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Blood Disorder



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I haven't had the surgery yet, but I do have a rare blood clotting disorder (Protein C deficiency). I take blood thinners daily.. But before any major surgery they always had me come in a day or two earlier an put me on heparin... They also sent me home with shots 2x a day... So I'm like you wondering how they will do this surgery...

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Thank you for asking...

I have Factor V Leiden as well and I'm taking Xarelto with no limitations. I am scared to have the VSG surgery because I'm afraid of clotting again. I'm still starting the process in hopes of having it. I need to do this and I'm going to but I'm still beyond nervous.

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I actually just found out that I have the Factor 5 gene mutation. I had my surgery in November 2015 and have had intermittent pain since. I found out that I have portal vein thrombosis (clotting in my liver veins) and I have been urgently referred to the hematologist. I will see him tomorrow morning. Not sure what this means overall, but I wish that I had known in advance that I had this mutation so that precautions could have been taken prior to surgery. I am still so very happy I went ahead with the surgery as I have had great success, and despite my pain I have actually never felt better.

Have any of you had any blood clots, specifically in the liver?

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I've only had them in one leg... It's the only place I seem to get them... I have been to a hematologist, but it was a few years ago and really didn't learn anything new for me... My vascular surgeon was the most helpful for me... I hope you can get your pain manageable, I know what it's like to live with pain daily... Good luck

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I also have FFL and happened to stumble on this thread. I tried getting pregnant for about 4 years finally did but it was a scary pregnancy with the worries about clotting, high blood pressure, and gestational diabetes. One of my main reasons for getting the surgery is to hopefully have another baby with less complications and stress. I was comforted that my surgeon knew exactly what FFL was when I mentioned it but he didn't mention any extra medication. Should I bring it back up??

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    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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