Brain Scans Suggest Pain of Fibromyalgia Isn't Imaginary

[Missouri-Lee's Summit 1,256]

People with fibromyalgia have widespread inflammation in their brains, new research reveals.

"Finding an objective neurochemical change in the brains of people who are used to being told that their problems are imaginary is pretty important," explained senior study author Marco Loggia. He is associate director of the Center for Integrative Pain Neuroimaging at Harvard Medical School.

https://consumer.healthday.com/diseases-and-conditions-information-37/fibromyalgia-news-310/brain-scans-suggest-pain-of-fibromyalgia-isn-t-imaginary-738325.html

Even though this topic is not weight-loss surgery related, I've known people (mostly women who were also obese) chided about their pain being "all in their head". If being shamed about one's weight isn't enough, many sufferers have had to contend with being mocked about their pain as well. Tragic. It really makes my blood boil.

“Few things a doctor does are more important than relieving pain. . . pain is soul destroying. No patient should have to endure intense pain unnecessarily. The quality of mercy is essential to the practice of medicine; here, of all places, it should not be strained.”
― Marcia Angell

“The erosion of an effective patient-physician relationship has no place when dealing with chronic pain. Worst of all, dismissing the patient's pain is as devastating as crushing a patient's hope.”
― Melissa Cady

“The stigma of chronic pain is one of the most difficult aspects of living with chronic pain. If you have chronic pain, people can sometimes judge you for it. Specifically, they can sometimes disapprovingly judge you for how you are coping with it. If you rest or nap because of the pain, they think you rest or nap too much. If they catch you crying, they become impatient and think you cry too much. If you don’t work because of the pain, you face scrutiny over why you don’t. If you go to your healthcare provider, they ask, “Are you going to the doctor again?” Maybe, they think that you take too many medications. In any of these ways, they disapprove of how you are coping with pain. These disapproving judgments are the stigma of living with chronic pain.”
― Murray J. McAlister

“I will be living with chronic pain for the rest of my life. I don’t have the mobility, energy or life options I used to have. I work hard to manage the pain, and I want the medical system to be a respectful and effective partner, not a jailer. The opioid crisis is not my doing.”
― Sonya Huber

“The addiction crisis is terrifying, and many people don’t comprehend appropriate opioid use. When I first started taking pain medication, I remember a family member saying, “Dianne, you’re going to become an addict!”

We need to help people understand that taking pain medicine to maximize one’s ability to be productive and to sustain enriching relationships is very different than the disease of addiction, which limits one’s ability to contribute to society and maintain healthy habits.”
― Dianne Bourque

“We have a genuine and devastating epidemic of opiate abuse in this country, and it is of critical importance that this problem be addressed. But we must do so in a way that doesn’t cut off an effective (and often the only) treatment for the chronically ill, many of whom are able to function in this world at all only because of the small respite that responsible opiate use provides.”
― Michael Bihovsky

“Since my symptoms began 13 years ago, I’ve tried every form of pain management I could access — NSAIDS, nonopioid analgesics, neurologic medications, acupuncture, laser therapy, physical therapy, prolotherapy, massage, and trigger-point injections. Most of these have been unhelpful; others provide temporary relief, often at great expense. At the end of the day, when my body is fully depleted of its resources and in the most pain, a single dose of Percocet is the only tool that silences the pain enough for me to fall asleep.

I honestly don’t know what I’d do if Percocet became unavailable to me, and the very thought scares me. I’ve been taking it for five years. To avoid any chance of addiction, I only take it at night and have stayed on a consistently low dose.”
― Michael Bihovsky

“My doctors, who are not cavalier with prescriptions, give me this medication because I have earned their trust. And yet, with mounting government and public pressure, my doctors’ hands are becoming increasingly tied. They apologetically explain to me why they are required to make the medication even harder for me to get, against their own medical judgment. If the day ever comes when they aren’t allowed to prescribe Percocet to me at all, it may well be the end of the minimal quality of life I fight so hard to achieve.”
― Michael Bihovsky

“In the debate over opioid addiction, there’s one group we aren’t hearing from: chronic pain patients, many of whom need to use the drugs on a long-term basis.”
― S. E. Smith

“Despite what appears to be a low risk of addiction in naïve, chronic pain patients, it is reasonable to ask how much harm is actually done to patients with chronic pain by withholding opiate analgesics.”
― Howard L. Fields

“Anyone who takes opioids on a regular basis will become dependent upon them, meaning they will have to taper off gradually to avoid withdrawal symptoms. But very few chronic pain patients exhibit the compulsive drug-seeking behaviors of someone who is addicted.”
― Karen Lee Richards

“Chronic pain patients like me are not the cause of the opioid crisis; only 22% of those who misuse opioids are prescribed them by a doctor, and only 13% of ER visits for opiate overdoses were chronic pain patients. Most chronic pain patients are rule-followers who just want to function.”
― Sonya Huber

“Personalized medicine is an art that advocates for the patient, not the pocket or convenience of the medical system.”
― Melissa Cady

“Government agencies are trying to get doctors to cut back on prescribing opioids. I understand that they need to do something about the epidemic of overdoses. However, labeling everyone as addicts, including those who responsibly take opioids for chronic pain, is not the answer. If the proposed changes take effect, they would force physicians to neglect their patients. Moreover, legitimate pain patients, like myself, would be left in agony on a daily basis.”
― Alison Moore

“There are a lot of victims when it comes to addiction. I know there's an overdose epidemic. We see those faces. But then I see these other faces - the ones who commit suicide because they can't handle the pain. Those faces mean just as much to me.”
― Donna Marsh

“The stigma of chronic pain is one of the most difficult aspects of living with chronic pain. If you have chronic pain, people can sometimes judge you for it.”
― Murray J. McAlister

Edited November 29, 2018 by Missouri-Lee's Summit

[Matt Z 4,139]

My mom has Fibro, it's anything but imaginary.

[GreenTealael 24,964]

Hopefully now the research and treatments improve.

[Missouri-Lee's Summit 1,256]

Unfortunately, people (even health professionals) are inclined to believe what they want to believe... even when faced with evidence to the contrary. So many people suffer from pain, the worst pain being pain that no one believes. The reason why being believed is so critical, is because we are expected to "prove our pain" if we want treatment.

I don't have fibromyalgia, but I empathesize with those who do. The topic of chronic pain, whatever the source, drains a little of my life force every time I think about all the people who lead dark and desperate lives.