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Fibromyalgia and or Chronic Fatigue Syndrome



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Just wondering if I'm the only one here. :unsure:

Renee`

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I too have fibro and was sleeved in Nov 2010. Have you been sleeved yet?

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I too have fibro and was sleeved in Nov 2010. Have you been sleeved yet?

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No, I go in on the 25th to Dr. Aceves. I'm excited and scared like everyone else, but I'm really more afraid of going into a flare afterward. I have severe Fibro / CFS and even on my best day it's not great and I have a hard time because of the pain. I'm on Hydrocodone 7.5mg every 4 hours, 300 mg of Lyrica twice a day and 35 mgs of Effexor, all for Fibro. I never was depressed, just in horrible pain like someone is pouring acid in my muscles. Since they'll be going through muscle to get to the tummy...*groans* I'm really scared. Any advice?

Renee`

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Did they help you alot with pain management after the surgery? I'm worried about the waking up part, although I guess NOT waking up would be worse LOL

I think I'm just experiencing what everyone does before they undergo any surgery, with the added worry that my body is going to be screaming in pain. I really REALLY (can't put enough "really's" in there! lol) don't want my muscles to feel like acid is flowing through them again. I'm kinda screwed because my Rheumatoid specialist says I'm at the end of the line, there is nothing more they can do for me and this isn't acceptable to me which is why I'm choosing surgery, to see how much of the pain I can take away. I've heard conflicting reports back but I'm willing to take my chances and place my bets (I'm a Vegas girl, we bet on anything ;) ) and do it.

Thanks for any info you can give!

Renee`

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I have Chronic Fatigue Syndrome & Fibromyalgia too. I used to take lots of meds & gained weight.... I got tired of not "feeling" like myself & went cold turkey. Some mornings I wake up & get everything done on my to-do list... Others days it hurts to even attempt to roll over in the bed.... However, I'm still determined to have this procedure(scheduled for July 1st w/ Dr. Aceves). Somehow, I think the weight loss will help decrease some of the pain I feel. I just hope I don't have a really bad flare up once I get the procedure. I look forward to hearing other experiences with the sleeve & Fibro/CFS...

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No, I go in on the 25th to Dr. Aceves. I'm excited and scared like everyone else, but I'm really more afraid of going into a flare afterward. I have severe Fibro / CFS and even on my best day it's not great and I have a hard time because of the pain. I'm on Hydrocodone 7.5mg every 4 hours, 300 mg of Lyrica twice a day and 35 mgs of Effexor, all for Fibro. I never was depressed, just in horrible pain like someone is pouring acid in my muscles. Since they'll be going through muscle to get to the tummy...*groans* I'm really scared. Any advice?

Renee`

Hi Renee, I'm in a similar boat. My fibro pain is not as bad as yours :( but my fatigue / brain fog can be really terrible. I also have sleeve surgery on May 25th and am scared it'll knock me back to where I was before I began to slowly recover. You're not alone! Tho I don't have any helpful surgical advice for you since I haven't had it yet either :)

But one thing I can recommend is the book _From Fatigued to Fantastic!_. Thanks to doing some (but not all) of the suggestions in that book, I feel MUCH better. I got a diagnosis thanks to that book... and got put on some stuff to help me sleep, sleep better, and also diflucan for chronic sinusitis/possible gut dysbiosis, as well as taking d-ribose and magnesium for muscle pain. These treatments have helped SO much. The book is totally no-nonsense, almost all recommendations are backed up with multiple research studies, and hopefully it will help you the way it's helped me!

I am still terrified that I'll get knocked back to where I was due to the stress of the surgery... but I'm crossing my fingers it won't be so bad. And anyway, now I know how to help myself heal. But I still don't want to go back to here I was :(

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Ooh, oopsie. Nevermind my earlier post, you've already found ybnormal! Lol. You even have the same surgery dates, so it's kismet. I'm sure you will both do great!!

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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