Jump to content
×
Are you looking for the BariatricPal Store? Go now!

Share Your PCOS Knowledge, Please



Recommended Posts

Hello Lady's I need some info on PCOS and who better to ask than women that have lived it.

Here is my situation. About a yr ago I confirmed I had several cysts and fibroid (PCOS). But as the doctor put it "none where in a location to cause immediate alarm, and removing them would cause more damage than help". They put me back on birth control and sent me on my way. It has now been a year and I just had a follow up ultrasound 2 weeks ago. I received a letter that said that the fibroid has grown but "no further evaluation/treatment is needed". WTF?! Is that it? Is that "normal"?

I have a follow up with my doc in 2 weeks but its to check my progress on a diet pill she prescribed (Meridia, which by the way is not making a big difference). I'm trying to get as much info as I can so I can make sure that my PCOS is being treated correctly. So that is hopefully where you lady's come in, please tell me your experiences and treatments (Good or bad). I am 31 yrs 275lbs. and luckily have no diabetes, high blood pressure or heart problems yet... :cursing:

Share this post


Link to post
Share on other sites

Hi!

I was diagnosed with PCOS probably 5 years ago. My husband and I were going through fertility treatments when my doctor found a large cyst durring an ultrasound. I had to stop taking my clomid until it was checked out further. He thought that the cyst may have to be removed b/c of it's size and he wanted to make sure it wasnt cancerous. I was refered to someone else who after an MRI and an exam advised that there was no need to remove the cyst at this time that it wasn't harming me and had probably been there for a long time. I have friends however who have had them burst? and it has caused a lot of pain in which they have had some removed... I guess it just depends on your situation and your body. I wouldn't worry too much. If you are really concerned you could always get a second opinion. In my case I was lucky to have two doctors review the information and they both in the end decided that I did not need to have it removed.

Share this post


Link to post
Share on other sites

There is SOOO much more to PCOS than just ovarian cysts. The hormone imbalances can be a nightmare; if your doc hasn't sent you for bloodwork, find a new doc ASAP.

Share this post


Link to post
Share on other sites

I agree with L12 PCOS is a lot more than just Fibroid's or Cysts. I've been living with this since I was about 17 years old (now 30). I've had the cysts, then they resolved, then they came back, they resolved again. I've had intermittent bouts with high blood pressure and insulin resistances. I've been Type 2 Diabetic for about a year now. Along with abnormal Hair growth and my biggest nemesis Infertility. The best advice/treatment anyone can do to remedy the situation is weight loss. I'm hoping to be banded in October, and with hard work and a lot of determination, I will hopefully say good by to PCOS FOREVER....

Don't let them label you with PCOS, just from a few cysts. BCP will help with the cysts though. Good luck in your journey also...:rolleyes2:

Share this post


Link to post
Share on other sites

As everyone said above the cyst are just one factor for pcos. I have had it basically forever wasnt dx until I got married and ttc. I had many years of fertility treatments and many unsuccessful cycles. I finally did the surgery after 7 years of tx and nothing working and the dr told me that I was tooo overweight to get pg it would be dangerous. I am thank g-d pg now still early but I am thrilled. btwn loosing weight and going to the chiroprachter I got pg naturally.

Share this post


Link to post
Share on other sites
Hello Lady's I need some info on PCOS and who better to ask than women that have lived it.

Here is my situation. About a yr ago I confirmed I had several cysts and fibroid (PCOS). But as the doctor put it "none where in a location to cause immediate alarm, and removing them would cause more damage than help". They put me back on birth control and sent me on my way. It has now been a year and I just had a follow up ultrasound 2 weeks ago. I received a letter that said that the fibroid has grown but "no further evaluation/treatment is needed". WTF?! Is that it? Is that "normal"?

