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Marginal/anastomotic ulcer anyone?



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So sorry you're going through this. I'm also having problems again. I eat, but it hurts all the time. I'm now taking protonix twice a day ands sucralfate multiple times a day now. I had another EGD done about a month ago and the office was supposed to call for a follow up (what my mom said, but I think I was supposed to call them). I'm still having issues. Still frequently vomit. Constantly have gas and pain. I'm tired of it. I had to switch to whole Fairlife milk to get my Protein in and coat my stomach enough. After the EGD mom said the dr told her the wasn't much change in my ulcer. But I hadn't been taking the sucralfate either. I had a major brain dump in September (18 years of amnesia because of a Migraine medicine) and didn't know I was supposed to be taking it. Now I'm waiting for a call back from the doctor to see when I can get back in to see them since things should be getting better and they aren't.

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Well get back on the Carafate, it is supposed to help the ulcers heal, I am chugging down the slurry every 6 hours, and I don't much like it. I say it tastes like flour Water, but I have to be on it 3 months minimum. And you're lucky if you get enough Protein by mouth, that's one of the reasons I have the PICC line, I just couldn't. In some ways I like my TPN, I have felt much better all the way around, but there is always a risk of getting an infection in my blood stream. Today while I was off getting my twice weekly,blood draw, they called from OSU, the woman today said they might wait until January 25 for the next scope, not what I was told last week. Maybe one hand doesn't know what the other is doing. Woman today said she spoke with Dr Noria, nurse last week said she talked to Dr Needleman, He's my surgeon but she does the scoping, nurse said he wanted the results before January 15th. So I guess I call back on the 2nd, scheduler had already left when I returned. her call.
My pouch is happy today so far, but I haven't ate anything by mouth, try her and she will complain,

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And I am still on for the 25th, at 12:50 pm, oh I am praying for some good changes. Never give up on Ole Frustr8, I haven't,

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Still having pain in that ulcer area, the right subcostal, where if I had a gall bladder, that's where I feel it. And today I threw up again, and my,mind wanted that Soup so bad, and my pouch refused to hold it in so it could digest!

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