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Pulmonary Embolism 20 years ago might be an obstacle...



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So I've been trucking along with all my appointments, completing everything but the endoscopy, one nutritionist visit and the sleep study. I met with the sleep study doctor today and he was very, very interested in the fact that I had a pulmonary embolism almost 20 years ago. I had a vena cava filter installed at the time and took blood thinners for six months and was told it all cleared up on its own. I see a vascular surgeon (and have for the past five years) who monitors the filter --- I just recently had a X-ray of it to make sure it hadn't moved (he actually was going to suggest removing it until I told him I was preparing for gastric bypass). Neither he nor the bypass surgeon had any real concerns about this history, they just said they would prescribe blood thinning injections pre-op and/or post-op for me.

Well today's doctor was very negative and thought I should reconsider the surgery given my history with the embolism. I was shocked by his overwhelming pessimism (he told me that it was probably impossible to have the filter removed since I've had it for 20 years--which is the opposite of what the vascular surgeon said) and that he wanted to order a whole new battery of tests (Ultrasound, nuclear medicine, echo doppler, PFT) in addition to the sleep study (which...I don't even think I HAVE sleep apnea) and extensive boodwork to see if I have any pre-indicators for clotting, and then see me again in a month.

Now I'm a bit worried about all kinds of things, and while I know it's better to be safe than sorry, it makes me worried/angry that the vascular surgeon and the bypass surgeon didn't seem nearly as concerned about this as he was. He did concede he might be erring too heavily on the side of caution, but still seemed very negative about the whole thing. He said if it comes back that I do have genetic problems, I should consider if it's worth doing the surgery or trying instead a medically supervised weight loss program. I tried to explain to him that my primary motivation for surgery is that it will severely minimize and maybe eradicate my diabetes, which diet/exercise won't do, and that I know regular diets only generally have a 5% success rate long term, but he seemed pretty skeptical about my claims.

I'm not sure what to do now. My husband thinks I should cancel all the tests he scheduled and go to a different doctor for the sleep study. But now I'm worried, and I'd rather know if there's a problem or not. But...I don't want it to prevent me from getting the surgery either.

It's just so weird to suddenly be worrying about a medical problem that happened 20 years ago, and hasn't really been an issue since.

Anyone have any embolism history that put obstacles in their way to surgery?

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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    • KimBaxleyWilson

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