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heading back to OHSU



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Crystal, sorry it took me so long to find this thread, I really haven't been posting / reading alot lately... busy busy busy.

I too have faith so tell DH that makes 3 ...... and it seems that 3 is a good number for you :confused:

I know the next few weeks will be tough but they will go fast.... you've waited this long.

You'll be in my prayers sweet Lady as well as your doctors :P

.

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It looks like the 3rd trip to OHSU was the ticket for me. I had high numbers all around!

I've been in a very deep Low since my last trip out there for the last Dex/Crh supression test. I don't every have to take this test again, which is a good thing. Whenever I take the first dose it puts me into a minor coma. like clock work, 90 minutes after taking it, I'll be comatose for about 4 to 5 hours, then I'll wake up, but I'll be really tired.

So, I've been Low, which means NO ENERGY. sleeping most of the time, but the acne dries out so that's a plus :)

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Crystal, I think I might have missed an update somewhere. What's next for you? Are we planning Pitunia's going away party? You were on my mind in Disney, I saw a family with an older teen son and they were really close, you can just tell sometimes. He was missing school and the parents were enjoying every second of him being there. It made me think of you and your spudboy, I don't know why but it did. I hope things are coming together for you. (((hugs)))~Mandy

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Dr. L took my case to the Tumor Board Friday. So hopefully I'll be looking at brain surgery very soon. I was in the ER last week and the ER Doc said that according to the reports and notes faxed from OHSU, he said I was looking at surgery in October! :) He wanted to talk about the transsphenoidal (up my nose with a rubber hose) technique, being a geeky doctor, but he had to go take care of a broken leg.

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I think I would rather them go up my nose with a rubber hose, then to try something tribal like up my butt with a coconut. ~Mandy

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oh that is too funny! I actually wrote a limeric about it, and I never write them...

There once was a woman from Bellevue

Whose brain was brought into view

It’s done transsphenoidal

At least it’s not hemorrhoidal

And her tumor was sucked out like goo

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
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    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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    • bellaamey

      https://alluniqueguide.com/java-burn-coffee-reviews/
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