost 750 left for dinner and maybe a snack. This is going to be tough for two weeks... but I have to believe I can do it!
      · 0 replies
      1. This update has no replies.
    • Doughgurl

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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