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Sleeve Surgery And Dermatomyositis



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I have been diagnose with dermatomyositis/dermatomyositis sine myositis and will be having sleeve surgery in August my Surgeon told me the sleeve surgery might worsen my condition and I need to know if anyone knows about this disorder and the sleeve surgery does anybody have this condition and has had sleeve surgery. I have type 2 diabetes and fatty liver. My actual weigtht is about 220, I have lower back problems and i have reumatoid Arthritis. I was told most of these health problems will go away once I have the sleeve surgery but on the other hand the auto-immune disorder may worsen. I need to be well informed. This is a hard decision and I am running out of time. I also need info on how the surgery has worked for all of you and all the info i can get will be of much help I'm sure I'm not the only one with questions and fears. Please send me all the pros and cons I need to be well informed. I just want to make the best decision for my own heath. Thank you all and I will be waiting for you information.

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Ii don't have that, so I'm no subject matter expert, and by no means am offering medical advise. So maybe doctor is worried about nutritional needs not being met? Was is your surgeon or the doctor who made the diagnosis the one who gave you the info? If you have any concerns at all I would speak with the specialist who diagnosed you.

From my understanding it can cause atrophy in the muscles, joint pain, and other symptoms. Are you on extra Vitamins? With my ms I'm on daily Multivitamin and since starting my multi Vitamin and my ms therapy I have improved greatly.

I am not sure how this perticular desiease progresses, but with muscle atrophy and joint pain, Water aerobics are great because no pressure in the joints, but there is resistance from the water. Also when the clearance for exercise is given maybe start with very simple yoga to stretch and strengthen muscles. Low impact to help with pain. I wish I could help more... And I wish you the best with your journey. There is a thread on here about lupus. That may have some more info. Auto immune desiease are all so different, but I really hope some of my answers helped.

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My daughter was diagnosed with dermatomyositis about a year ago and I researched it as much as i could. Any stress can aggravate or cause a flare-up, which is what your doctor must have been referring to. If you are in "remission", a flare-up may occur post-surgery and require meds such as prednisone to suppress the rlare-up. I would ask your rhematologist if that were to happen, could you delay the steroids until your stomach has healed completely without any ill effects. I think the benefits of the weight loss would help you deal with less health concerns overall and be worth it overall. Just work closely with your rheumatologist - if they aren't supportive, find another rheumatologist! Good luck.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 0 replies
      1. This update has no replies.
    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
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    • KimBaxleyWilson

      Three months and four days ago... I was in Costa Rica having a life changing surgery! Yesterday we had a followup visit with Dr. Esmeral via video chat and this morning my middle number changed.  I'm down 47lbs and two pants sizes. I can wear a Large tshirt for the first time in like... 14 years! Woot!! Everything is going great. I have zero regrets. I went down to the riverwalk with a friend and walked 2 miles on Monday without even getting fatigued. And no more snoring or chugging pickle juice for crazy leg cramps! I need to go to the gym more... I'm making new shirts next week so that will motivate me. LOL But I'm also just not as TIRED all the time! I have a LONG way to go...but seeing the progress on the scales and in the mirror is a huge motivator!! Thank you all for cheering me on and supporting me!!
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    • bellaamey

      https://alluniqueguide.com/java-burn-coffee-reviews/
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