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I have a kinked/twisted tubing situation.



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I had it confirmed yesterday that I will have to have a second surgery to unkink/untwist my tubing. The surgeon wanted to see the twist himself and he said out of the over 2,000 patients he has had, he has only had 2 cases of this happening before mine. So I am waiting on his staff to get the surgery approved via insurance before we procede. He is just going to cut out a length of tubing and then re-attach it back together. I guess my torso was too short for the amount of tubing that was put in.

Fun Times! :smile2:

Good note is I have hit the 50 lbs lost point. I am counting the 10 I lost before the pre-op diet and everything after that! I am still losing even though I only have 2.8 cc in my band!

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Hi rondawood63! Sorry you are going to have to have another surgery. How did you know you had a twisted tube? Did you have any symptoms or pain?

Good luck with your surgery and take care.

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Well, we didn't find it until my first fill. The nurse handling it was able to get the first fill in by standing me up at an angle. She saw it then and stated that if we can always get the fill in and some retracted out I would be fine if it stayed kinked. Well, I then went for my second fill and it was a no go.... We got some in, but she could not retract any back out. So they stopped at only .8cc incase I got too restricted. They would have had to do more of an emergency situation surgery.

I think I know when it happened. I was driving to work on a.m. early (about 4 weeks post op) and I was getting ready to make a left hand turn (which I had done numerous times before). Anyway, I felt something kind of pull in my port area and for the next couple days that area was tender and then it went away. So I didn't think anything about it. Well the surgeon thinks that is when it twisted.

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Just curious, if turning your body can kink the tubing with the band, then why would somone what to continue with this. All i see is people complaining that the port detached, the port is facing the wrong way, the tubing is kinked...if it is inside of you why wouldn't you ask for it to be tacted into place? Is it even possible? That would make me nervous if my own normal movements could cause such a problem

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the surgeon said it wasn't the movement I made that made it twist. Just something in the abdominal wall or organs that caused it to twist and that I had too much tubing in my torso for my height. He also stated out of the more than 2000 patients he has done this surgery on, I was only the third person to have this happen.

I just see this as something that happened and I have to get it taken care of. I am not blaming the surgeon on this at all. It was a fluke and it happened to me.

Sometimes bad things happen and you just have to decide to go on or give up. I always go on!

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My tubing is supposedly kinked too... I am self pay and can't afford the revisions surgery right now, but would be really interested to know how this goes for you. My last fill was this enjoyable experience of manipulation of my still huge belly, but I guess as long as they can retract the excess I am going to be fine.

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Okay, my unkinking surgery was this last Wednesday, August 27th. It went well, except for being kept waiting for emergencies that were placed in front of me.

My surgeon used the same incision areas as before minus 2. So I only had 4 incisions. Surgery took longer than he predicited. I will find out this week why as I did not see him after surgery. He was called into another emergency surgery after mine.

Recovery was SOOOOOOOOOOOOOOOOO much easier this time. I was push mowing my yard the next afternoon! :tt2::thumbup::thumbup:

I go for my post op appt this thursday to see how things are looking. And move on from there!

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Hi there,

Sorry to hear about the kinked tubing. I never heard of that before. How did the post op visit go? I had a 2nd surgery too, gall bladder. He reused 3 of my old incisions and one new one. Have been wondering how you were doing. Glad you sound like you are doing well now.

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So glad to see this post.

I saw my doctor this past Thursday for my 2nd fill. He couldn't get a flash of the blue dye back out which is how he "confirms" the fill went well.

He did think he accessed my port and 1+ cc's went in band. He said when there is a kink; Fluid can go in, but won’t come out.

In 4 weeks I will see him again and if the same thing happens I will go in for x-rays.

I'm glad to see your recovery was easy!!!

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

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