I have a follow up with my doc in 2 weeks but its to check my progress on a diet pill she prescribed (Meridia, which by the way is not making a big difference). I'm trying to get as much info as I can so I can make sure that my PCOS is being treated correctly. So that is hopefully where you lady's come in, please tell me your experiences and treatments (Good or bad). I am 31 yrs 275lbs. and luckily have no diabetes, high blood pressure or heart problems yet... :biggrin:

The best place you can go to is www.soulcysters.com it's a great site yu can find any and all answers there!!!! GOOD LUCK!

Share this post


Link to post
Share on other sites

I found out I had PCOS when I was 22. Until about a year ago I was only taking medication aka birth control, and I wasn't very faithful with it. I had one ultrasound done at the beginning and it was meds after that. About a year ago I started having side pain and very, VERY heavy bleeding that started in Aug and lasted until Feb, when they put me on Yaz. During this time I had two ultra sounds done...fun. This is when they notice two cysts on both sides. When the meds didn't reduce the size of the cysts the only option was surgery. I had my right cysts removed in April (it was the size of a large grapefruit) and the left cysts was gone? Even though the cysts on the left was half the size of the right it was most likely an ovulating cysts and nothing to worry about. i haven't had any problems. They estimated the cysts grew within 6-8 months The funny thing is that the bleeding and pain were two different issues, but if I didn't have one problem i may have never got the cysts removed.

I don't know if this helps. but taking the birth control is important so what happen to me doesn't happen to you. Do they have you on metformin? I take metformin for blood sugar and body hair issues. this is a common med for PCOS patients.

I'm 34, 272 lbs. I haven't had lap band yet but I hoping it helps. I know if my weight is reduced I won't have to take the either of these pills. And since I'm 8 different meds if would be nice to get RID of the them!!

Good Luck.

Share this post


Link to post
Share on other sites
The best place you can go to is www.soulcysters.com it's a great site yu can find any and all answers there!!!! GOOD LUCK!

Ditto, that is a great site to find answers and get support. Good Luck, hope you find the answers your looking for and a doctor that will give you the answers/treatment you need.

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Recent Topics

  • Most popular:

  • Recent Status Updates

    • allwet

      Coffee and Tea drinkers Rejoice
      https://www.nature.com/articles/s41598-019-45540-1
      · 0 replies
      1. This update has no replies.
    • CJ.  »  BrendaIsela

      Did you go through with the DS? How are you making out?
      · 0 replies
      1. This update has no replies.
    • MrsGamgee

      Well, long time no see. 
      It's been a rough couple of weeks. I should have been expecting the other shoe to drop after having it so easy for the first three weeks post op. I was getting my water and protein easily, had no pain, nausea, or vomiting.
      But as soon as the soft foods really started in earnest I started having problems. Pain, foamies, slimeys, vomiting galore. There doesn't seem to be a rhyme or reason to it. Something that I ate easily yesterday causes pain and vomiting after the first bite today. Sometimes it's my pills, other times they go down easy. I just don't get it. 
      I'm trying to stay positive. I know this is a season in my life, and things will eventually even out. I'm just so tired of being afraid to eat, not knowing what kind of response my body will have. I'm mostly hitting my protein target, thanks in large part to protein shakes (which I hate, but look at as medicine). I missed my water targets by a lot over the weekend, due mostly to feeling awful, which I know is a terrible cycle... throw up, don't feel like drinking anything, get dehydrated, get constipated, feel like crap, repeat. 
      The three-week stall is also still here. I thought I had busted through it, but I've been bouncing between 216-219 for the last two and a half weeks, which is a contributing factor to my mood and frustration level. And add in wee-lings who are going crazy with end of the school year insanity, friends with busy schedules who I haven't been able to see in weeks, and I'm an unhappy girl. 
      Things will turn around. I know they will. Just not feeling it at this moment. 
      · 7 replies
      1. ms.sss

        hope things get better with the slowing down and the water-prioritizing. keep us posted :1007_hearts:

        small tip: I used the timer on my watch religiously between bites in the early days (actually I still do, but I'm a lot less rigid about it now), it really helped keep the foamies/slimies/pain/barfing at bay by helping me slow down.

