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Marginal/anastomotic ulcer anyone?



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So sorry you're going through this. I'm also having problems again. I eat, but it hurts all the time. I'm now taking protonix twice a day ands sucralfate multiple times a day now. I had another EGD done about a month ago and the office was supposed to call for a follow up (what my mom said, but I think I was supposed to call them). I'm still having issues. Still frequently vomit. Constantly have gas and pain. I'm tired of it. I had to switch to whole Fairlife milk to get my Protein in and coat my stomach enough. After the EGD mom said the dr told her the wasn't much change in my ulcer. But I hadn't been taking the sucralfate either. I had a major brain dump in September (18 years of amnesia because of a Migraine medicine) and didn't know I was supposed to be taking it. Now I'm waiting for a call back from the doctor to see when I can get back in to see them since things should be getting better and they aren't.

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Well get back on the Carafate, it is supposed to help the ulcers heal, I am chugging down the slurry every 6 hours, and I don't much like it. I say it tastes like flour Water, but I have to be on it 3 months minimum. And you're lucky if you get enough Protein by mouth, that's one of the reasons I have the PICC line, I just couldn't. In some ways I like my TPN, I have felt much better all the way around, but there is always a risk of getting an infection in my blood stream. Today while I was off getting my twice weekly,blood draw, they called from OSU, the woman today said they might wait until January 25 for the next scope, not what I was told last week. Maybe one hand doesn't know what the other is doing. Woman today said she spoke with Dr Noria, nurse last week said she talked to Dr Needleman, He's my surgeon but she does the scoping, nurse said he wanted the results before January 15th. So I guess I call back on the 2nd, scheduler had already left when I returned. her call.
My pouch is happy today so far, but I haven't ate anything by mouth, try her and she will complain,

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And I am still on for the 25th, at 12:50 pm, oh I am praying for some good changes. Never give up on Ole Frustr8, I haven't,

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Still having pain in that ulcer area, the right subcostal, where if I had a gall bladder, that's where I feel it. And today I threw up again, and my,mind wanted that Soup so bad, and my pouch refused to hold it in so it could digest!

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I had RNYGB about 10 years ago, dropped from just 0ver 400 to 175 in 7 months, I have varied up to 210 and back down again since. I am currently at 178 so I would say it was a success, I developed strictures with what VA called an Anastomotic Ulcer between 2 strictures, they decided to use a balloon to open the strictures so I could swallow my pills. You can probably guess the result, one perforated intestine. It is amazing how little the VA knows about these procedures and it took years to get put on instant release meds, I am still on extended release omeprazole because that is the only option VA gives the Doctors, I have been on a feeding tube since Aug 2019 and just received another 3 months supply of solution, because of multiple strictures they are against trying anything else. So other than not being able to eat a hamburger in 10 years and now not being able to eat anything thicker than cream Soup strained I am actually quite glad that I had the procedure. Now if I could get enough food in me so I quit winding up in the Hospital for Malnutrition I would be perfect, not the fault of the RNYGB

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      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
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      1. LeighaTR

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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