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Gallbladder sludge, Actigall, Protonix and Sucrafate Oh My!



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Hello all,

For those that have followed my journey, you are aware that I have been in and out the hospital from the time I was released post op. I followed my diet according to the instructions I was given, yet I still has complications. I was told during my last hospitalization that I had pancreatitis due to elevated lipase levels. I stayed in this hospital for 3-4 days with no food by mouth and eventually went home.

Not even a week later, I'm back in the hospital! They ruled out pancreatitis as my lipase and amalyse levels went down. I was told there were no gallstones showing on my ultrasound. Today I was finally told I have sludge in my gallbladder and may have to take Actigall for a while to break down the sludge. Further, I was told I have severe acid reflux and would be taking Protonix (to break down the acid) and Sucrafate (to coat the stomach).

I wanted to know if anyone has had experience with any of these drugs and/or situations? Also I see mixed reviews about keeping one's gallbladder versus having it removed. I was told that if I don't see improvement after taking these meds that my gallbladder may need to be removed in the future. I've been through so much already that I can't imagine going through more pain not another surgery. Not sure if it's best to take the meds and see what happens, or just beg to have my gallbladder removed so I can go back to my normal life.

Please share any thoughts and experiences you all have had with this. Thanks!

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I had my gallbladder out years ago, due to stones. It took a full year for my digestive system to get back to normal afterwards. After surgery, I became lactose-intolerant, and a huge number of foods gave me indigestion that never did before. It took a year for those symptoms to go away.

Since you are on a journey of changes right now, I would say have it taken out now, and go through all those changes at the same time, rather than heal up and then have to go through them again at a later date.

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I currently have the same thing happening to me I got sleeved August 17th had (still have the slimmies) terrible nausea and vomiting around 3 weeks post op. I couldn't drink or eat nothing went to the hospital they had me npo for 3 days and Doctor said I also had that gallbladder sludge. Really lost hope in the care because the doctor went on to say everything was fine no leaks, the gallbladder was emptying. I had my surgery in TJ so I was more frantic on what could be causing this discomfort so I decided to call the doctor up and recommended I take either nexium or Prilosec and so far nexium gave me troubles. But I'm crossing my fingers for Prilosec, I can see myself slowly getting better ????????

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I haven't experienced any of your issues. However my surgeon prescribed both the Actigall and Protonix, which I filled before surgery, to start taking after surgery, as these type issues, from what I was told, are generally at risk. Along with the possibility of gallbladder removal. Although I've never heard of sludge before.

I was actually hoping they would find a need to remove my gallbladder during surgery, to save myself the trouble of maybe having to do it later.

I'm so sorry to hear that you've had such a rough time, and I hope it improves soon!

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      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. LeighaTR

        I hope your surgery on Wednesday goes well. You will be able to do all sorts of new things as you find your new normal after surgery. I don't know this from experience yet, but I am seeing a lot of positive things from people who have had it done. Best of luck!

    • Alisa_S

      On day 4 of the 2 week liquid pre-op diet. Surgery scheduled for June 11th.
      Soooo I am coming to a realization
      of something and I'm not sure what to do about it. For years the only thing I've enjoyed is eating. We rarely do anything or go anywhere and if we do it always includes food. Family comes over? Big family dinner! Go camping? Food! Take a short ride or trip? Food! Holiday? Food! Go out of town for a Dr appointment? Food! When we go to a new town we don't look for any attractions, we look for restaurants we haven't been to. Heck, I look forward to getting off work because that means it's almost supper time. Now that I'm drinking these pre-op shakes for breakfast, lunch, and supper I have nothing to look forward to.  And once I have surgery on June 11th it'll be more of the same shakes. Even after pureed stage, soft food stage, and finally regular food stage, it's going to be a drastic change for the rest of my life. I'm giving up the one thing that really brings me joy. Eating. How do you cope with that? What do you do to fill that void? Wow. Now I'm sad.
      · 1 reply
      1. summerseeker

        Life as a big person had limited my life to what I knew I could manage to do each day. That was eat. I hadn't anything else to look forward to. So my eating choices were the best I could dream up. I planned the cooking in managable lots in my head and filled my day with and around it.

        Now I have a whole new big, bigger, biggest, best days ever. I am out there with those skinny people doing stuff i could never have dreamt of. Food is now an after thought. It doesn't consume my day. I still enjoy the good home cooked food but I eat smaller portions. I leave food on my plate when I am full. I can no longer hear my mother's voice saying eat it all up, ther are starving children in Africa who would want that!

        I still cook for family feasts, I love cooking. I still do holidays but I have changed from the All inclusive drinking and eating everything everyday kind to Self catering accommodation. This gives me the choice of cooking or eating out as I choose. I rarely drink anymore as I usually travel alone now and I feel I need to keep aware of my surroundings.

        I don't know at what point my life expanded, was it when I lost 100 pounds? Was it when I left my walking stick at home ? Was it when I said yes to an outing instead of finding an excuse to stay home ? i look back at my last five years and wonder how loosing weight has made such a difference. Be ready to amaze yourself.

        BTW, the liquid diet sucks, one more day and you are over the worst. You can do it.

    • CaseyP1011

      Officially here for a long time, not just a good time💪
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