      2. FluffyChix

        Oh wow. Just read of your struggles! So sorry to hear it hon! ((hugs)) It's no fun when the stalls hit, makes bearing other parts of this journey really tough. Added to the fact that most of us experience mood swings/sadness that is usually transitory for most of us. But it still just makes it that much harder.

        I promise the stall will break. If that helps? ((hugs))

        Also, maybe concentrate on upping your water and hitting it consistently? The reason I say that is cuz it will make eating that much easier/pleasant. And the up side to that is with every real meal you have, you're training your tool to accept solid foods again. And being well hydrated makes your pouch less "tricky" and finicky. You know?

        Try varying the temperature of the fluids you drink. I remember cold water was not my friend. I did better on room temp or warm liquids.

        Also, the protein drinks may be contributing a little to your stall. I know I lost better after I really reduced them to very little. I'm very IR, and whey protein isolate is very insulinogenic.

        Hang in there. I promise, in 2-3 weeks, things will feel so much better!!

      3. MrsGamgee

        Thanks @FluffyChix! I know the stall will break, it has to eventually given I'm only consuming 700ish calories a day and I am trying to be active every day. I confess it's hard to be motivated to go for a walk though when I feel like crap.

        Cold water seems to be better for me right now... icy anything makes my tummy happy. It's when my water gets to room temp that it is harder to get down. But I am committed to getting my water in. It's so funny, before surgery I never had a problem with water. Today I decided that I won't count my 'other fluids' as part of my water total... they have to be over and above my target.

        I'm looking forward to lowering my reliance on the shakes. I really don't like them. I got clearance with my RD to cut back on them, provided I can hit at least 80g of protein without them. But I haven't been able to manage that just yet. I'm hoping in the next few weeks, provided I can get real foods to go down and stay down.

        Thanks for the encouragement!

      4. FluffyChix

        80 grams without protein shakes at your stage feels very ambitious IMHO? Are you sure she didn't mean 80g including protein drinks and food sources?

        We all heal so uniquely! :( Don't rush advancing. I know it's hard not to, but your tum will heal easier if you just listen to it and what it will and won't allow for the day.

        Gosh I so get the motivation of the scale!!! ((hugs)) With one reading I can determine my mood for the day. LOL. Then I wait a bit and have a nice poop. ;) haha Mood restored. ;) I'm ever just one solid poop away from a good mood. hehe

      5. MrsGamgee

        She was pretty clear... I asked about cutting back on them last week and I'm guessing she wanted to encourage me to continue with the protein shakes without actually saying so. Making it my decision. I have 2 shakes a day, plus some protein powder in my breakfast, so I'm hoping to maybe drop one shake a day in a couple of weeks. I'm really not into the lack of satisfaction they provide for the calories they take up in my daily totals.

        I *know* that this is just a step on the road. I need to put on my big girl undies and deal with it. And I need to really learn to listen to my body and not push too far too fast.

      6. View All Replies
    • dmadms  »  ARMoma45

      I saw the post where you were denied the first time because you lost to much weight.  How much did you lose?  I lost 1 # my 2nd month and 6# my third month and scared to death I have screwed up.  
       
      Thanks
      Dana
      · 1 reply
      1. ARMoma45

        I lost 11% of my body weight and they wanted me to fail to lose 10%. I even called the insurance company and asked them to clarify because the wording was confusing. I didn't know if they wanted me to lose the 10% or fail to lose the 10%. I was told to lose 10% so I did and apparently the person that I spoke to wasn't correct. But also this was in December and my company was scheduled to change to a different division of BCBS after the first of the year. So that probably played more into the denial than anything.

        I continued my monthly visits and they clearly showed that I plateaued about month 5/6 and began to regain. I originally lost from 333 to 298 and regained back up to 330 but have now lost back down to 318.

    • allwet

      · 1 reply
      1. Orchids&Dragons

        As a tea-a-holic, I'm happy to hear this. Thanks!

  • Trending Topics

  • Together, we have lost...
      lbs
    ×