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This is why they dont do those surgeries anymore..gastric bypass rny 2001



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Hi..my name is Glenda J Pierce and I just found this forum by searching things they dont tell you about gastric bypass. This is my story and I am wondering if anyone who had gastric bypass when it was in early stages of RNY in 2001has experienced any of the same issues and are afraid to talk about it because you are ashamed. I was for 15 years until it started making me sick..I came near death in april 2016. First let me preface this by fianlly getting sent to a Gastric Bypass Surgeon who literally said to me"this is why they dont do those kind of surgeries anymore".

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I had RNY in 2002. Old school style. And I fought for my life in 2015.. I'm pretty stable right now but hate what I've done to myself and hate being sick all the time. I'm still fighting to get about 20lbs off of regain while fighting malnutrition arms deficiencies. I get sick all the time after eating or if I don't or can't eat. I'd love to make internet friends with someone who understands too.

Sorry I have never posted on a blog before and hit something that made this post before i was done..I had gastric bypass rouxny in 2001. I was 260 at a height of 5'4". I had 3 young children and was ashamed to go most places they wanted to go..camping, amusement parks, flying etc due to my being obese and having the comorbidities that go with it such as ankle, knee, joint pain from the weight my legs were carrying and shoulder/neck pain from the set of boobs I was carrying. I went in to see the surgeon in November 2000. I weighed 240 and didnt have the BMI i should have to qualify for bypass surgery to be covered by my insurance. The doc said "you came at a great time! It's the holidays go home eat whatever you want and come back to see me after the first of the year" So I did and I gained the 10 pounds i needed plus another 10 pounds. I was qualified for surgery. I had to pass a basic psychological exam which I told the truth at(i was doing it to enjoy having fun with my kids and get healthy not for vanity)Do you know back then they didnt tell you that you needed to drink Protein Shakes or take supplements the rest of your life. I know you are not believing me right now but its true. Thats why I would like to talk to anyone who had the same surgery same year I did. I adjusted to my new life of eating 2 oz of baby food, had the diararrhea all the time when i ate something i wasnt suppose to. All the normal things they still can not change. Gastric bypass is not a "cheaters program" it is a lifestyle adjustment not only for you but for your family also. I had just lost my way I expressed my emotions all my life at 33. I felt like I lost my best friend. I didnt know how to replace it so i ended up with alchohol addiction for 5 straight years of my kids most precious lives that I had this surgery to enjoy with. Totally f****d up I know. Then I became addicted to pain killers..then some street drugs..you see where all this is going right? I was the perfect goal weight of 140 why wasnt I happy and enjoying my family? Fast forward from 2002(it took me a year to lose the weight and have abdominal plasty) to 2016. My kids are grown now and my husband took a job over 12 hours away from my family and the only "real live" friends I knew. Something broke in me that I started exhibiting physically. From April -August just 5 months I was down to 93 pounds hadnt eaten by mouth in 5 months because I was now consitpated instead of diararrhea and when i couldnt put anything more down I stopped eating. For 2 years i was labeled as "failure to thrive". Any specialist be gastroenterologist to neurologists to psychiatrists could not figure out what was wrong with me. I literally had every test done possible in those 2 years. Finally I was sent to a gastric bypass surgeon who said "this is why they dont do those surgeries anymore" Well hello did someone notify me a patient who had been through it that progress had been made and things were totally different now? ABSOLUTELY NOT. to be continued...

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So the gastric bypass surgeon said you have a choice outta 3. "1. you can stay on a feeding tube the rest of your life. 2. You can die or 3. you can do a gastric bypass reversal to keep things from getting worse I can't undo the damage that has been done" Are you f*****n kidding me? With those 3 choices i chose the gastric bypass reversal. I was able to eat got up to 178 pounds. I was beginning to see the "fat Glenda that no man would hold a door open for again". So far the doing the gastric bypass without supplements and Protein Shakes has caused me to be an addict to other things, ruin a marriage, neuropathy and tremors from Vit B deficient, The feeding tube issue and being on "death row" for 2 years which caused problems in my present marriage but I have the most reasonable awesome man in the world who now understands everything. It has caused my brain to have white spots due to Vitamin and mineral deficienct, has caused me to be diagnosed with anemia having blood transmissions done, has caused me to be diagnosed with Iron deficiency and received iron infusions. Nobody believes that this is my real life because of this surgery. I am hear to tell you it is. It happened to me

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It sounds like at least a chunk of this is due to not taking supplements and developing an alcohol and painkiller addiction rather than the surgery itself. I'm sorry that you did not get better advice and support from your surgeon.

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My big concern is not the addiction replacement I have battled that and one what concerns me is my whole body seems to be shutting down one system at a time

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Continue with the guidance both physical and psychological that you need. Keep at it one day at a time.

Do your own research.

Good luck,

Tek

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I am sorry that you have suffered so much. I think it is important for all of us to know what can go wrong with these surgeries so that hopefully people will know what kind of aftercare they need and to ask for help if things aren't going well before it gets out of control. I wish you the best on recovering from all of this!

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They certainly do perform RNY gastric bypasses now. It's still the gold standard. Some doctors talk their patients into the sleeve because it's easier for the surgeon, not necessarily better for the patient.

I had RNY in 1990. Back then RNY surgery involved stapling between pouch and stomach, not separation. It was open surgery and I was in the hospital for 7 days. I had no pre-op or post-op nutritional guidance. I was handed a 1-page low-cal diet and told not to throw up. Two follow visits post-surgery were to check the incision and I was then left to my own devices. I learned on my own to take Vitamin and mineral supplements; no one told me. I lost about 75 lbs from a high weight of 319, stopped losing after about six months, but kept the weight off for about five years before starting to gain it all back again.

For the past 20 years, I've yoyo-ed with countless diets and food plans but always return to that same high setpoint. I'm now 73 years old and am going to give it another shot. My knees and hips are shot, I've got a pacemaker, and I figure I'll die within a few years if I can't lose all this excess weight.

I first learned about revision surgery about a year ago, just before COVID hit. This spring I followed up with a hospital bariatric clinic about 2 hours from my home. I've been on a liver-reducing diet for three months. I had a barium swallow a couple of weeks ago that revealed that the staples had given way and there was a fistula between the pouch and stomach, which explains why I stopped losing weight from the RNY. I had an endoscopy today and had a conversation with the surgeon who told me that the leak occurred because of peristalsis of my stomach, not (as I thought) because I ruined it due to up-chucking too often. The new surgical methods are much improved and there is extensive pre-op and post-op guidance and follow-up.

I will have my psych evaluation in two weeks. I'm within 2 pounds of my prescribed pre-op diet, but don't have a surgery date yet for the revision.

I do not want to fail again, so I will probably seek therapy for food addiction even if it is not recommended during the psych evalutation.

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Where did you have your surgery in 2001?

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I had RNY around 1990 at St. Luke's Hospital in Milwaukee, WI. I don't recall the surgeon's name. I kept the weight off for five years and gradually regained all I had lost in the following years.

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
      · 0 replies
      1. This update has no replies.
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