Complications

[CrazyCatLady 130]

To answer a few questions:

I have no personal or familial history of blood or clotting disorders. I do use chemical birth control (NuvaRing) to have periods - otherwise, my PCOS is severe enough that I go months without a cycle if I don't have chemical help. I have a hematologist following me while in the hospital, and basically indicated (not in so many words) that portal vein thrombi are not related to use of hormonal birth control ( which mainly effect clots in extremities), so I basically am a puzzling, fluke case.

I am currently on continuous IV Heparin infusion of 1900units per hour. I started taking oral Warfarin tomorrow, and as soon as the two balance, I am will be bridged over to using just the oral Warfarin, probably for the next 6-12 months. I will need another Abdominal/pelvic CT in 3 months to ascertain the status of my clot.

Thank you for your outpouring of support and prayers! Any other questions you have, I am happy to answer or I can be PMd.

[CrazyCatLady 130]

To answer a few questions:

I have no personal or familial history of blood or clotting disorders. I do use chemical birth control (NuvaRing) to have periods - otherwise, my PCOS is severe enough that I go months without a cycle if I don't have chemical help. I have a hematologist following me while in the hospital, and basically indicated (not in so many words) that portal vein thrombi are not related to use of hormonal birth control ( which mainly effect clots in extremities), so I basically am a puzzling, fluke case.

I am currently on continuous IV Heparin infusion of 1900units per hour. I started taking oral Warfarin tomorrow, and as soon as the two balance, I am will be bridged over to using just the oral Warfarin, probably for the next 6-12 months. I will need another Abdominal/pelvic CT in 3 months to ascertain the status of my clot.

Thank you for your outpouring of support and prayers! Any other questions you have, I am happy to answer or I can be PMd.

[chitowngirl 885]

Praying for you...

[Mews 37]

Well it sounds like you are in good hands at the very least. You may still want to get the genetic testing done if your insurance will cover it. It's amazing how many people there are out there carrying things like Factor V Leiden and they don't know it until they have a major event.

Good luck to you and I hope things go well for you.

[Ailly 32]

Hang in there! Thoughts and prayers your way!

[renay 0]

I am praying for a speedy recovery. I'm sorry ur having such issues. Hang in there.!!! positive thoughts always help God bless.

[paulsgirl1297 18]

Wow, I am praying for your recovery ?

[paulsgirl1297 18]

I have a blood clotting disorder ( factor v Leiden) and I'm now worried a bit about this condition . Mine is only supposed to cause problems during pregnancy which is how I was diagnosed after having several early miscarriages

[Mews 37]

I have a blood clotting disorder ( factor v Leiden) and I'm now worried a bit about this condition . Mine is only supposed to cause problems during pregnancy which is how I was diagnosed after having several early miscarriages

Check with your hematologist. He/she might want to put you on low-dose heparin for a bit after the surgery to prevent a clot. Unfortunately, I have Factor V and I did develop a clot.

[CrazyCatLady 130]

Still in the hospital - now am hoping to be out by Friday. Hematologist ordered a whole slew of lab work for the am, including genetic clot determinants, a variety of auto-immune disease markers (Lupus, Sjogrens, others), and some other random tests. I did not get to see the list, it was read for verification once just inside my hearing....I'll give more info when I have it.

Abdominal ultrasound reveals my current PVT to be stable, which is good news, that being said, I am having rather persistant pain due to the back-pressure of blood and fluids into my spleen via the partially occluded portal vein. The surgeon that is following me had an earnest conversation this morning regarding the status of my over-pressurized spleen. Even though my spleen checks out fine now, I am still at risk for spleen infart, damage and/or death, as long as that clot exists.

I have started my Coumadin, but my INR is raising at a crawl. Thank you for your continued prayers and thoughts

[LaceyD 64]

Sending prayers your way!

[Dooter 1,457]

Still praying...

[paulsgirl1297 18]

Check with your hematologist. He/she might want to put you on low-dose heparin for a bit after the surgery to prevent a clot. Unfortunately' date=' I have Factor V and I did develop a clot. [/quote']

Hmm ok, I know he's gonna do the leg massage things and blood thinners at the hospital but I'm not sure how long I will be on them, I already take a baby aspirin. When I have surgery they alway do a PT test and it I can't do surgery until I pass it ..something about blood clotting time, maybe I should ask him about that ...now I'm getting a little worried like maybe I should consider this clotting disorder a little carefully

[Lissa 2,631]

Paulsgirl, I had a major DVT (deep vein thrombosis) in my leg 3 months before surgery. Because of that, I had to have a filter installed and removed, plus take lovenox shots pre and post op. I also have spent the last 9 months on warfarin/Coumadin because of this clot. I'm currently on a trial off the coumadin to see if my D-dimer comes back okay next week. I'm hoping and praying that I can stop taking coumadin.

You may want to discuss your clotting disorder with your surgeon and your GP or PCP before surgery.

Still praying for the OP.

[nabird77 29]

Definitely praying for a quick recovery! Keep us posted - and stay positive!