Anyone Suffer From Pseudotumor Cerebri?

[LilBoo007 491]

Im close to 4 months, had my RNY on 3-13-13. I have gone from 216 down to 161.... You would think with that much of a weight loss I would have relief. My sister had it as well but is also obese. So I think that is why he didn't think it was hereditary. But in starting to think he's wrong. He told me if it was hereditary weightloss wouldn't help. I've heard when you loose a little as 20% of your body weight you should have relief...

[JPrez10706 17]

That's a great weight loss. There are skinny people who have this condition, so sometimes it's not based on being overweight. Would you ever consider the shunt?

[LilBoo007 491]

Most definitely. I will be talking about that with my Neuro I aug if no changes!!! I need relief!

[JPrez10706 17]

Hey lil boo! Was just checking in to see how you have been doing?

[LilBoo007 491]

Still fighting these Migraines and headaches and my eye pain is worse

[JPrez10706 17]

That's terrible. I'm so sorry to hear that. I was hoping for some relief for you and good news.

[LilBoo007 491]

I'm still hoping in time it does go away.. I will keep u posted and updated! I have an appt with my Neuro on aug 8th and will let you know how that goes!

[LilBoo007 491]

Hey J, things seem to finally be looking up ! The headaches have become a lot less frequent going from every day down to maybe 2 days a week... My eyes don't hurt much anymore either! Had an appt with my Neuro and he said from looking at my eyes he could see my pulse which meant my csf pressure was normal!!! He put me on an daily pill to keep Migraines at bay but thinks the ptc is going into remission from the weight loss!

[JPrez10706 17]

That is fantastic news! I'm so happy for you. You must be so relieved. You look great too!

[LilBoo007 491]

It makes me very happy!! I just hope to get the Migraines down to zero!!! And thank you for the complement !! I feel fantastic !

[LilBoo007 491]

Hey JPrez, well it seems as tho it may be returning already : ( having all the symptoms again and Migraines getting worse... So today I did something I've wanted to do for a while to lift my spirits when I'm down and to help raise awareness for a cure someday!

Hope you like it as much as I do !! It's the awareness ribbon for IIH or pseudo tumor cerebri .. They just renamed it for some reason!

[JPrez10706 17]

I do love the tattoo! But I hate that your symptoms are back. Did you have any med changes?

[LilBoo007 491]

He upped my Diamox to 1,000mg a day and finally feeling some relief! He also has me on 20mg of Lasix and an anti-migraine pill called Propranolol.

[JPrez10706 17]

Hey Boo! How are things going?

[LilBoo007 491]

I'm doing pretty well !! As long as I stay on my meds I seem to do fine, if I miss a few days my headaches and other symptoms come back. But I can't complain since at least it's finally being well managed! How is everything going with you?