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Consider cortisol first



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Okay so I have been following but not posting much for a little while. I have been frustrated, feeling like I don’t have much advice to offer others because I have been searching for my own answers and very embarrassed about my weigh gain.

Anyways, for those of you who don’t know me, I had my surgery March 9, 2021 at 235 (5’8”). I lost pretty steadily down to 169 but then stalled for months on end until my appetite came back and I started gaining and continue to gain. I have been struggling uphill while searching for answers ever since.

The bariatric team blames my psyc meds but the prescribing dr claims they are weight neutral meds. My family dr agrees and showed me an article about the cravings they cause but he ordered thyroid and diabetes tests too which came back fine but I continue to gain so I made an appointment with an endocrine doctor thanks to a few people on here who suggested it.

I finally just seen the endo doc and My cortisol was elevated on the suppression test so I just completed the two day saliva test which hopefully will bring some more answers but what they have said so far is that it’s probably sub clinical cushings which takes a while to confirm.

I thought about waiting until I had more info but they said it will be another two or three weeks for these results and I may need more tests after that. I guess MY diagnosis is not really the point anyways. My point is I have recently learned of three things that could be the culprit of my weight that were never tested before surgery and I wonder why they don’t mention these tests pre surgery. I mean They are simple blood tests.

I even googled to see why the cushings thing isn’t investigated since it doesn’t resolve with bariatric surgery and all I could find was one article that said it is of course suggested if you present with any of the classic symptoms but in terms of a blanket requirement for people considering bariatric surgery this person felt it unnecessary because it’s not extremely common. I guess maybe that’s the view of my doctor too but I sure wish I was presented with the option at least.

I am just curious whether these are things that are tested or even brought up by other people doctors prior to surgery or what others think about whether they should be. And perhaps to give some people things they can investigate first if they are on the fence about surgery. I just feel like the surgery was never going to work for me because it seems likely that the root of my issue is still there. I am maintaining SOME of the loss but according to what I understand about what I have read so far, left untreated I will steadily continue to gain.

I know this is still up in the air and not a super common thing regardless but I can’t be the only one struggling with this pre or post surgery and I hope my experience can help someone else struggle just a little less cause watching everyone around me try to be polite as I slowly put the weight back on has felt even worse than being obese was to begin with. I am trying to hang In there for answers and give myself grace but it’s hard to not feel like a failure as I continue to gain and everyone now knows I had surgery and of course I have to wonder if I blew my one shot at surgery because I am doing these tests after instead of before surgery.

Regardless, if you are someone who doesn’t really make a ton of poor food choices but just eats more than “normal” because you always feel hungry, consider a cortisol test before surgery. I wish I had.

Edited by ShoppGirl

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Thank you, that was interesting.

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AND some people still think this surgery is a easy fix !

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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