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Interference with the band?



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Ok this will be long but I have to explain.

I have Diabetes Insipidus. It a rare form of diabetes, it's called the Water diabetes. It falls in the catorgory of diabetes because of the symptoms of thirst and frequent trips to the bathroom. I have had it since age 11 and I am now 38 years old. I got it from head trauma. I fell down 4 flights of stairs and landed on concrete, went to the hospital got only 14 stitches and thought that was it. Nope 2 years later I started drinking HUGE amounts of Water started out 2-3 gallons a night and I never caculated the day time but it could be about the same. With the getting up to go to the restroom every hour at night it affected my sleep, then my school time, and of course daily activities. I would turn the heat up to 90 and put my blanket over the register because I was cold. All the symptoms of Diabetes but what kind if not sugar right. Well that was the 2 week hospital stay to find out. After a specialist was brought from out of town they found out it was diabetes insipidus, since I was so young the doctor expalined it to me like this :thumbup: there is a little man in your head and when he is awake he is telling you, you are thirsty very thirsty but when you spray this medicine in your nose it travels to your brain/head and puts the lil man to sleep and then you won't drink or go to the bathroom so much. (yes for years I thought there was a lil man there LOL) So in short I can drink becasue sometimes if I have mucus in my nose and I take my medicine sometimes it won't take affect becasue it has to absorb in that bone in my nose...so here's my problem.....

Since surgery my medicine has worked half the time so I am very thirsty and I can drink to the point of throwing up before all this but I was satisfied right, well now I can't I have to think about the band and it's slippage. No one really understands what this feels like unless they have this desease. I try to control it but it's so hard. Getting liquids down is not a problem it the massive amounts when my medicine does not take affect Ugh! Should I consult the Endo doctor and make him aware of me getting banded maybe he might know something. I did find that there was a pill form maybe I might look into that. Ok just wanted to share was all.

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Thanks for sharing that. I had never heard of diabetes insipidus until this past year in school ( I am a nursing student) but from what I remember it is a hormonal issue. I hope that you are able to find a medication that keeps it in control and that it doesnt affect your band surgery. Good luck!

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hormonal issue? No it's from head trauma. The replacement I take is hormonal medication but it can't be fixed the damage is already done.

I think I will call the Endo doctor. It's good though that they are mentioning DI to newer students do you know how many times I had to explain DI to a doctor :thumbup: :thumbup:

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A lil FYI-

Excessive urination and extreme thirst (especially for cold Water and sometimes ice or ice water) are typical for DI. Symptoms of diabetes insipidus are quite similar to those of untreated diabetes mellitus, with the distinction that the urine is not sweet as it does not contain glucose and there is no hyperglycemia (elevated blood glucose). Blurred vision is a rarity. Signs of dehydration may also appear in some individuals since the body cannot conserve much (if any) of the Water it takes in.

The extreme urination continues throughout the day and the night. In children, DI can interfere with appetite, eating, weight gain, and growth as well. They may present with fever, vomiting, or diarrhea. Adults with untreated DI may remain healthy for decades as long as enough water is drunk to offset the urinary losses. However, there is a continuous risk of dehydration.

And I have 1 of the 4 types Central DI

Central diabetes insipidus is due to damage to the hypothalamus or pituitary due to a tumor, stroke, neurosurgery or some rather rare causes (which include hemochromatosis, sarcoidosis, histiocytosis, diseases that can form masses in the vicinity like a tuberculoma or syphilis and some genetic disorders). If the hypothalamus is damaged, the feeling of thirst may be completely absent.

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Thats why I thought hormonal....the hypothalamus and the pituitary are two places where hormones are released. Thanks for the info!

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      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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